The Secret Life of Parkinson's

I posted episode #106 on YouTube only, to talk about my pain that I think is related to PD regardless of what others say. So many people responded/commented that we wanted to share more. Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy

In this episode, Steve and I interview Ellen Walter. She's a Nurse Practitioner at the Cleveland Clinic and has been working with Steve on his medications and DBS needs for the past 4 years. She provides an inside look into the type of care nurse practitioners provide their Parkinson's patients. I wish every office had an Ellen! Support this podcast at — https://redcircle.com/the-secret-life-of-pa...

Check out this episode with one of my first PD friends, Major, as he talks about his experience with Duopa! He and his wife share how it has changed his on/off times and how they time their meals. You can read about more patient stories who are on Duopa here: https://www.duopa.com/patient-stories Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising In...

ATTENTION all ladies with Parkinson's! This is an episode you don't want to miss! (Sorry guys, you can watch if you want but it's a whole episode about menstrual cycles, hormones, menopause and more ;)! Richelle is a young-onset woman with Parkinson's. She co-founded the Women's Parkinson's Project and the My Moves Matter app. She is working with many women and doctors in the Parkinson's community...

Dr. Patel is back sharing the details of SIBO (Small intestinal bacterial overgrowth) and Parkinson’s when they occur together. Changes in muscle movements are common throughout many parts of the body for people with PD, including the GI tract. SIBO is often the result of food and liquids moving too slowly through the small intestines. Support this podcast at — https://redcircle.com/the-secret-lif...

In this episode, we invited Larry Gifford to the show! What an inspiration he is! Larry was diagnosed with Parkinson's in 2017 and since then, he launched his own podcast, "When Life Gives You Parkinson's", co-founded PD Avengers, on the MJFF Patient Council, and is now hosting the podcast for the Brian Grand Foundation, "On Time"....among many other advocate-like things. He talks about his recent...

In this episode, we bring back Dave Kolbe from Episode #11. Dave has had Parkinson's for 9+ years and is still living his best life! Hear the advice and tips he has to those of us who are newly diagnosed (or those who are years in!). Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: htt...

It's been over 2 years since we launched, "The Secret Life of Parkinson's". We recorded our 100th episode and are excited to share our top 5 most viewed episodes and the episodes the four of us learned the most from. Check it out! Thanks for viewing and following our journey! We are so grateful for all the viewers and appreciate all the comments. Keep them coming! Support this podcast at — https:/...

Check out our latest interview with Dr. Patel where we talk about MDS's approach to medication with their patients, their reaction to taking or not taking medications, and much more! Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy

In this episode, hear the love story of Allie and Steven. You may recognize them from #LitWithin or #InLoveWithParkinsons. While they lived over a thousand miles apart, Steven found Allie's blog, LitWithin, reached out to her, and the rest is history. Both living with Parkinson's, they met, fell in love, got married, and just recently, got DBS together - on the same day! Inspiring story you don't...

I've been waiting all week to share this video! For those who watched my "live" video about elbow/shoulder issues, this is a MUST SEE! I never had a reason to go to a Physical Therapist, but my MDS recommended it when medication wasn't fully helping the pain. The results...let's just say I'm a believer in PT! I'm not a doctor, and I know everyone experiences different symptoms, but I highly recomm...

While socializing may not directly increase dopamine levels in Parkinson's patients in the same way that medication or deep brain stimulation does, the positive experiences associated with social interaction can indirectly contribute to dopamine release and have beneficial effects on symptom management and overall well-being. Therefore, go on that girls trip or boys trip! Take the family on a week...

In this informative episode, we learn from Martha Carlin all about poop (yes, poop), our gut, and it's relation to Parkinson's disease. Martha has been researching gut health since her husband was diagnosed with Parkinson's 20 years ago. Inspired by groundbreaking research from Dr. Filip Scheperjans in 2014, Martha founded The BioCollective, a research company focused on mapping health, and then l...

Tune in to hear our friend, Thalia, talk about her journey to Parkinson's. She went in for a heart transplant which she believes may have triggered the onset of Parkinson's. This disease is a complex neurodegenerative disorder with multifactoral causes, and not everyone who experiences trauma or surgery will develop Parkinson's as a result. But there is some evidence that suggests if you are alrea...

In this episode, we talk about Jessica's approach to her new Parkinson's symptom (shoulder and elbow pain/tension) and tips on how Brian can exercise his masked face. We cover a few other random topics...not sure why, but this episode just made us laugh. Always good when have fun with your PD friends ;) Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Adverti...

Download ebook: https://www.parkinson.org/library/books/hospital-action-plan Order the book: https://www.parkinson.org/resources-support/pd-library/order-publications If you have not ordered or downloaded this book from the Parkinson's Foundation, I suggest you do it today! It is filled with great information. Easy to read! There are pages you are supposed to tear out to bring with you. At some po...

No one plans on falling but when you are living with Parkinson's, there is a high likelihood that falling may occur due to the disease, or just a normal trip on the curb. Either way, there are things you can learn about and things you can practice today to be prepared if and when a fall occurs. Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inqu...

In this episode, we discuss symptom changes. Every Parkinson's patient is different: their symptoms, disease progression, response to medications...everything. It's always good to keep a journal and document any symptoms, whether they come and go or come and are here to stay. Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redc...

Brian and Jessica share future episodes that you can expect in 2024! Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy

In this episode, we talk about our experiences with a "frozen shoulder" or pain in your shoulder. Rigidity, tension, and stiffness. Medication and continuing to exercise/move my arm has helped alleviate some of the stiffness at the moment. Do you suffer from pain in your shoulder? Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https:/...

In this episode, we talk with Lisa who is a person living with Parkinson's and has found painting as her therapy. She never painted before, but after living with Parkinson's for 10 years, she decided to give it a try and now she's hooked. According to the APDA, "Art therapy may also be a tool that enhances the lives of people with PD more generally. One small study investigated clay art in people...

This interview is longer than most, but for good reason. My good friend, Leah Dennis, shares her personal journey of what it was like witnessing her mother (diagnosed with Parkinson's in 2016) experience Parkinson's psychosis, only they didn't realize it was PD psychosis right away. In this video, Leah touches on "red flags" and warning signs that every care partner and patient should pay attentio...

In this episode, Brian speaks very candidly about his recent work situation. Due to a reduction in workforce with his previous employer, Brian was laid off and is now searching for a new job. Like anyone, searching for a job can be stressful. But add Parkinson's to the mix, as well as being a single dad like Brian. Check out this video to see how he's handling these changes. Support this podcast a...

In this episode, we are just scratching the surface with the topic of falling. Parkinson's or not, more than 1 in 4 people over the age of 65 fall each year. That number doubles if you are living with Parkinson's. Melissa introduces us to a few basic things to check into first, but as you can imagine, exercise is going to be a big part of this conversation! Support this podcast at — https://redcir...

In this episode, Roz gives us an update on her DBS journey. We always hear the success stories, and while hers is still a success, she's encountered a few bumps along the way. Listen to her current struggles and how she's working to overcome them. Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy &amp...