The Secret Life of Parkinson's

"We're naming everything and explaining nothing," Martha Carlin Get ready for some science!! But in a good way! A 4th time guest, Martha Carlin, caregiver to her husband John with Parkinson's (for over 20 years) who has since passed, still has the drive, passion and determination to figure out this disease...for John, his friends/community, the caregivers...for us. She continues to look and think...

I'm getting ready for a family trip to Europe and, like many people with Parkinson's, packing looks a little different for me. From medications to my DBS charger and backup plans, here's a real, unfiltered look at what comes with me when I travel internationally.

David Loud spent more than two decades conducting some of Broadway's biggest productions when Parkinson's began affecting the very abilities his career depended on. In this episode, David shares the early signs he couldn't ignore, the emotional toll of hiding his diagnosis, and why "coming out" with Parkinson's was one of the hardest things he's ever done. He also talks about reinventing himself t...

Why do two people with Parkinson's experience the disease so differently? In this episode, we sit down with researchers Patrik Verstreken and Natalie Kaempf to explore groundbreaking work that may help answer that question. Using advanced biology, biomarkers, and artificial intelligence, their team has identified what could be five distinct biological subtypes of Parkinson's disease. We discuss wh...

In this episode, we explore the inspiring work of Pass to Pass, an organization that empowers people with Parkinson's through outdoor hiking adventures. Learn about trip planning, safety, gear, and how outdoor activities can boost confidence and well-being. So excited about these adventures!!!

This BONUS episode highlights my time at WPC 2026 at the Comfort Linen booth! Last year, episode #108, we had Nancy McGovern on the podcast, and this year, I was able to meet her in person at the World Parkinson's Congress 2026! She is the creator of Comfort Linen, sheets and pajamas that are designed to allow you to move easier and more freely without getting stuck, as most people with Parkinson'...

Jessica and Melissa had the opportunity to visit and explore the Kirk Gibson innovative Parkinson's wellness center and we had share our experience. Brian then shares his experience at a PD conference he spoke at in New York! Great updates to learn what's going on in other areas. Chapters 00:00 Introduction to the Secret Life of Parkinson's 00:57 Exploring the Kirk Gibson Center for Parkinson's We...

A quick note before we start. This episode isn't about a gambling problem or a shopping problem. It's about a known side effect of certain Parkinson's medications that can change behavior in ways people don't always recognize while it's happening. Our guest, and avid listner to the podcast, Robert, was brave enough to share his story because he hopes it helps someone else spot the signs sooner tha...

This inspiring interview features Nancy, a passionate cyclist living with Parkinson's, sharing her journey of resilience, the importance of exercise, and how biking helps manage her symptoms. Discover practical tips, motivational stories, and insights on staying active with Parkinson's. Chapters 00:00 Introduction to Nancy's Journey with Parkinson's 03:01 Biking Accidents and Resilience 05:48 The...

We are so excited to introduce Nicole, Brian's other half! During this interview, we talk to Nicole about dating someone who already has a Parkinson's diagnosis, but we also talk about her professional experience as a nurse and her work with patients that come in with Parkinson's.

This episode explores the misconceptions and practical steps for legal and financial planning after a Parkinson's diagnosis. The discussion features Jim Allen, a retired law employment attorney and living with Parkinson's, shares insights on timing, decision-making, and managing estate planning in the context of a progressive disease. Chapters: 00:00 Introduction to Parkinson's and Legal Affairs 0...

Chapters 00:00 Introduction and Guest Background 01:24 Peter’s Diagnosis Journey 03:50 Initial Reactions and Diagnosis Relief 05:17 Medication Regimen and Challenges 07:10 Writing as Therapy and Creative Outlets 08:38 Impact of Parkinson’s on Hobbies and Lifestyle 10:27 Considering Deep Brain Stimulation (DBS) 12:19 Communication Challenges and Support 14:14 Experiences with Anxiety and Support Mo...

In this episode, Dr. Jud Millhon, a cardiologist turned advocate for blood flow technology known as Beemer. We dive deep into how improving microcirculation could support management your overall health. Chapters: 00:00 - Introducing the episode: The link between blood flow, Parkinson's, and wellness 02:00 - Dr. Jud Millhon’s background in cardiology and his personal health journey 04:00 - How Beam...

In this episode, we revisit important insights on managing Parkinson's while working, including legal rights, disclosure timing, and workplace accommodations, with expert Jim Allen. We explore practical advice for navigating employment challenges and maintaining independence. Chapters 00:00 Introduction and Guest Background 01:21 Previous Episode Recap and Key Topics 02:50 Medication and Symptom M...

YOU HAVE TO LISTEN UNTIL THE END! SO FUNNY!!! This interview explores the innovative intersection of art, neuroscience, and Parkinson's disease, featuring Kristin Norderval’s journey as a musician diagnosed with Parkinson's and her pioneering work on vocal and gestural research. Discover how music and movement can aid in understanding and managing Parkinson's symptoms. Chapters 00:00 Introduction...

Did you hear? Syngenta is stopping paraquat production! Here’s why this matters for the Parkinson’s community. In our latest episode, we discuss a major shift in Parkinson’s advocacy. With Syngenta halting paraquat production, we have a chance to reshape policies affecting our loved ones. George and Margaret, advocates who lost parents to Parkinson’s, share their journey. They’re not just talking...

This episode features Gary Gosselin sharing his inspiring journey with Parkinson's disease, the significance of perseverance and intent, and how his wristband initiative fosters community and hope among those affected. Chapters 00:00 Introduction and Guest Introduction 00:59 Gary's Diagnosis Journey and Initial Steps 02:53 The Role of Self-Advocacy and Specialist Care 04:48 The Inspiration Behind...

This interview with Dean Dahl explores the early stages of Parkinson's diagnosis, the emotional impact, and strategies for living proactively with the disease. Dean shares his personal journey, insights on medication, support systems, and the importance of community and self-care. Chapters 00:00 Introduction to Parkinson's and Personal Stories 02:48 Recognizing Symptoms and Initial Diagnosis 06:12...

Taryn Rapp shares her personal journey with genetic testing related to Parkinson's disease, discussing her father's diagnosis and her participation in the PPMI study. The conversation explores the importance of genetic testing, the process involved, and the impact on family dynamics. Taryn emphasizes the value of knowledge and participation in research to help advance understanding and treatment o...

This conversation delves into REM Behavior Disorder (RBD) and its significant connection to Parkinson's disease. Dr. Roy is back again to explain the nature of RBD, its prevalence among Parkinson's patients, and the importance of early detection. The discussion covers management strategies, including medication options like melatonin and clonazepam, as well as safety measures for partners of those...

The critical importance of sleep! Today, we met Dr. Asim Roy, a sleep medicine expert, to talk about the different types of sleep apnea, their health impacts, and the importance of early detection and treatment. The conversation also touches on gender differences in sleep apnea prevalence, the role of technology in diagnosis, and the various treatment options available. At the end of the day, we a...

Freezing of gait can feel sudden, scary, and incredibly frustrating for people living with Parkinson’s disease. In this episode, Dr. Hinkle, Head of MDS Neurology at OhioHealth, joins us to talk honestly about why freezing of gait is so difficult to treat and how patients and caregivers can better understand and manage it. Dr. Hinkle shares his passion for working with people affected by freezing...

In this episode, hosts Jessica Krauser and Brian Baker engage in a heartfelt conversation with Robert McMillan, who shares his 14-year journey with Parkinson's disease. The discussion covers the initial shock of diagnosis, the importance of support systems, treatment options, and the impact of exercise on quality of life. Robert emphasizes the need for self-advocacy, the significance of community,...

In this episode, Jessica and Brian talk to Dr. Mantri, a Movement Disorder Neurologist and the new Chief Medical Officer for the Parkinson's Foundation. Dr. Mantri dives into the importance of personalized patient care in managing Parkinson's disease and they explore how patients can prepare for appointments, the significance of care partners, and the value of community support. The conversation a...

Viewers have asked about our personal experiences with medication changes throughout our journey so far - the changes in dosage, the side effects, the different medications, trial and error. So in this episode, Jess and Brian each dive into their medication journey (Jess over 6 years and Brian over 10 years). The conversation also touches on alternative treatments and lifestyle adjustments that ca...