The Secret Life of Parkinson's

In this episode, Dr. Patel describes the difference between the 5 Neurodenerative Parkinsonisms: Parkinson's Disease, Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal Degeneration (CBD), and Lewey Body Dementia (which is discussed in Part 2). We take a quick break and come back on with Dr. Patel to talk about Lewey Body Dementia further and how it's different from...

For those living outside of Ohio, Cheryl Krueger is a well-known entrepreneur in Columbus and is referred to as the 'Cookie Queen'. (Order her cookies and you'll quickly find out why: https://ckruegers.com/) She was diagnosed with Parkinson's 10 years ago, has faced, and continues to face, many daily challenges with walking, balance, and hallucinations. She has an incredible outlook on life and a...

Join us for an exclusive interview with a Parkinson's Disease (PD) patient living in Canada who underwent Deep Brain Stimulation (DBS) surgery. Our guest shares her personal experiences and unique insights into the DBS process, shedding light on how it differs between Canada and the United States. Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising I...

Blake Bookstaff, young-onset patient and author of: “You have young-onset Parkinson’s disease” joins us to talk about his journey with Parkinson’s and what he hopes his book will accomplish. P.S. his book is relevant for all ages of Parkinson’s patients. Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Priva...

As you saw in Episode #74 with Chris Jones, we discussed the National Plan to End Parkinson's Act. In this episode, we interview Fred Piccolo, a young-onset Parkinson's Patient AND the Director of Special Projects for Congressman, Gus Bilirakas, also working on this National Plan. His personal story and hope that is inspiring. By passing this bill in Congress, he believes we could see a cure in ou...

In this riveting episode, we sit down with Chris Jones, a dedicated staffer working alongside Gus Bilirakas, to dive deep into the National Plan to End Parkinson's Act. Chris shares his firsthand insights, shedding light on the act's significance and the path forward. If you're passionate about making a difference and eradicating Parkinson's disease, this conversation is a must-listen. Join us in...

Daniel Corcos, Ph. D. at Northwestern University, is running the first randomized control trial designed to investigate the effects of moderate- and high-intensity aerobic exercise on disease progression in untreated patients with Parkinson’s, called SPARX3. Listen as Dr. Corcos explains how aerobic exercise is a vital treatment for people living with Parkinson's. Support this podcast at — https:/...

In this episode, Gene who is 75 and living with Parkinson's for 4 years, we learn that he is no stranger to surgeries. However, his most recent experience has his family speaking up about what they wish they knew or wish they would have done prior to this surgery. Listen in and learn about how to advocate for yourself or a loved one when you have a hospital stay. Support this podcast at — https://...

Michelle Newman joins us from the Kirk Gibson Foundation to talk about plans their foundation has for Parkinson's patients living in Michigan. Kirk Gibson is a former professional baseball outfielder and manager and was named the National League MVP in 1988. During his career, he hit two dramatic home runs in the World Series! He is currently a color commentator for the Detroit Tigers on Bally Spo...

In this episode, Jessica and Brian share a few tips and tricks that they use in their everyday life to make things a little easier. Everything from driving to clasping your necklace. Share your everyday tips with us in the comment section! Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Ou...

In this episode, our host, Jessica Krauser, takes you on an intimate exploration of the early days of her diagnosis to her remarkable transformation into an empowered advocate. Delve into the pages of her journal, where she meticulously documented the symptoms that led her to the life-altering diagnosis. Discover the depths of her prayer journal, where Jessica sought solace, answers, and guidance...

In this empowering video, we delve into the crucial role of exercise in the lives of people living with Parkinson's disease. Discover how exercise has been proven to slow the progression of Parkinson's and enhance overall well-being. Whether you prefer walking, biking, running, rowing, or lifting, we encourage you to do what you love while incorporating other activities like yoga for stretching, d...

We conducted a survey within our YouTube community to gain insights into how our loved ones cope with our Parkinson's disease. Some ignore it or stress about it, while others talk about it, seek professional guidance, or have joined a dedicated support group. Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands...

In this podcast, we delve into the intersection of cinema portrayls of Parkinson's and how we feel about carbadopa/levedopa. Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy

In this exciting episode, we are thrilled to unveil the finished product of our much-anticipated First Step Set. In this episode, you'll get an exclusive sneak peek at the personalized items we curated for this kit. We already distributed 100 kits - listen to find out how you can support us and hopefully receive a kit in the future! Support this podcast at — https://redcircle.com/the-secret-life-o...

Join us as we chat with Danielle, a representative from the Michael J Fox Foundation, about the groundbreaking BioMarker study. Gain a deeper understanding of its impact on Parkinson's research and learn how you can make a tangible difference by joining Team Fox. Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/bra...

Join us as we embark on a journey that began as a straightforward Q&A session with the esteemed Dr. Patel, only to delve into a startling revelation. In this episode, we explore the necessity for individuals with Parkinson's who find themselves admitted to a hospital, be it for surgery or any other reason, to disclose specific medications hospital staff should avoid due to their condition. The...

This is a very short segment, but Brian shares how he felt on his first vacation in 7 years (since his diagnosis). #Don'tBeAfraidToTravel! Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy

Join us for a deep dive into the cutting-edge world of Parkinson's research and clinical trials! We've got the inside scoop from April's Team Fox MVP event, and we're excited to share all the latest breakthroughs with you. Plus, we're shining a spotlight on Michael J. Fox's powerful new documentary, Still. Don't miss this opportunity to stay informed and inspired! Support this podcast at — https:/...

If you've been diagnosed with Parkinson's and don't know how to talk to your employer or when to talk to your employer, listen to the advice we received when we interviewed a retired Law Employment Attorney! You don't want to miss it! Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: ht...

Telling family and friends about your diagnosis can be difficult. Did they deny it, accept it, or feel like they could fix it? Communicate, communicate, communicate! Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy

Liz Miller is a psychotherapist and shares her Parkinson's diagnosis journey. Acting out dreams, depression, tremors, and finding a PD community. Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy

The Secret Life of Parkinson's: In this episode, you'll hear from Bethany Richards, the Founder of Bike Box Project. A simple idea she had years ago (putting a box on her bike to raise awareness and donations for MJFF) has turned into a Parkinson's community of over 70 people living with PD in New Bern, North Carolina! Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/d...

I can't say enough about Dr. Soania Mathur. To put it simply, she is extraordinary. She has been living with Parkinson's since she was 28...and now, 25 years later, she's not talking to us about her aches and pains (although I'm sure she has plenty), rather, she's sharing with us her path to advocacy. She said, "when you know better, you have to do better". And that's exactly what she's doing. Her...

Brian and I take a few minutes to answer questions that some of you have asked in our comments! We are also asking what questions you may have that we can address when we have Dr. Patel on again. Check out The Secret Life of Parkinsonn's on YouTube if you want to leave a comment/question Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries:...