The Secret Life of Parkinson's

In this conversation, Katherine shares her journey as a caregiver for her husband with Parkinson's disease. She emphasizes the importance of advocacy, navigating the healthcare system, and the adjustments required in caregiving. The discussion also touches on the impact of Parkinson's on relationships and the significance of teamwork in caregiving. Katherine's insights as a certified patient advoc...

00:00 Introduction and Personal Stories 02:58 Diagnosis Journeys and Experiences 06:06 Living with Parkinson's: Acceptance and Medication 09:02 The Role of Exercise and Community 12:06 Socialization and Support in the Gym 14:59 Encouragement for New Diagnoses 17:56 Future Aspirations and Activities 21:02 Navigating Daily Life with Parkinson's 23:46 Conclusion and Final Thoughts Support this podcas...

Oh DBS...why is it so hard to decide. Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy

0:00 Introduction 2:06 Jess's Neuropsychological test experience 3:46 The influence of stress on cognitive function 5:55 How does the doctor define stress 8:04 Recommendations when you do experience stress 9:47 Depression can mimic Dementia 11:55 Neurophsycology looks at the functioning of the brain 13:58 How Neuropsycology is different from other disciplines that look at cognitive functioning 15:...

00:00 Welcome Warren Hanna 02:10 Experiences for a new YOPD patient 04:51 Reaction from family 06:50 It doesn't progress overnight 07:17 How did you know 10:25 What regimen did you choose to start 21:33 Prioritizing exercise 24:16 Control the controllables 25:03 How Baseball training has helped 30:10 Becoming an advocate Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons...

00:54 Police officer diagnosed with Parkinson's in 2020 02:17 Connecting the dots between exposed chemicals to PD 03:34 Putting yourself in danger and you don't even know it 06:38 More awareness needs to be done around police and fireman 08:00 Accepting Parkinson's while bringing awareness to the potential reason 10:17 What changes can be made? 17:17 What if you ever got pulled over by a cop? 18:0...

This episode is about sex. You will hear the words: Erectile dysfunction, orgasm, libido, sex tools/toys and more. If this isn't for you, please don't watch. This episode is for people with PD who have asked the question about sex with PD. While Brian and I might look uncomfortable, I've just been really dyskinetic but also uncomfortable. But it was a GREAT interview! Support this podcast at — htt...

"I'm a believer!" That was a statement we heard over and over from our friends at PDNextSteps about the Beech Band after they wore it, walked around, smiled, moved more freely and spoke a little clearer. Carl himself has said that this innovation - this simple band - was a gift from God to bring back his speech. As a Christian myself, I truly believe that. We were able to witness first-hand how th...

Not everyone has a live-in carepartner. People dealing with Parkinson's could be young, old, male, female, living solo or living with someone. See how Brian manages living alone, and listen to the questions he asks me about checking in on my caregivers. This is a good one... 0:00 Intro 3:15 Living solo you do things for yourself 4:06 Living with PD, do you have stress, putting stress on your carep...

0:00 - Intro 1:02 - can you dance? 2:09 - Would you do a dance class? 2:57 - What does dance help with? 3:44 - Laugh together 4:04 - Dance is spiritual 5:03 - Dance classes in U.S. 5:58 - What does dance help with 7:19 - Jess took an adult dance class 9:15: Parkinson's Prom idea 10:50 - New year, new you Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advert...

Making the decision to have DBS surgery is not easy. But I didn't think it would be for the reason I discuss. #parkinsons #podcast #deepbrainstimulation #dbs #yopd #parkinsonssymptoms #thesecretlifeofpd #movementdisorder #pd Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redc...

Meet Carl Beech. After you watch this epside, you will remember his name, I promise you! There's not much I can really even say or explain - just trust me, you have to watch this episode!!! Check out more on: https://www.facebook.com/profile.php?id=61563836532593 https://www.parkinsons.org.uk/news/were-investing-beech-band-wearable-device-aims-manage-parkinsons-symptoms #parkinsons #parkinsonssymp...

Just a mix of different topics: Shoes, PDNextSteps program, Parkinson's expenses, future episodes, and other random things. Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy

Brian started experimenting with dry needling for his back and shoulder issues so we thought we would discuss his experience with his PT! 0:00-1:04 Dry Needling 1:05-2:58 Brian's PT Ryan 2:59-3:51 What is dry needling? 3:52-6:24 Where to focus dry needling 6:25-7:53 Dry needling vs. acupuncture 7:54-8:59 Brian's experience 9:00-10:11 Dry needling for Dystonia 10:12-11:47 What is cupping? 11:48-12:...

In this episode, we meet Amy Lavalee, who is a young-onset Parkinson's patient. She shares her personal story and then talks about her work with the Brian Grant Foundation. Check it out! Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy

One of the biggest Parkinson's advocates I know is George Ackerman. George's mom, Sharon, was living with Parkinson's for years before anyone ever knew. The last 4 years of her life, George was his mother's caretaker and learned more about the world of Parkinson's than he ever anticipated. Since her passing, he has has been dedicated to driving advocacy to find a cure. Support this podcast at — ht...

WOW, WOW, WOW! What a weekend! Our Parkinson's non-profit, the 5KforJK, had our 4th annual walking event this past weekend (September 15, 2024) in Columbus, OH. Erika came from Florida (for the 3rd time) and Jill came to Ohio for her 1st 5KforJK (and her first time to Ohio) all the way from Washington State! Straight from Erika and Jill - "community is everything...meeting other PD people is life...

If you are into learning more about the gut, check out this episode. We brought Martha Carlin back to talk about more research she is doing on the GUT! This time, she's researching the effects of body temperature and Parkinson's. It's still in the works, but man is it interesting to hear her talk about. While I may not understand all the scientific terms, I learn and understand what I need to from...

This was a new term to me, but I know a lot of others are probably aware. But take a minute to listen to Dr. Patel discuss sundowning and how a carepartner or family member can help. Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy

If you are on Instagram and have PD, you probably have seen, "imstillallie". Brian and I had the opportunity and priviledge to interview Allie Signorelli, a Young-onset PD powerhouse. Her career background happens to be in the non-profit space - doing events and fundraising for Alzheimer's. Even though she worked in the Neurodegenerative space as an advocate/event coordinator for years, she never...

Don't forget, you can also check out our video podcast on YouTube: https://www.youtube.com/@thesecretlifeofparkinsons Meet my daughter, Kate Krauser, as she brings honesty and humor to life with a Parkinson's mom...and advocate. My twins were just 9 years old when I was diagnosed. Long before I was diagnosed though, Kate, at the age of 7 and 8, was already "caring" for me and my symptoms. She woul...

We have my daughter Kate for one last episode! She joined me at the gym earlier this month and boy was she exhausted! this episode, we talk about the benefits of going to a gym and how to overcome challenges and barriers we put in front of exercising. Apathy and fatigue in PD patient definitely play a big part, so listen to some of the ways we overcome those barriers. Support this podcast at — htt...

Even though most people tell you "Don't google Parkinson's" after you're diagnosed, it's hard not to. So when we do, we are filtering through a sea of resources. Great resources, might I add! But sometimes I have a specific question that doesn't require a call to the doctor, or I'm finally ready to look into clinical trials, or I want to read about all the possible options that are available to me...

Dr. Benjamin Walter joined us from the Cleveland Clinic to talk about a very important initiative that he has been working on: when in the hospital, people with Parkinson's should be able to receive their medications at their specific times and that the staff and pharmacy are notified what drugs NOT to administer. I can't thank Dr. Walter and The Parkinson's Foundation enough for putting so much i...

If you're living with Parkinson's and have trouble sleeping like I do, I have a solution for you: bed sheets that make moving around EASY! A few months back, Melissa recommended these sheets to our group. After realizing I was getting 'stuck' when tossing and turning at night, I decided to give them a try—along with their pajama set. Tune in to the podcast to hear my review and learn more from the...