AWOL Zebra : Fascia and living with hEDS

What a day! Friends are hard to find and keep with this illness. Work on your posture while listening.

Another doctor another day. Will we ever stop trying to figure it out?

Allie Gillies stops by to catch up. It’s nice to learn a new tidbit or two that could help make our day. Join us please!

I feel relief and no pulling in my body. Was the tongue pull it? I can develop my own program now that I can feel my body. I can’t turn back now.

Who would’ve thought you could get rid of pain through the tongue? My jaw and neck were so tight. It hurt to swallow.

I am steadily moving forward. I think. Trusting my gut and heading towards a maintenance program for myself. One of these people offering programs understood that I couldn’t afford to sign up for their program, but wished me great success and hoped I had a wonderful group of professionals around me. Sadly, I haven’t always. That is why I advocate for learning your body and knowing what you need so...

I am discovering life with this new body. Nothing is the same anymore. But I think I can do it. And so can you! AWOLZebra.com

What a refreshing interview. Meet Meghana Venkatesha. A pre med student with EDS. Making a difference. A privilege to chat with this young woman. Helping EDS patients from the inside. Our future is looking brighter thanks to her. Full interview available at AWOLZebra.com

My guess is I haven’t respected my body lately. I may no longer be 14 and carefree. Even weighted down with my own thoughts. I CAN STILL BE HAPPY!!!

Back to back modalities. We’ll see if my theory proves to be correct. We are on our own! No one knows your body better than YOU! No handbooks available. Therefore we share;)

I think I was farther ahead weeks ago. I feel like I am going backwards. But I can’t give up now can I?

My coccyx rotated and my ability to walk was gone. PT “fixed” me until I got home. How was your day?

It would be nice to have a warranty or a plan with my body. It can get so bad. But, it’s been so much worse.

I talk to myself all of the time. Today. I didn’t enjoy the conversation or the company;)

I didn’t think I did much today. And, it’s okay.

I almost through in the towel today. I can’t seem to fight this anymore. Is it time?

It’s no fun being alone. Today I don’t know how to fix myself.

I had the opportunity to interview Yvonne. I’m excited because we were going to call it off but we pulled through for each other. She actually does the ice plunge during the interview. Full video available at AWOLZebra.com

After PT I think I am maintenance bound. 🤞It’s such a slow and long process. But I am trying.

Remembering the body I used to know.

It’s hard to not feel alone. I know I’m not. Where are you?

What an incredibly fun and interesting interview! Please purchase Sovereign at your local bookstore or go online. AJ Whitney living with EDS and all the comorbidities that come along has written her first book. A TRILOGY!!!And its not about EDS or is it? Join me… Release Date:February 28, 2025 TODAY!!!!

Driving down the road. I suddenly realized. I don’t have to listen to that song. I’m in control. My body finally felt release and relief. If only temporary. I WILL get it back.

I lost more time. Am I going back or is this still improving?

I made two trips and there was no reason for the second one to have been needed. But you know how unpredictable an EDS body can be. Have you signed up at AWOLZEBRA.com?