AWOL Zebra : Fascia and living with hEDS

I had my yearly appointment. Back in the day people would know what I was talking about. What is in store for our future? Guess what I’m doing? Win a prize?!?!? I have noise cancellation earbuds. I think🫨😉🤣💙

I made it!!! The Spring Musical…Concessions…My FASCIA!!! Are you working on your fascia yet?

My husband had a little fall on the roof. I am preparing for day two of the spring musical extravaganza! Hard to believe I would have been bed ridden had I followed doctors orders.

I made it through opening night! I helped with concessions. My son was fantastic! I was not in a wheelchair or wearing compression garments. I am doing laundry! I HAVE NO IDEA HOW MANY DAYS I HAVE BEEN UP! I want to stay this way. Is it possible? Join me!

I am truly resting! I never knew it was possible. I have a ton of stuff to do. However, priorities! My son performs tonight!

I don’t know how many days I have been up and productive. I am thrilled to be house sitting for my mother in law! Why? Because I can. 4 years ago. 2 months ago. It was not possible. Fascially my body was failing me. Now that we know the culprit. My body will never fail me again because of something I did not do. So this episode I am riding high not dirty😉! On a positive note. Who knows what’s gon...

I don’t know how many days it’s been? I know my quality of life is looking pretty smashing to me. Right now I’m relaxing with ROM😻😽😸🐈‍⬛What more can I ask for? Oh so very much.😉🤣💙

I don’t know how many days I’ve been up. But I am only moving forward! It’s amazing to me how my body was failing me but I had to have a talk with it. The purse bucket has arrived.

I haven’t fully rested from my latest appointment. Pondering my future. And I need to organize my purse.

One day I will be loud enough to be paid attention to by the individuals that make money. Karma is a bitch.😉💙

I am doing it! Don’t give up! The ‘experts’ tried to tell me my process was ridiculous. Trust your body! I try to be open-minded. Join me. We will make a difference!

I am taking charge of my own treatment! In route to Maryland! Tuckey&Associates, Chris Butler, I am en route! Join me as I fight to prove everyone that told me my process was wrong.

I am getting ready for my year of CHristie! Is my life changing? On my way to Maryland! Chris Butler from Tuckey & Associates is going to manipulate my ribs!! Yes! It’s happening!!!

Found out voice to text isn’t my forté. My body is activated. I am learning to live again. Is this for real?

For 4 1/2 years I have been in constant pain. It’s always no pain no gain. For the first time I have no pain. Can I still gain?

How is this my body? Years ago they wanted me in a wheelchair. How is this possible? I am getting down to the core of my onion. I have to be don’t I?

I recorded this after being up and active over 12 hours. What do you think I felt like? Feel free to comment.

I am learning how to live again and it’s not as easy as you would think. I feel guilty for being up and moving. But I’m also so grateful to be doing so.

I have found my people! I am more than just this illness. I am getting my body back. No exceptions.

Every tine I turn around I discover another layer to this illness.

I can’t believe I was bedridden. How was it possible? I am getting relief on my own terms. Noninvasively! And they wanted me bedridden?

On my way to PT. I just left the eye doctor. I have a feeling today is the day for the quadratus lumborum.

I had massage. I am setting an end date to this path of treatment. I think. And it can change.

Still working on the costume. The day did not go quite as planned.

Going to the PT. Two weeks and no tailbone rotation. Let’s see what happens.