AWOL Zebra : Fascia and living with hEDS

Jon Rodis, the President, of the Connective Tissue Coalition. Joins me to discuss the CTC and why it’s the key that will open a lot of doors to answers and a better quality of life. We must advocate for ourselves.

I saw this post by Lynne Geis. She was kind enough to tell me she didn’t have the energy to do it herself. But she gave me permission to read her words. Thank you Lynne.💙 This is also a “verbal transcript” for listeners that couldn’t read the post.

It’s amazing how much I can feel so lost one minute then feel like I’ve got this. Recordings 7 hours apart.

Is it time to quit? Have I achieved all there is? It’s okay to mourn. Now let’s fight!

I appreciate everyone that takes the time to listen and follow. Friends IRL and from the EDS community. Thank you.

Learning new ways to work on fascia everyday. Unfortunately, my case is too complex for these modalities. Maybe not you. Don’t end up like me.

I am reliving every traumatic incident done to my body. But I am undoing the damage at the same time. Restoring my fascia to health!

The adhesions in my jaw were released. They were almost 50 years old. The nerves tingled! My jaw is ALIVE! The spasms stopped!

I promote no one person or product. You need to find the best recipe for your wellbeing.

I promote working on your Fascia. Fighting for yourself, and being heard.

I was told mine was a complex case. This has been happening since the day I was born. I have 53 almost 54 year old solid hard chunks of fascia to break free from my body.

A few hours later. My attitude changed. My husband asked me to ride the island. I finally enjoyed the trip for the first time in years! It’s like I FINALLY relaxed!!! Finally!!! Have I accepted? Did I pace?

I need to learn to talk again. My day was over. Then a friend happened by…

The deepest ones are doosies. You can do this.

Yesterday the podcast had me talking the entire time I was doing a new modality to me that works on my Fascia. The only discomfort you hear is when I go to reach for the light switch when I forgot that I had subluxed my shoulder at the doctor.

I am working on my fascial dysfunctions the entire episode. Stay tuned to know which one. If I can do it! You can too! I HAD TO FIGHT! So I went hard!! I have a plan in place for My SON! Bonus: me too;)

I suffer with hEDS, but you know that. New listeners might not get it yet. I rushed home every day to hear Mike Arlo sign off at 2:52 PM. I study radio because I wanted to be in radio. I wanted to create theater of mind. That is why I share a podcast. You are not alone!💙. HAPPY BIRTHDAY MY SON!! Wyland!! My gift at 37 I thought it was menopause. Nope! A bouncing baby boy. Now 6’3” and 16??? I wil...

That’s where everything is going. My husband says it’s all happening! That’s what they said on all those things one of our courtin’💙movies. Almost Famous! And Kevin Smith. I have a story to tell!! 😉! Yes, my husband is my other zebra! I can’t do all the hashtags and stuff now, but I thank you! @everyone for following. Don’t know if that is correct??? I can’t do it anymore…but… I will. I must fig...

I am getting ready to go to my appointment. I am so desperate for help! My apologies for the strain of my voice because of the muscle spasms.! But hey!!! I didn’t fall asleep🤣💙 it’s nerve compression in my neck from my Fascia! The doctors thought it was a stroke.

If you are local! Message me. We need a welcoming community. If you’re not local? Message me. I hear you! I understand your pain!

Be an AWOL Zebra too!!! Find the modality that works for you. Please follow AWOL Zebra! Spread the word. To anyone. Fascia people! Pet care people! We will make a difference!

The neurologist thought I was having a stroke. I am no longer in doubt. I have fascial dysfunction.

I went to the founders of fascial counterstrain. I am going down the right path. Cakeblindness thank you!💙

Thank you Allie💙 I guess I took it literally. 🤣 Is it time for the next phase of my plan?

Sadly. I am experiencing what it’s like to only have one person that can help me. Luckily, I found a friend on the way. Thank you Lola! My friend💙😉! Work on your Fascia before it stops working for you. 💙