The ResearchWorks Podcast

Ms Atefeh Taghizadeh, PhD Candidate  LaTrobe University Presentation title: Development and psychometric properties of the Upper Limb-Motor Learning Strategy Tool (UL-MLST) for children with cerebral palsy

Ahlam Zidan, PhD candidate McGill University Presentation: Understanding the effectiveness of transition to adult interventions for adolescents with disabilities it’s a realist informed, mixed method, systematic review.

Associate Professor Leanne Johnston  University of Queensland Presentation title: Effectiveness of school-based physiotherapy intervention for children: a systematic review

Professor Roslyn Boyd  Queensland Cerebral Palsy and Rehabilitation Research Centre, University of Queensland Presentation title: Efficacy of infant friendly Baby-CIMT and Baby-BIM in a randomised trial of home-based parent delivered early intervention for infants at risk of unilateral cerebral palsy

Aisling Ryan, PhD Candidate University of Queensland Presentation title: Expert consensus on optimal child-led goal setting practices for school-aged children with a disability or delay: An International Delphi Study

Dr Mari Carmen Lillo  Miguel Hernandez University Presentation title: Early intervention in neurodevelopmental disabilities in Europe: sharing experiences 

Dr Lisa Mailleux  University of Leuven Presentation: The assessment of grip strength and stereognosis in preschool aged children with and without unilateral cerebral palsy

Dr Stacey Cleary CPAchieve, Murdoch Children’s Research Institute, Honorary University of Melbourne Presentation title: The experiences and perceptions of participation in daily life of adolescents and young adults with cerebral palsy: a scoping review

Professor Reidun Jahnsen University of Oslo, Oslo University Hospital Presentation title: How did youth with cerebral palsy perceive participation in everyday life after participating in a periodical intensive rehabilitation programme based on adapted physical activity? A qualitative interview study

Dr Amanda Kwong  University of Melbourne, MCRI Presentation title: Knowledge translation of early identification of cerebral palsy (KiTE CP) study: engagement in screening implementation among a high-risk prospective cohort of Australian infants.

Dr Caroline Alexander Curtin University, Telethon Kids Institute, Perth Children’s Hospital Presentation title: Interrater reproducibility of General Movement Assessments and motor optimality scores in large populated based cohort.

Jorn Ockerman Ghent University Presentation title: Current measurement practices and use of technology among Flemish pediatric physiotherapists.

Dr Ruslan Vasyutin   Founder of DCP Help and Master Goal Presentation title: Challenges of comprehensive rehabilitation for children and families in time of war conflict.

Dr Nathalie De Beukelaer  KU-Leuven, University of Geneva Presentation title: Morphological muscle growth in infants and toddlers: a longitudinal study

Rose Elekanachi McGill University Poster title: The development and validation of a cost of care questionnaire for children  with arthrogryposis multiplex congenita: a caregiver perspective

Associate Professor Helen Bourke Taylor Monash University Presentation title: Online Healthy Mothers Healthy Families workshops: positive health and lifestyle impact for mothers of children with disabilities.

How do genetic tests answer questions about neurodevelopmental differences? A sociological take Daniel Navon Abstract When it comes to neurodevelopmental differences, a genetic test result can provide compelling answers. However, it is not always clear what the relevant question is. If we want to understand the impact of a genetic diagnosis such as NGLY1 deficiency or the fragile X, trisomy X, or...

An interview with Connor Johnstone - discussing his personal journey and lived experience, the f-words and what they meant to him and the article: Effects of voluntary exercise on muscle structure and function in cerebral palsy by Noelle G. Moreau and Richard L. Lieber - published in DMCN 2022. Connor is a personal trainer, support worker and table tennis coach currently studying at Edith Cowan Un...

ResearchWorks is going to EACD Slovenia! ✈️🇪🇺 We'll be at the conference for EACD - the annual European Academy of Childhood Disability Conference - this year held in Ljubljana Slovenia! 🇸🇮 We will have a booth in the main conference hall and hope to see you there! 👋 We'll be live recording podcast episodes with many of the conference speakers and bringing you all the latest news from t...

Rethinking our physical therapy approach (Redux) This was an inspiring conversation. We covered so much ground and this just reflects the expertise of our guests today.  Diane has been such a driving force for evidence based interventions. Her work has significantly influenced global practices and her passion was so tangible throughout this conversation.  Ginny’s perspective is incredibly refreshi...

Determinants of gait dystonia severity in cerebral palsy Bhooma R Aravamuthan , Toni S Pearson , Keisuke Ueda , Hanyang Miao , Gazelle Zerafati-Jahromi , Laura Gilbert , Cynthia Comella , Joel S Perlmutter Affiliations expand PMID: 36701240 DOI: 10.1111/dmcn.15524 Abstract Aim: To determine the movement features governing expert assessment of gait dystonia severity in individuals with cerebral pal...

' Finding what works for me' - a qualitative study of factors influencing community gym participation for young adults with cerebral palsy Georgia McKenzie , Nora Shields , Claire Willis Affiliations expand PMID: 35694973 DOI: 10.1080/09638288.2022.2083243 Abstract Purpose: To understand the factors influencing participation in community-based gym exercise for young adults with cerebral...

Watch the video-cast at the ResearchWorks Podcast YouTube Channel! https://www.youtube.com/watch?v=S0dzGX1k3bs Implementation of an Early Communication Intervention for Young Children with Cerebral Palsy Using Single-Subject Research Design Roslyn Ward , Elizabeth Barty , Neville Hennessey , Catherine Elliott , Jane Valentine Affiliations expand PMID: 36615031 PMCID: PMC9821676 DOI: 10.3390/jcm120...

Watch the video-cast at the ResearchWorks Podcast YouTube Channel! https://youtu.be/hO7VkbrVZoE How much is the right amount of therapy? Among the most common questions we are asked when it comes to therapy for autistic children is how much therapy should a child be receiving. This is a really logical question to ask. It reflects the love and concern that parents have for their child, and their st...

Watch the video-cast at the ResearchWorks Podcast YouTube Channel! https://www.youtube.com/watch?v=fNMsXKfCHkc Global prevalence of cerebral palsy: A systematic analysis Sarah McIntyre , Shona Goldsmith , Annabel Webb , Virginie Ehlinger , Sandra Julsen Hollung , Karen McConnell , Catherine Arnaud , Hayley Smithers-Sheedy , Maryam Oskoui , Gulam Khandaker , Kate Himmelmann ; Global CP Prevalence G...