The ResearchWorks Podcast

Bivalent Prefusion F Vaccine in Pregnancy to Prevent RSV Illness in Infants List of authors. Beate Kampmann, M.D., Ph. D.,  Shabir A. Madhi, M.B., B.Ch., Ph. D.,  Iona Munjal, M.D.,  Eric A.F. Simões, M.D.,  Barbara A. Pahud, M.D., M.P.H.,  Conrado Llapur, M.D.,  Jeffrey Baker, M.D.,  Gonzalo Pérez Marc, M.D.,  David Radley, M.S.,  Emma Shittu, Ph. D.,  Julia Glanternik, M.D.,  Hasra Snaggs, M.D.,...

F-words and early intervention ingredients for non-ambulant children with cerebral palsy: A scoping review Ana Carolina De Campos , Álvaro Hidalgo-Robles , Egmar Longo , Claire Shrader , Ginny Paleg Abstract Aim: To explore the ingredients of early interventions provided to young children with cerebral palsy (CP) who are classified in Gross Motor Function Classification System (GMFCS) levels IV an...

A roundtable discussion about the clinical application of Mobility as a Human Right! Mobility is a fundamental human right and is supported by the United Nations and the ON Time Mobility framework. W Logan, Bethany M Sloane, Lisa K Kenyon, Heather A Feldner  PMID: 37232636  PMCID: PMC10215286  DOI: 10.3390/bs13050399  Free PMC article  Abstract  Mobility is a fundamental human right and is support...

Powered Mobility Device Use and Developmental Change of Young Children with Cerebral Palsy Mobility is a fundamental human right and is supported by the United Nations and the ON Time Mobility framework. The purpose of this study was to understand the effect of a powered mobility intervention on developmental changes of children with cerebral palsy (CP). This study was a randomized, crossover clin...

ON Time Mobility: Advocating for Mobility Equity Abstract Mobility is a human right. The traditional definition of mobility in physical therapy practice is centered on translocation and, while accurate, is not comprehensive.  In this article, we propose the ON Time Mobility framework: that all children have the right to be mobile throughout their development to explore, engage in relationships, an...

Brain activation changes following motor training in children with unilateral cerebral palsy: An fMRI study Rodrigo Araneda , Laurance Dricot , Daniela Ebner-Karestinos , Julie Paradis , Andrew M Gordon , Kathleen M Friel , Yannick Bleyenheuft Free article Abstract Background: Intensive motor-learning-based interventions have demonstrated efficacy for improving motor function in children with unil...

It has been an incredible week for the podcast this week. A quick debrief with Ash and Dayna and a look ahead to some exciting new epsiodes!

The NDIS (National Disability Insurance Scheme) and evidence based practice. A very special ResearchWorks episode as we speak with (Australian) Federal Minister Bill Shorten - the Minister for the National Disability Insurance Scheme (the NDIS).  The NDIS is a very unique Australian treasured, national health care service - there may be no other equivalent of it's kind in the world and though...

Persuasion and Communication in Sport, Exercise, and Physical Activity How can we use persuasion methods to make people more physically active and improve their sport and exercise experiences?  How can instructors, coaches, athletes, and practitioners most effectively communicate their messages to others? Persuasion and Communication in Sport, Exercise, and Physical Activity is the first book to c...

Eye movements and stress during eye-tracking gaming performance in children with dyskinetic cerebral palsy Saranda Bekteshi , Petra Karlsson , Lieselot De Reyck , Karen Vermeerbergen , Marco Konings , Patrick Hellin , Jean-Marie Aerts , Hans Hallez , Bernard Dan , Elegast Monbaliu Affiliations expand PMID: 35393636 DOI: 10.1111/dmcn.15237 Abstract Aim: This study aimed to explore eye movements and...

Reliability and Validity of the Youth and Young-Adult Participation and Environment Measure (Y-PEM): An Initial Evaluation Saeideh Shahin , Sara Ahmed , Briano DiRezze , Dana Anaby Abstract Aim: To examine psychometric properties and aspects of utility of the Youth and young-adult Participation and Environment Measure (Y-PEM). Methods: Young people with and without physical disabilities ( n = 113)...

Financial cost and quality of life of patients with spinal muscular atrophy identified by symptoms or newborn screening Tamara Dangouloff , Mickael Hiligsmann , Nicolas Deconinck , Adèle D'Amico , Andreea M Seferian , François Boemer , Laurent Servais Free article Abstract in English and Spanish Aim: To compare the societal financial costs and quality of life (QoL) of untreated patients with...

Poor comprehenders have difficulty with reading comprehension despite adequate word reading accuracy and fluency.  Weaknesses have been identified with lower-level vocabulary and grammar skills, and higher-level language skills such as inference making. It is important that speech-language pathologists (SLPs) tailor intervention to meet the specific needs of individuals; however, there is a lack o...

EACD 2023 Supplemental. Professor Rocío Palomo-Carrión University of Castilla-La Mancha Interview re: Mini-symposium:   Powered mobility: Facilitating participation in children with Spinal Muscular Atrophy (SMA) type I. Ready for the race?

"...The journey of 100 episodes begins with one interview..." YouTube video link: https://youtu.be/R0wGTaDI9Yw A look back at a significant milestone in the life of the Pod.  We are honoured and privileged to be able to bring the podcast to you each and every week. We take great joy in highlighting the work of incredible researchers, clinicians and specialists from around the globe. Bein...

Dr Dayna Pool Curtin University and the Healthy Strides Foundation The final words.... Thank you!

Professor Nora Shields  LaTrobe University, Olga Tennison Autism Research Centre Presentation title: Effect of a community-based intervention (FitSkills) for young people with disability on physical activity participation: a stepped wedge cluster randomised trial

Assistant Professor Sudarshan Dayanidhi  Shirley Ryan Ability Lab, NorthWestern University Presentation title: Mitochondrial energetics in impaired muscle growth and across functional levels in children with cerebral palsy 

Amy De Roubaix, PhD Candidate Ghent University Presentation title: The impact of developmental coordination disorder: preliminary results in Belgium

Anke Arkesteyn, PhD Candidate KU Leuven Poster title: Physical activity participation in adolescents with autism spectrum disorder: barriers and facilitations - a qualitative study.

Dr Cristina Simon-Martinez University of Applied Sciences in Valais (Switzerland) Poster title: RehaBot: A chatbot between therapists and patients to establish telerehabilitation programs and quantify their outcome.

Dr Rachel Toovey  University of Melbourne Presentation title: Pathways to participation:understanding the experiences of families of children with disability in gymnastics

Lize Kleeren (PhD  Candidate) and Lisa Decraene (PhD Candidate) KU Leuven Presentation titles 1: Proximal proprioception in children with and without unilateral cerebral palsy, measured with state-of-the-art robotics. 2: Robotic evaluation of bimanual coordination in children with unilateral cerebral palsy with different manual abilities.

Álvaro Hidalgo-Robles - PhD Candidate Universidad Internacional de La Rioja | UNIR Topic : Perspectives on EACD2023, early career researchers and an evidence based approach to early intervention, 

Professor Sylvain Brochard (Co-chair of the technological task force for EACD)  and BEaCHiLD (Breizh Research and Innovation Centre for Child Development and Rehabilitation) and  Niek De Taeye: Head of family user forum of EACD and parent of daughter with CP. Presentation title: Building technologies for children with disabilities: how to start from their needs?