The ResearchWorks Podcast

Parenting a Child with a Neurodevelopmental Disorder Peter L Rosenbaum , Monika Novak-Pavlic Watch the video-cast at the ResearchWorks Podcast YouTube Channel! https://youtu.be/MUfMh5lYk_I Free PMC article Abstract Purpose of review: Traditional thinking and focus in 'childhood disability' have been on the child with the impairment - with the imperative to make the right diagnosis and fi...

Evidence-Based Clinical Practice Guideline For Attention Deficit Hyperactivity Disorder (ADHD) . This clinical practice guideline is for the identification, diagnosis, and treatment of people with ADHD. It outlines a roadmap for ADHD clinical practice, research and policy, now and in the future, with a focus on everyday functioning and quality of life for people who are living with ADHD and those...

Watch the video-cast at the ResearchWorks Podcast YouTube Channel! https://www.youtube.com/@researchworkspodcast The ResearchWorks Team is back for Season 3 with an all-star lineup of brilliant researchers - starting with Professor Mark Bellgrove, Professor Peter Rosenbaum, Professor Andrew Whitehouse and Dr Sarah McIntyre! The episodes will release from March 5, 2023. For more information on the...

LIVED EXPERIENCE - AN INSIGHT ON THERAPY, THE F-WORDS, RESEARCH AND EVIDENCE BASED PRACTICES AND WHAT KIND OF IMPACT IT CAN HAVE. Today’s episode is one of our wrap up episodes where we bring together all the topics of conversation from the past season.  We will be referring to the work of Christine Imms and the Family of Participation Related Constructs, Physical Activity through sport and the wo...

Welcome to Season 2's end of year wrap up episode! We have had so very many excellent guests on the pod - both in person and online and covered a plethora of topics over that time. For episodes up to 56 , you'll find our mid-season wrap up in episode 57. This weeks episode covers our conversations with: Dr Catherine Morgan Professor Hércules Ribeiro Leite Associate Professor Helen Leonar...

AN EVIDENCE BASED APPROACH TO HEALTHY EATING Dr Kyla Smith is a paediatric dietician with a passion for helping families to feed their children well without the overwhelm. Dr Smith has a PhD in childhood weight management and 15 years experience working with restrictive eaters both in her clinic and online programs. Dr Smith has developed a suite of online programs and resources to help families f...

Thermoregulation in wakefulness and sleep in humans Veronique Bach , Frederic Telliez , Karen Chardon , Pierre Tourneux , Virginie Cardot , Jean-Pierre Libert In this episode, we talk more broadly about thermoregulation in wakefulness and sleep in humans - a bit of a deep dive into human physiology. We increasingly understand that there is a relationship between sleep, body temperature regulation...

Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability Christine Imms , Mats Granlund , Peter H Wilson , Bert Steenbergen , Peter L Rosenbaum , Andrew M Gordon PMID: 27640996 DOI: 10.1111/dmcn.13237 Free article Abstract This review outlines a conceptual approach to inform research and practice aimed at supporting children whose lives are co...

Word learning and verbal working memory in children with developmental language disorder Emily Jackson , Suze Leitão , Mary Claessen and Mark Boyes . https://doi.org/10.1177/23969415211004109 https://orcid.org/0000-0002-2537-7387 Abstract Background and aims Previous research into word learning in children with developmental language disorder (DLD) indicates that the learning of word forms and mea...

Somatosensation and bringing together current science and anatomical knowledge combined with some practical strategies that can support children with unilateral cerebral palsy. The pediatric rehabilitation research unit at KU Leuven, under supervision of professor Hilde Feys, is dedicated to the evaluation and rehabilitation in children with neurological disorders, and more specifically in childre...

Evidence-informed clinical perspectives on postural management for hip health in children and adults with non-ambulant cerebral palsy Ginny Paleg , Roslyn Livingstone Affiliations expand PMID: 35275575 DOI: 10.3233/PRM-220002 Abstract Postural management is a multi-disciplinary approach incorporating a comprehensive schedule of daily and night-time positions, equipment and physical activity to hel...

The prevalence of and potential risk factors for Developmental Language Disorder at 10 years in the Raine Study Samuel D Calder , Christopher G Brennan-Jones , Monique Robinson , Andrew Whitehouse , Elizabeth Hill PMID: 35922883 DOI: 10.1111/jpc.16149 Abstract Aim: This study sought to determine the prevalence of Developmental Language Disorder (DLD) in Australian school-aged children and associat...

Language and Literacy in Young People Associate Professor Suze Leitão This week, we set the scene for many upcoming conversations from researchers in the area of language and literacy. We took a broad view of what Language and Literacy in Young People is, what research is currently being conducted and where we can look to for the most up to date research in the area. There are several strands of r...

CDKL5 deficiency disorder: clinical features, diagnosis, and management Helen Leonard , Jenny Downs , Tim A Benke , Lindsay Swanson , Heather Olson , Scott Demarest Abstract CDKL5 deficiency disorder (CDD) was first identified as a cause of human disease in 2004. Although initially considered a variant of Rett syndrome, CDD is now recognised as an independent disorder and classified as a developme...

Moving together is better: a systematic review with meta-analysis of sports-focused interventions aiming to improve physical activity participation in children and adolescents with cerebral palsy Ricardo Rodrigues de Sousa Junior , Deisiane Oliveira Souto , Ana Cristina Resende Camargos , Georgina L Clutterbuck , Hércules Ribeiro Leite Abstract Purpose: To analyze the effectiveness of sports-focus...

Early Intervention for Children Aged 0 to 2 Years With or at High Risk of Cerebral Palsy: International Clinical Practice Guideline Based on Systematic Reviews Catherine Morgan, Linda Fetters, Lars Adde, Nadia Badawi, Ada Bancale, Roslyn N Boyd, Olena Chorna, Giovanni Cioni, Diane L Damiano, Johanna Darrah, Linda S de Vries, Stacey Dusing, Christa Einspieler, Ann-Christin Eliasson, Donna Ferriero,...

A MID-SEASON RECAP Can you believe we are already halfway through season 2?  In this week’s episode, we endeavoured to bring everything together from all of the wonderful interviews so far in 2022. We identified 3 main themes which, as Ed pointed out - really does bring together the 3 components of evidence based practice (go Ed - we were impressed!).  When you combine the power of co-design (whic...

The 2nd part of a  2 part series of interviews with Dr Leanne Sakzewski and Dr Sarah Reedman.  As part of the training for NHMRC research project Active Strides-CP, Dr Sakzewski and Dr Reedman were visiting the Healthy Strides Foundation for training on the STRIDE component of the study. It was a rare opportunity to interview 2 of Australia's finest about all things research - the NHMRC, the...

 A 2 part series of interviews with Dr Leanne Sakzewski and Dr Sarah Reedman.  As part of the training for NHMRC research project Active Strides-CP, Dr Sakzewski and Dr Reedman were visiting the Healthy Strides Foundation for training on the STRIDE component of the study. It was a rare opportunity to interview 2 of Australia's finest about all things research - the NHMRC, the HABIT-ILE study,...

Neuroimaging findings in children with cerebral palsy with autism and/or attention-deficit/hyperactivity disorder: a population-based study Magnus Påhlman , Christopher Gillberg , Kate Himmelmann Abstract Aim To compare neuroimaging patterns according to the Magnetic Resonance Imaging Classification System (MRICS) in children with cerebral palsy (CP) with and without autism and/or attention-defici...

A qualitative analysis of the experiences of children with cerebral palsy and their caregivers in a goal-directed cycling programme Ellen L Armstrong , Roslyn N Boyd , Christopher P Carty , Megan J Kentish , Benjamin I Goodlich , Sean A Horan Abstract Purpose: This qualitative thematic analysis aimed to capture the experiences of children with cerebral palsy (CP) and caregivers who completed an 8-...

Effect of targeted movement interventions on pain and quality of life in children with dyskinetic cerebral palsy: a pilot single subject research design to test feasibility of parent-reported assessments Nadine Smith , Simon Garbellini , Natasha Bear , Ashleigh Thornton , Peta Watts , Noula Gibson Abstract Purpose: To determine the feasibility of using parent-reported outcome measures of the Paedi...

Neurodevelopmental Therapy for Cerebral Palsy: A Meta-analysis Anna Te Velde , Catherine Morgan , Megan Finch-Edmondson , Lynda McNamara , Maria McNamara , Madison Claire Badawy Paton , Emma Stanton , Annabel Webb , Nadia Badawi , Iona Novak Abstract Background and objective: Bobath therapy, or neurodevelopmental therapy (NDT) is widely practiced despite evidence other interventions are more effec...

Development of the Gross Motor Function Family Report (GMF-FR) for Children with Cerebral Palsy Paula S. C. Chagas , Peter Rosenbaum , F. Virginia Wright , Lesley Pritchard , Marilyn Wright , Aline Martins Toledo , Ana Cristina R Camargos , Egmar Longo , Hercules R. Leite . Purpose: To describe the initial steps in the development of a family-completed, modified version of the Gross Motor Function...

Psychological morbidity among adults with cerebral palsy and spina bifida Mark D Peterson , Paul Lin , Neil Kamdar , Elham Mahmoudi , Christina N Marsack-Topolewski , Heidi Haapala , Karin Muraszko , Edward A Hurvitz PMID: 32713401 DOI: 10.1017/S0033291720001981 Abstract Background: Very little is known about the risk of developing psychological morbidities among adults living with cerebral palsy...