The MS Trust podcast

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Frustrated how multiple sclerosis is typecast in the media? We often hear that TV shows, newspapers and social media do not show the kind of MS most of you experience. So we asked three journalists with MS for their standpoint. Listen to our chat with Rachel Horne, Daf Wyn and Richard Sprenger -...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this episode, we talk about altered sensations. So what are altered sensations then? They are a bunch of sensory symptoms that can occur in MS, such as burning, tingling, pins and needles, crawling, numbness, prickling and the list goes on!    We talk to Dr Amanda Howarth, a pain specialist ab...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 New year, new podcast! In this episode, we cover new research developments, education and what’s new at the MS Trust.    We kick off the year by talking a little about what’s happening in the world of MS, the MS Trust and more. We chat to Rachel Horne who is a journalist with MS. She breaks down...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 For our last podcast of the year, we thought we'd get back to basics and concentrate on one of the most important things the MS Trust does, and that is answering your questions about MS.    We've compiled a list of the most popular topics which people have contacted us about this year....

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this short episode, Helena talks to Tristan about an exciting fundraising opportunity to double your gifts to the MS Trust at no additional cost. Help your money go further and double the impact for people with MS. Episode notes: Double your donation at mstrust.org.uk/big-give - From 29 Novemb...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 This time on Multiple sclerosis breaking it down, we’ll be talking about thinking problems in MS. Problems with thinking and memory affect around half of all people with MS. Cognition is the medical term for thinking, and problems with thought and memory are known as cognitive problems. Issues in...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 This time on the MS Trust podcast we’ll be talking about eye problems in MS. Multiple sclerosis can affect your vision in several ways. Problems with your sight, such as optic neuritis, can be an early symptom of MS, but can also arise if you've had MS for some time. To try and explain the i...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 We are back with part two of our Sex and MS podcast. At the MS Trust we have produced content about Sex and MS for many years, and if there is one thing that we have learnt, it is that sex is a tricky subject to talk about. That’s why, we’ve once again invited subject experts, Denise Middleton an...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 At the MS Trust, we know that talking about sex and sexual health isn’t easy. Many people find it an awkward or embarrassing topic to discuss, whether that’s with partners or health professionals. That’s why, we’ve invited subject experts, MS nurses,  Denise Middleton and Lesley Catterall to answ...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Disease modifying drugs (DMDs) are a group of treatments for people with multiple sclerosis. Most DMDs are for people with relapsing remitting MS (RRMS), but there are some that are licenced for use by people with progressive MS. For people with RRMS, disease modifying drugs reduce the number of...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Our relationships with the people around us, whether family, friends, partners or work colleagues, are important for our emotional health and practical support. But sometimes MS can feel like a barrier to those relationships, making it harder to maintain the ones that matter to us or develop new...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 As temperatures start to soar in the UK we catch up with Dr Nikos Evangelou about how and why heat affects people with MS. We also share some of your thoughts and real life experiences of heat sensitivity as well as tips on how to deal with it.     Episode notes : - Temperature Sensitivity - Info...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Today we are talking about the often misunderstood topic of advance care planning. The MS Trust recently published an information book titled ‘Thinking ahead: setting out your wishes for your future care and treatment’. It’s a useful resource designed to help you to understand and share your pers...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Most people with MS receive their diagnosis as adults in the midst of working life. This latest podcast from the MS Trust talks about what working life is like when you have multiple sclerosis. We discuss what rights people with MS have at work, how to disclose health conditions to an employer, w...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Multiple sclerosis is a very active area of scientific research. Developing new treatments for MS can be a long and complicated process. In our latest podcast episode, we learn about the journey an MS treatment goes on with Dr Nick Cunniffe, a researcher in Cambridge. We also chat to Faisal about...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 MS is a condition affecting the central nervous system (the brain and spinal cord). It’s estimated that 130,000 people in the UK have MS.  In this podcast we chat to two guests about MS. Simon, from our MS Trust information team, who answers questions from people affected by MS on a daily basis,...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Our volunteer Will returns with another episode taking a peek behind the scenes at how the MS Trust works. This time, he talks to Simon and Janice from the MS Trust Information team. Whether you have recently been diagnosed, want to know more about a symptom you are experiencing, or need informat...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Fatigue is one of the most common symptoms of multiple sclerosis. It's described as a feeling of exhaustion that's out of all proportion to any activity you may have been doing. People with MS often find it had to explain fatigue to others so in this episode we ask how you would describ...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 28 February 2022 Will returns with another episode taking a peek behind the scenes at how the MS Trust works. This time, he talks to MS Trust CEO, David Martin and Chair of Trustees, Caitlin Sorrell to find out more about how the MS Trust supports people with MS, their personal connections to mul...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Menopause is the hot topic at the moment, with more and more people speaking up about the problems and issues it can bring. But did you know it can also affect your MS? In this episode we talk to Neurologist Ruth Dobson about how and why menopause and perimenopause can affect MS and what options...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 To start the year off, we caught up with MS Trust CEO, David Martin to ask questions like, "How is the MS Trust different to the MS Society?" and learn about our upcoming multiple sclerosis related projects. We're also joined by new Volunteer Manager, Mark to hear about what flexib...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In our last podcast of 2021 we speak to Dr Nikos Evangelou about how cold temperatures affect people with MS. We also share some of your thoughts and real life experiences of cold sensitivity. Episode notes : - Temperature Sensitivity - Information from the MS Trust: mstrust.org.uk/a-z/temperatur...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 For many people with multiple sclerosis, relapses are a big part of the condition. In this episode we discuss what relapses are, how to recognise if you're having a relapse and how to deal with them. We hear from MS Nurse Miranda Olding about what causes a relapse and how they are treated, a...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 We discuss the 'hot topic' of HSCT for MS, hearing from Claire in the Information team about the criteria for receiving stem cell transplantation. Our guests also include Chris who was eligible for HSCT on the NHS and Gwen who went to Russia to seek treatment for PPMS. Both share their...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Guest presenter and MS Trust volunteer, Will, returns to our archives. This time, he looks at the role Pharmacists play within an MS service, what support they offer and the latest drugs in development for people with MS. Featuring input from MS Pharmacists Brina and Aoife as well as Gemma from t...