The MS Trust podcast

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this episode, we discuss some of the barriers people of colour may face when diagnosed with a condition that in the past has been seen as a 'white or Caucasian condition'. We talk to Natalie, who set up the Black MS Foundation to raise awareness and provide a space for black people t...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this exercise and MS themed episode we discuss how exercise can benefit people with MS. In the past, people with multiple sclerosis were advised to avoid exertion. It turns out that this was not good advice. Regular, moderate exercise is now known to be an important part of maintaining good he...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In the first episode of this new series, our volunteer Will meets Megan, Head of Health Professionals Programmes at the MS Trust and MS Support Nurse, Laura. The two talk about how MS nurses are trained, what support the MS Trust offers to health professionals as well as looking at what the futur...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this back to school themed episode we speak to Suzy, a teacher with MS and Nick, a dad to three boys who was diagnosed with MS at the start of lockdown. With schools going back after the summer holidays, we discuss everything from the challenges of home schooling to talking to children about m...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In part two of mobility problems and mobility aids, we chat to neuro-physiotherapist Jody Barber. This includes looking at how mobility problems may present in MS and what to do if you think you need a mobility aid as well as some different exercises you can do to help improve your mobility. Jody...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Many people with MS can experience issues with their walking and mobility. Difficulties can include unsteadiness, tripping and stumbling, and being less confident when walking. In this episode we chat with blogger, Emily, who was diagnosed with relapsing remitting MS in 2010. Emily shares her exp...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Guest presenter and volunteer, Will, is back to delve into another area of our MS archives. In this episode he turns his focus to balance and dizziness in multiple sclerosis, and shares ways to help manage these symptoms. Featuring input from Neuro and Vestibular Physiotherapist, David Herdman. W...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 There are over 40,000 people living with advanced MS in the UK. These people can feel invisible to the healthcare system, with little interaction with health professionals and limited access to disease modifying drugs. In this episode we talk to Paru and Rob from the MS Trust about why we are rai...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Guest presenter and MS Trust volunteer, Will, continues raiding our MS archives. This time he's talking about pain and multiple sclerosis. Featuring input from consultant nurse in pain management, Sue Barnes. Will's references: - Source Video: youtube.com/watch?v=jg3Cwpk_0dI - Patient-L...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this Carers Week special we hear from Martin who was diagnosed with MS around 40 years ago and his wife Lizzy, who offers support through unpaid care. We also chat with Roma from Carers in Hertfordshire about what help and support is available for carers across the UK.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Guest presenter and MS Trust volunteer, Will, was diagnosed with multiple sclerosis in 2015. Here he raids our archive to talk about disease modifying drugs (DMDs). Featuring input from MS nurse advisor, Nikki Embrey, Will covers key questions including how to tell whether a treatment is working,...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Did MS or the pandemic make you rethink your career path? In this episode we talk to Will and Diva, two performers who used their MS diagnosis as a catalyst to change direction in their working lives.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 During the pandemic many people with MS were told to shield. But what was it like for the keyworkers with MS? In this episode of our podcast we chat to Mel, about her experiences of working as a nurse during lockdown. And speaking of nurses, we also chat to MS Trust CEO David Martin, about what h...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 MS is often diagnosed in your 20's when a lot of people are just starting out their working career. During 2020 many people found themselves on furlough, or being made redundant. In this episode we speak to Amy, who started not one but 2 new jobs during 2020. Amy also runs an online support...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 During 2020 we had to learn to live with the new norm where everything moved to online. But how does that work when you are expecting a baby? In this episode we chat to Jenna and Annie, two ladies with MS who both found out they were expecting during lockdown.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 During lockdown a lot of us felt drained from doing nothing at all. Many people with MS struggle with fatigue during the best of times, but lockdown made things several times worse. In this episode we meet Ant Chapman, a musician and educator who worked all the way through lockdown remotely. We t...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 This past year has been tough on all of us. But imagine being diagnosed with a lifelong condition such as multiple sclerosis in the middle of it all. In this podcast the MS Trust chat to two young women, to find out how they coped with their MS diagnosis in the middle of a pandemic.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this last episode of "It's all in your head", we chat about loneliness and anxiety with Claire from the MS Trust Information Team. We also talk to Catherine Seymour from the Mental Health Foundation about the impact of lockdown on our mental health, and how we can ease ourselves...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this fifth episode of "It's all in your head" we chat to Sara Coffey, a dramatherapist, who explains more about dramatherapy as an approach to dealing with mental health problems. Sara has worked with people with MS in the past, so shares some brilliant insights into how this ki...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 The fourth episode of our 'It's all in your head' series focuses on MS nurses and how they can help people with MS with their mental health. We speak to MS Nurse Sally Fox about what an MS nurse does from day to day, why she thinks mental health is important and how you could talk...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 The third episode of the series focuses on anxiety, a feeling many people with MS will be familiar with. First of all we hear from Mike, a person with MS who talks about his experience of anxiety since being diagnosed with MS, as well as during the coronavirus outbreak. We then catch up with Jo J...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 The second episode of new series focusses on the newly diagnosed and the impact an MS diagnosis can have on your mental health. Learning that you have a lifelong condition is a huge thing to try and deal with, so how do you get your head around that? In the podcast, we hear from Emily and Will ab...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 The first episode in our new podcast series all about MS and mental health. We chat to Gemma from the MS Trust’s Information Team about why mental health problems are more common in MS, neuropsychologist Dr Anita Rose shares her top tips for taking care of your mental wellbeing, and Chris and Car...

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 We're living in uncertain times and we know that lots of you, understandably, have questions about the coronavirus and MS. So for this podcast, we've pulled together some of the questions that have cropped up the most and asked Claire, who works in our Information Team, to answer them....

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In the podcast, we speak to Dr Anita Rose about how you can take care of our mental health during the coronavirus crisis. We also chat to Will Berard, who lives with MS, about how he is coping in the COVID-19 lockdown. Please note: all information and advice in this podcast is correct at the time...