MS Trust
The MS Trust podcast
Our podcast brings together a range of voices from the MS community to cover all aspects of life with multiple sclerosis. We know that living with MS can be life changing and can feel overwhelming at times. That’s why we’re here with you at each stage of the journey. Look, we know that we don’t have all the answers. But our podcast’s aim is to bring you the most up to date, trusted information from experts across the MS space including neurologists, therapists and researchers. Plus, hosts Helena and Nick hear real-life experiences from the MS community and find out your tips, tricks and the th...
Where to listen?
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Episodes
Demystifying MS diets pt 1: the Wahls Protocol and Overcoming MS 01.07.2024 1:16:16
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Have you thought about making changes to your diet to help manage your MS? Maybe you’ve experimented with a few fad diets, but never quite found what works. Well, we know the feeling. The world of nutrition can be tricky – you’re not sure if you should be keto, vegan, paleo, carnivore or just str...
Young carers in MS – Oritsé Williams' story 10.06.2024 54:01
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 JLS founding member and critically acclaimed solo artist Oritsé Williams has been in the limelight since 2008. But long before the dazzling, bright lights of fame, Oritsé began his journey as a young carer for his mum, who was diagnosed with MS when he was 12 years old. Find out about the challen...
Limbo land - what you can do while you wait for an MS diagnosis 28.05.2024 50:34
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Waiting for a potential multiple sclerosis diagnosis can be daunting. In this episode, we explore the "limbo land" time during your first appointments and a possible MS diagnosis. Neurologist, Dr Emma Tallantyre, joins us to talk about the importance of reaching out to your healthcare p...
MS Unfiltered: tackling taboo symptoms 22.04.2024 1:16:40
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Do you have feel embarrassed about your MS symptoms? Do you find some topics difficult to talk about? You’re not the only one. 85% of people we surveyed felt embarrassed by at least one of their symptoms and many of the community were hiding their symptoms from their partners. A third of people l...
How periods, pregnancy, breastfeeding and the menopause can affect multiple sclerosis in women 08.04.2024 1:26:59
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Have you ever wondered how your hormones might affect your MS? We're joined by podcast guests Olivia Mason, a woman diagnosed with multiple sclerosis not long after giving birth, and Professor Ruth Dobson, a consultant neurologist specialising in MS. Together, we explore how periods, pregnan...
How can I manage my MS bowel problems? 25.03.2024 1:01:02
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Bowel problems and MS. The underdiscussed topic that can leave many feeling anxious about leaving home. Have you experienced constipation or incontinence and wondered what part multiple sclerosis plays in them? Our podcast guests, Noreen Barker (MS Nurse Consultant) and Concetta Brugaletta (Clini...
How can I manage my MS bladder problems? 19.02.2024 1:01:38
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Are MS bladder problems bursting the seams of your day-to-day life? You’re not alone. Around 75% of people living with MS experience bladder issues and we know how frustrating and isolating they can be. That’s why we’re talking to MS specialist nurse, Grace Hazlett, about treatment options, preve...
Mind Matters: Looking after your mental health with MS 29.01.2024 57:29
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Living with MS means you might hit some unexpected mental health turbulence at times. Throw in the cost of living crisis, shocking world events and the gloomy news cycle and things around you can easily start to feel pressurised. Well, we may not have the answers to all of the world’s problems, b...
Can mindfulness really help with my MS? 08.01.2024 48:21
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Ok, you’ve heard all about mindfulness and maybe you’re even considering giving it a go. But can it actually help you manage life with MS? Is it just one of those trendy well-being fads like eating charcoal or moss smoothies (yep, they’re both actually real)? Mindfulness teacher, Justin Standfie...
Your most asked multiple sclerosis questions in 2023 18.12.2023 1:00:49
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 What have the MS community been asking about this year? We interview Corinne from our helpline team who tackles the burning MS questions and trends that our service has encountered in 2023. In our busiest helpline year yet, the range of questions has been vast! We cover symptoms, equipment and...
How do you get the best out of your MS Nurse appointment? 27.11.2023 1:04:26
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 If you’re not sure how to best prepare for your next MS Nurse appointment, this could be the podcast for you. No matter where you are on your MS journey, talking about your condition can bring on a wave of emotions. Your mind is likely to be brimming with questions and points to raise. Add in lon...
How do you get the best out of your neurologist appointment? 06.11.2023 58:26
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Feeling overwhelmed and anxious at the thought of discussing your MS with a neurologist? Wondering what questions to ask and what you should bring? You’re not alone. Whether you’re preparing for your first appointment or your tenth, emotions can be heightened. Add in the limited time that you ge...
How does smoking affect MS? 16.10.2023 1:09:25
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Ever wondered if smoking affects your MS? Sure, we all know the health risks linked to smoking. But, does smoking cause multiple sclerosis progression? And will your MS symptoms improve if you quit smoking? We dive deep into these questions with consultant neurologist, Professor Richard Nichol...
How common are breathing difficulties in Multiple Sclerosis? 25.09.2023 1:10:15
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Multiple sclerosis can affect breathing in advanced MS. But breathing problems can begin at any stage with MS. To explain more in this podcast we talk to Racheal Moses who is a Consultant Respiratory Physiotherapist and Neuro Physiotherapist Jody Barber. They explain how you can spot breathing pr...
What you told us about MS and mental health 04.09.2023 46:06
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 This is a recording from a live stream we did earlier with the Head of Information and Engagement at the MS Trust Claire Winchester, we chat to her about a report called “Life changing: mental health and MS". In this report we find out about what the MS community in the UK has to say about m...
How can I improve my sleep when I have MS? 14.08.2023 1:30:13
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Sleep problems are more common in people with MS than the general population. Around half of people with MS say they experience disturbed sleep. In this episode we talk about some common problems and some potential ways to improve your sleep. We chat to prof Michael Banissy who has written seve...
What happens when you treat MS really early? We learn about the AttackMS trial 20.07.2023 1:12:34
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Diagnosing MS can be a lengthy procedure, and getting on a treatment path can take even longer. So what happens when you treat potential MS really early? In this episode, we talk to Professor Klaus Schmierer about the AttackMS trial. The trial, the first of its kind, aims to use a highly-effecti...
Getting to grips with using a mobility aid 21.06.2023 1:25:07
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Have you been told to consider using a stick or wheelchair, but don't think you're ready for it yet? Maybe you're noticing changes to your walking ability and you’re wondering what you can do about it? In this episode, we talk to neuro physio Laura about helpful mobility aids, and...
Small steps, big impact: building a healthier lifestyle with MS 01.06.2023 1:20:57
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 So you want to lead a healthier lifestyle with MS? But, you're feeling overwhelmed and you're not sure where to start? We've been there. Can simple changes in sleep, exercise, and diet REALLY influence MS management? Special guest Charlie Peel, author of ‘Disease-modifying lifestyl...
Avoiding the brain drain in MS: how to keep your mind fit and fed 22.05.2023 1:09:56
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Ready to take steps to improve your brain health? Neurologist Agne Straukiene (also host of BeeWellWithMS podcast) has a multi-pronged, scientific approach to boost your mental health, symptom management, fatigue resilience, cognition and sleep quality. We talk tailored exercise, learning how die...
Breaking it down live - MS: your emotions and feelings 11.05.2023 1:12:04
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 During MS Awareness week we aired a live podcast were we talked all things MS, emotions and feelings. Our recent survey of over 2,000 people living with MS, revealed that 56% feel that MS negatively impacts their mental health. We were super excited to be joined by two excellent guests, who answ...
I am newly diagnosed with MS, what happens next for me? 02.05.2023 1:24:38
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Every week around 130 people are diagnosed with MS. Finding information you can trust is important, particularly when you're newly diagnosed, as learning about MS can help you take control and feel more secure in a time of uncertainty. In this episode, we chat with Corinne from our helpline...
MS awareness week special 27.04.2023 28:25
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this episode, we are doing an MS awareness week special. This year the campaign looked at how MS affects everybody differently and encouraged people to share their experiences using the hashtag #MSMakesMe. Helena and Erika, from our fundraising team, catch up on what has happened throughout th...
Worried you have Multiple Sclerosis? 05.04.2023 49:05
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 It’s estimated that 130,000 people in the UK have multiple sclerosis. Every week around 130 more people are diagnosed. Are you worried that your symptoms might be MS? Have you looked MS up on the internet and read about symptoms that sound like the ones you’re experiencing? Or perhaps someone in...
We answer your MS fatigue questions live 16.03.2023 49:25
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 How can I explain MS fatigue to my family? What treatments are available for MS fatigue? What can I do to help my fatigue? We answer these questions and many more submitted by you in a special MS fatigue livestream with Claire from our information team. Listen now to our sister podcast: 'Mu...
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