The FND Podcast

On this episode of the JJsegment we talk about a common factor that some of us in the fnd community may experience with FND : whether it be due to the medications or the inability to exercise due to fnd but the weight gain we experience with FND. So what Jess is aiming to do about it. Follow Jess @functionallyjess links to check out:   what people with chronic illness want you to know with weight...

A question posed if you had an ER what would you include for FND? That’s what we would like to know. Also in this episode we talk about Tattoos and FND with Chucky, his point of view with mindset and all things FND.  Follow Chucky @ friendsoffnd on Instagram link to his fnd merchandise in the information of this episode.    To listen to our song playlist  started by our lovely Maggie on Spotify cl...

This episode Jake let’s it rip as he talks about parenting and FND we talk about the strategies the struggles and findings of FND and Parenting. Join us on this conversation On Uniting FND  follow him on Instagram on @punkchef41 and his podcast  it’s me it’s me it’s fnd & Facebook page FND NEAD & US. click here for Apple podcast https://podcasts.apple.com/au/podcast/dont-let-fnd-steel-your-self-wo...

In this episode we talk about Caregiving in a sense of a caregivers perspective and what we need to do to be an advocate as a caregiver.  The Australian Practitioner Regulation Agency: How are complaints or concerns managed? https://www.ahpra.gov.au/Notifications/How-to-submit-a-concern.aspx Human Rights Commission : How to make a complaint https://humanrights.gov.au/complaints Commonwealth Ombuds...

In this episode with our lovely Maggie we are talking a range of things from picnics, knitting to Neurodiversity and being Neurodivergent. Follow Maggie on Instagram @Maggie. Chapman and her creatively on @maggiesa.creative To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below  https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrN...

On the Deb & Detty Episode Deb let’s her rip and really goes in deep into talking about FND in depth, gives hints and tips to Jess and Maggie from the Jjsegment and Maggies Corner. Our lovely Deb updates us and talks all things FND.  This episode has been recorded earlier in the month so some information of covid news will be outdated. What is Ehlers Danlos Syndrome or EDS? https://www.ehlers-danl...

We talk to it’s me it’s me it’s FND Jake ( hello how are you!) and talk all things FND this week we talk about Finances and what financial stress has the impacts it has on our lives, how it flows into our families, we talk about weddings, and life with FND in general and ideas that we’d like to bring in this segment. Join us on this episode of Uniting FND. follow him on Instagram on @punkchef41 an...

On this episode of the JJ segment Jess explores the talk that is going around media and the community about vaccines and the Pfizer. She also has some updates and news to present and exploring what you’re passionate about in life even with FND. LINKS AND INFORMATION TO CHECK OUT: Vaccines and FND? https://www.sciencealert.com/videos-of-severe-reactions-to-covid-19-vaccines-aren-t-what-they-seem-sc...

In this episode victoria just got out of lockdown 5 and Sydney is in lockdown. However as we uploading this episode victoria has entered lockdown 6. We talk about how we coped with lockdown previously and ways that we coped. Stay safe and kind to yourself and each other .  Follow Maggie on Instagram @Maggie. Chapman and her creatively on @maggiesa.creative To listen to our song playlist  started b...

On this episode our ever wonderful Deb is being her wonderful supportive self. she helps Detty with Centrelink talks about what’s going on especially with her Durcums Disease and the importance of having the supports in place and speaking up not only for yourself but for others and having an advocate for you.  ‘What is Dercums Disease? https://rarediseases.org/rare-diseases/dercums-disease/ How to...

We talk to it’s me it’s me it’s FND Jake ( hello how are you!) and talk all things FND from dissociative seizures family life with fnd and even tattoos.  It’s fnd United. follow him on Instagram on @punkchef41 and his podcast  it’s me it’s me it’s fnd click here for Apple podcast  https://podcasts.apple.com/au/podcast/toxic-people-can-make-your-fnd-so-much-worst-ep24/id1557148347?i=1000527867893 a...

On this episode Jess answers the questions that was given to her and a few more from a newly diagnosed FNDer. If you have any more questions please pass them on her way!   Follow Jess on Instagram  @functionallyjess for educational information / slides / posts about FND LINKS AND INFORMATION TO CHECK OUT: Chronic pain and Fnd https://www.neurosymptoms.org/en_US/symptoms/common-associated-symptoms/...

On this episode Maggie is back in Melbourne and out of quarantine. We talk about her travel experience coming back home  and all things fnd.  Follow Maggie on Instagram @Maggie. Chapman and her creatively on @maggiesa.creative To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below I have already added Get Happy by Ella Fitzgerald.   https://open.spotify.com...

In this episode Deb explains what happened in her last review with her service. What she raised was good points about why it’s important to have an advocate if you need it to support you through these meetings, that all the little details matter in your care and to speak up.  To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below https://open.spotify.com/pl...

We talk to it’s me it’s me it’s FND Jake ( hello how are you!) and talk all things FND about how he’s been invited to talk on a podcast in relation to the covid vaccine reaction and fnd , covid and fnd how it’s affected us in general, and fnd in life.  follow him on Instagram on @punkchef41 and his podcast  it’s me it’s me it’s fnd click here for Apple podcast  https://podcasts.apple.com/au/podcas...

Join us on this episode as we talk about experiences with the medical profession. That we have to be prepared for our doctors appointments have the support and make the most of them. Be an advocate for yourself and make the most of the time you’re there. We also touch base other subjects all fnd .  Follow Jess on Instagram  @functionallyjess for educational information / slides / posts about FND L...

Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. In this episode of My FND Reality we talk to J...

In this episode our lovely Maggie is still in Quarantine. Yet despite being in Quarantine and stuck in the situation she still shows up to talk about FND, answers some questions from you guys the listeners and amplifys others in the community. What an amazing lady! follow Maggie on Instagram @Maggie. Chapman Follow Maggie on Instagram @Maggie. Chapman and her creatively on @maggiesa.creative To li...

This episode we talk about self care, boundaries and of course FND. Join me and Deb as we don’t hold anything back.  To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd https://imprint...

In his episode we talk a bit about Advance care directives. It’s about talking to those we care for about keeping their independence and choices for if there comes a point where they cannot speak and their voices are heard.    Click on the link to read up on more information About advance care planning  https://www.advancecareplanning.org.au/ Caregiving during covid times https://www.redcross.org/...

Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. In this episode of My FND Reality we are amply...

In this episode of the JJsegment Jess reflects back to the last episode. Treating FND as A whole and the importance of finding out and researching what FND is. Also exploring the possibilities of work with FND and Disability. Follow Jess on Instagram  @functionallyjess for educational information / slides / posts about FND INFORMATION AND LINKS TO CHECK OUT Effective connectivity between emotional...

In this episode I have to apologise sound quality is not great: issues with reception and recording technical issues. Despite this Maggie talked about spoon theory, her experience in travelling with FND and tips and things to be aware of. Also we are Amplifying Sophie Butler. follow Maggie on Instagram @Maggie. Chapman Follow Maggie on Instagram @Maggie. Chapman and her creatively on @maggiesa.cre...

During this episode of the Deb & Detty episode Deb talks about how her health has been going, disassociation with fnd continues ,how she organised herself with fnd and more.     links and other information to look up: last episode Deb talks about her journey to the NDIS Appointment: https://thefndpodcast.simplecast.com/episodes/the-deb-detty-show-breathe-and-patience disassociation and fnd : disso...

On the JJsegment we talk about self care , covid times , we talk about my dilemma with my hubby recently but most importantly Jess’s revelation which has helped her on the path on her recovery with FND.    To Jump to Jess’s revelation scroll to the 17 minute mark on the podcast  HELPFUL RESOURCES : A website all things Functional neurological Disorder written by Professor Jon Stone who is the lead...