The FND Podcast

Today in the fnd podcast we talk about stress impacts of stress and fnd and mental health. How fnd is not the cause of fnd but we shouldn’t shy from addressing mental health in fnd as part of our treatment with fnd. It is certainly not all in our head it is not a mental disorder , it is neurological, however if we need to talk to someone why not. Follow Maggie on Instagram @ Maggie.chapman things...

On this Episode Deb talks about how she went on her NDIS planning. What’s most interesting is also her journey to the appointment and how her revelations with FND and how counselling and cat therapy has helped her deal with the events that has stressed her and her fnd Spoon theory What’s Spoon Theory? “ The Spoon Theory ”, a personal story by Christine Miserandino, is popular among many people dea...

In this episode we talk about burn out with caregiving and ways to prevent it. Self care , accepting help and a lot more is discussed here on this episode of Caregiver Hangout with Rod. looking after yourself whilst caregiving  https://www.carergateway.gov.au/help-advice/looking-after-yourself young people caregiving network support: https://youngcarersnetwork.com.au/ To listen to Rods My FND Real...

Join us as we have an in depth conversation as to where Jess is in her journey and reflecting back since she got diagnosed in February. It’s a reality and a personal check.  walking sticks that are amazing ! Neo walk https://www.neo-walk.com/bubbles/   Selma Blair opens up about MS people living with disabilities are invisible: she is incredible follow her @selmablair https://www.bbc.com/news/ente...

Welcome to Maggies Corner. we celebrate and recognise Pride month (Happy Pride Month) . A seizure free day, talking about Nead, accessibility and ableism and more. Follow Maggie on Instagram @Maggie. Chapman and her creatively on @maggiesa.creative if you have any questions or queries about your medications you should always consult your GP or specialist. in saying that because we have talked abou...

On the Deb & Detty Show today Deb is going to let us know that you can have more than just FND. She reflects back on being told on being told she was a hypochondriac. She says you aren’t ,don’t be afraid to speak up for yourself. Ryan’s Rule in Queensland Ryan’s Rule assists you to get help when you are concerned about a patient in hospital who is getting worse or not improving. All CQ Health hosp...

In this episode join myself and Rod as we talk about keeping your loved one safe and helping them be safe at home. Especially trying to keep them as independent as possible To access more information on this episode please click on the link below. For  more information about making your home safe here is the link with Carer Gateway https://www.carergateway.gov.au/help-advice/home Even this is for...

Join me  and Chucky from @friendsoffnd as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. Today we speak...

Join us this episode as Jess takes us through an unpleasant experience that is FNDers may all experience one form or another on our own journey. Where we are faced to ultimately choose to advocate for ourselves, choose what’s right for us? Do we stay or do we find someone else to go with? follow Jess on Instagram @functionallyjess  I nformation to check out from this episode for giggles bluey http...

Welcome to one of our newest members MAGGIE! She is a young FNDer studying bachelor Music and Art and extended to Psychology. Wanting to focus on Balance and Mental Health and FND.  Her my FND reality is coming up on Sunday so get to know her and her story more better. Today she talks about music and how it  can help calm and help with mindfulness. Follow on Instagram @ Maggie. Chapman here’s a li...

In this episode of the Deb & Detty show we have Jess as our special guest as we talk about Deb and her Dating. When someone asks her out for dinner. What is acceptable what is not especially when it’s your first time in a while, setting boundaries and clearly being able to say no.  To listen to our song playlist on Spotify click on the link below https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42...

Welcome to the new segment where we are here to help support the caregivers who look after us FNDers. As much as it is difficult going through having this condition for most of us who have family and friends who become our permanent carers it is just as difficult if not heartbreaking to go through. With this in mind we hope this segment can help support provide resources and direct you to places o...

Join me as we talk to others with FND in the community as they share their time, their  experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to.   This is Part 2 of Fleur’s My FND reality and she...

Join me on this special The FND podcast as I am joined with the amazing Kerilyn Mckerney international song writer also leads in meditation and promotes self care, as we talk about fnd and self care and why it’s so important. For more details on her classes details on her episode her details will be on this episode to listen to Keris own My FND reality click here: https://thefndpodcast.simplecast....

On today’s segment on the JJ segment Jess talks about the importance of preparing ahead for upcoming events/ outings and spending your energy prioritising your time. A little bit of self care and advocating for yourself with FND. follow Jess on Instagram @functionallyjess for more FND information.    Follow Jess on Instagram @ functionallyjess.   Some Links to Check out FND and PACING https://www....

On this Episode deb let’s on that she’s listened to the JJ segment about Sex and FND and would like to talk about dating. Dating can be heart breaking it can leave scars. There is also insecurities when there is disabilities and FND.   Debs music! Carol King ; it’s too latef https://youtu.be/VkKxmnrRVHo Stevie Nicks https://youtu.be/0I024WAnzcU Creedance Peace https://youtu.be/05JgKtm9ZKU the laug...

Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to.   This is Part 1 of Fleur’s My FND reality and...

On this Episode Jess talks about Tremors different types what she experiences what her triggers are the causes and what effects her FNd. Amounts different things with FND including seizures,  Drop Attacks, being mindful to others when talking about life with FND and more. Follow Jess on Instagram @ functionallyjess.   Functional Tremors : https://www.neurosymptoms.org/functional-tremor/4594357998...

In this Episode we have an update on Debs first new doctors appointment, how it went. Also since Deb has been going to laughter group what is the benefits of Laughter group?  And what is the realisation about walkers that Deb has? And a story that Deb shares about why Advocating is so important even with an FND diagnosis.   the laughter group that Deb had mentioned that she will go to you can chec...

This episode does contain explicit and sensitive subjects only 18 years and older should listen to. Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and sho...

This episode contains sexual references trigger warning there are sexual issues here and should be listened to persons aged 18 and over. On this episode we talk about Sex and FND and the possibility of starting a family with FND.  We hold nothing back. Sexuality and sensuality is still a very big part of life and people with FND are still living it. So let’s open up that discussion  Follow Jess on...

Let’s enjoy some Jimmy Barnes music https://youtu.be/Rvk7KzvtAdI the laughter group that Deb had mentioned that she will go to you can check out where is the closest in your area. Please consult with your fnd team first to check if it is right for you. https://www.meetup.com/en-AU/topics/laughter-club/ Another view of using mobility aids : overcoming and changing perspectives of using the mobility...

To follow this Amazing creative FNDer here are her handles: instagram: @naught_3, @eliciatate tiktok: naught_3 HELPFUL RESOURCES : A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland. https://www.neurosymptoms.org/   FND ORGANISATIONS : https://www.fndaus.org.au/ FND AUSTRALIA SUPPO...

Thankyou so much Serena for allowing us to share your story, your post with Lisa.    HELPFUL RESOURCES : A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland. https://www.neurosymptoms.org/   FND ORGANISATIONS : https://www.fndaus.org.au/ FND AUSTRALIA SUPPORT  SERVICES INC: A wonder...

Be sure to follow Jess on Instagram @functionallyjess How do you  get you get up safely from a fall? YouTube video with two physiotherapists explaining how https://youtu.be/Purjjqxwrhg Lets talk about Dystonia: https://www.neurosymptoms.org/functional-dystonia/4594358007 FunctionalLenny has a great video on dystonia https://youtu.be/8lysE0IyMZw If you are experiencing feelings of depression hopele...