The FND Podcast

On this episode Jess talks  about Chronic pain. Chronic pain seems to be a prevalent factor in many chronic disorders diseases and illnesses. Chronic illness alone is common yet not spoken about much here Jess shares what she has learnt and we are grateful to have her share. Follow Jess on Instagram @functionallyjess Links and information to checkout: Here is some information to check out in regar...

Trigger warning: explicit language in this episode. In this episode of Maggies corner Maggie Faces another appointment that many of us FNDers unfortunately experience including stigma disappointment and just wanting treat and unable to get it. Amplifying lucy Dawson. Follow Maggie on Instagram @Maggie. Chapman and her creatively on @maggiesa.creative Amplifying Lucy Dawson who unfortunately became...

On this episode we get an update on our lovely Debrus and how she went on her surgery day. Also sending well wishes to Deb xo  If you need someone to advocate for you and you are disabled there is the disability advocacy finder: Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and...

This episode of My FND Reality is a bit different from other episodes of My FND Reality as it is a reality for one particular FNDer Vani, and it’s tragically unfolding as we speak. We are joined by Dr. Katherine Gill who is advocating for Kate and Vani. We hope that Vanis Reality she does get treatment, she has NDIS funding so she can have the supports in place, and the respect and dignity she des...

On this episode we follow Jess on her journey as we delve into her history. We talk about her ancestors and thank her as she shares her family her journey and her history. FND does take away so much from us. Finding out where you came from especially rediscovery can be surprising and getting back some of who you are.  Jess does talk about her ancestors including Uncle Jack Charles and aboriginal a...

Welcome to our 100th FND podcast episode with Detty!  A while back Ladyjane from Instagram posed a question to the FND podcast and opened a discussion on her Instagram about Nead and helmets. Curious to find out more I asked why ask the question and asked the team about their thoughts. Here are our responses and I wonder what you guys think.   Follow Ladyjane on instagram @hope4fnd Fnd action brac...

In this FND pregnancy series on the JJ segment we talked about the conversations had with a High risk obstetrician. Leading to the second episode in the series where we talked to An amazing mother Billie about her pregnancy and her birth and what it was like for her with FND. We now talk with Amy as she gives her experience with Pregnancy at the moment with FND and we than k her for sharing and wi...

Chucky continues to answer questions from people who has asked questions from Instagram. Today we get asked the question "Growth through the struggle to get back to work or studying or general life and general advice" . FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd Helpful information things to look up: Managing Chronic: We talked to Sara earlier on who d...

In this episode of uniting FND we talk about we talk about FND and boundaries: saying no and also how some one mentioned that FNd was a Cult! Also an invitation to join us on the conversation talking on fnd with me and Jake!  follow him on Instagram on @punkchef41 and his podcast  it’s me it’s me it’s fnd & Facebook page FND NEAD & US. click here for Apple podcast https://podcasts.apple.com/au/pod...

In this Episode of Maggies Corner we talk about our experiences  of being vaccinated. Follow Maggie on Instagram @Maggie. Chapman and her creatively on @maggiesa.creative Here is the information about the covid vaccine  https://www.coronavirus.vic.gov.au/about-covid-19-vaccines https://www.fndaction.org.uk/you-matter/ apps to checkout to help meditation : insight or headspace.  To listen to our so...

In this episode we talk about the preparation of surgery as Deb prepares to head into surgery. How they tackle it as it seems to be part of their life more often or not. Update: Deb is well and recovering as we speak. information or links to check out: legal matters for caregivers ie power of attorney etc from Carers gateway https://www.carergateway.gov.au/help-advice/legal-matters Preparing for s...

  Chucky continues to answer questions from people who has asked questions from Instagram. We get insight to what "fnd  should not hold you back" from Chucky. .  FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd https://imprintmerch.com.au/collections/lets-have-the-chat from masks to bags hoodies and tshirts check them out! HELPFUL RESOURCES : A website all t...

On this episode Jess talks about wanting to be healthy with fnd and addressing emotions with FND including anger And emotional issues. Follow Jess @functionallyjess links to check out The water Botell that helps you stay hydrated! https://www.botell.com/?gclid=Cj0KCQjwpreJBhDvARIsAF1_BU0yvr1UetMUMw5_wzsT1ayVuvGnBShPmnlOKkiz-oN300pTjijm4koaAmysEALw_wcB Maintaining a healthy lifestyle whilst disable...

  In this Episode of Maggies Corner it’s actually different from the usual episodes. Trigger warning it contains actual sound recordings of both Maggie and myself in our own FND Flares. We also discuss our experience during the recording aswell as our experience of how we handle our flares. Follow Maggie on Instagram @Maggie. Chapman and her creatively on @maggiesa.creative Part of looking after y...

On this episode of Chucky Chat we talk about the  questions from @_jessica_wiley_ in regards to vitamins and @hopeforfnd in regards to helmets.  Follow Chucky @ friendsoffnd on Instagram link to his fnd merchandise in the information of this episode.    links and info to check out: what is micronutrients? https://blog.nasm.org/micronutrients what on earth is lions mane? Check it out ; https://www....

Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. I want to say a huge Thankyou  to Andy for spe...

Following from talking to Jess about what was said from the OB-gyn it was such a good idea to then start putting up the long awaited interview that I had done months ago with this amazing mother Billie. She was willing to talk after she had just given birth to her 2nd baby and for that I, so grateful for. She talks openly about her pregnancy , gives advice to others who are thinking about starting...

On this episode with the JJ segment Jess shares the tragedy that many of us in pandemic times across the globe have faced and experienced. Also part of the JJsegment is the first part of the pregnancy series of the fnd podcast where I share what was said in regards to fnd & pregnancy with an amazing high risk ob gyn. Follow Jess @functionallyjess Links to check out: Grieving and loss in a time of...

On our very last Deb & Detty show for a while Maggie & Jess join us as we spend time with Deb and just talk and spend time together talking about FND and seeing Debrus.  We talk about Flare ups , sensory overload, emotional changes with FND honest conversations. Follow Maggie on Instagram on @Maggie. Chapman and Jess on  @functionallyjess.   Links to check out: What is stimming ? https://www.webmd...

On this episode we talk all things fnd with Jake including pacing, why the hesitancy of going to get treatment with fnd and why we need more awareness and education especially in the health profession. follow him on Instagram on @punkchef41 and his podcast  it’s me it’s me it’s fnd & Facebook page FND NEAD & US. click here for Apple podcast https://podcasts.apple.com/au/podcast/dont-let-fnd-steel-...

In this episode we explore what is often missed when we become caregivers for the first time. Join in as we talk about Caregiving on the caregivers hangout.    Webinar - this Friday 27th Aug at 1pm AEST Safe Manual Handling : caregivers  Book at E: kate@fndaus.org.au If you need someone to advocate for you and you are disabled there is the disability advocacy finder: Disability advocacy is acting,...

Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. I want to say Thankyou to Emma for talking to...

We often mention FND Australia Support Services and to check them out but really who are they and what do they do? What are they offering right at this moment? In this episode joined by Deb from the Deb & the Detty show we talk to Dr. Katherine Gill on the 80th episode of the FND podcast with detty. To find out more about webinars please contact fnd Australian support services To listen to previou...

Catching up with Deb on the Deb & Detty Show, update with her NDIS journey and we learn how her life will be effected with the ndis. Her positive experience with the anaesthetist and FND & more.  To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below  https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA FND Merchandise to suppo...

At some point FNDers all experience some sort of disappointment or trauma from health experts / health professionals. Maggie tells what happened to her recently on her corner. She rises above.  Follow Maggie on Instagram @Maggie. Chapman and her creatively on @maggiesa.creative To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below  https://open.spotify.com...