The FND Podcast

On this episode of the JJsegment we catch up with Jess and see where she is on her journey. She comes to a juncture where some or most come in their chronic illness journey where after learning about the symptoms, diagnosis and learning to managage their condition on their own terms life continues, responsibilities , and the question where does the focus lie? Where is the balance? Follow Jess on I...

On this episode we explore FND and memory and memory recall. It’s one of the common symptoms that we may all experience alongside tiredness/fatigue. FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd things to checkout : Memory symptoms and concentration : https://www.neurosymptoms.org/en_US/symptoms/fnd-symptoms/functional-cognitive-disorder-functional-memory...

Today on Conversations with Chrissie we catch up, it’s certainly been a while but with FND life, pacing and self care we have to take care of ourselves. For some of us Christmas can be traumatic for us so what we can do to help ourselves and also responses to Maggies podcast series on sensory processing. Follow Chrissie @chrissiejbutler. The FND Podcast with Detty acknowledges the traditional cust...

In this episode Rod explains that he’s now participating in Respite care as part of his services however it can be a good part in care for those caregiving. We also look into social life, support whilst caregiving as well as prevention of burn out.  things to think about: Respite: part of self care and looking after yourself as a caregiver may sometimes and can mean taking a break completely and m...

Trigger warning our lovely Deb is a survivor of Domestic abuse and has gone through traumatic events that are mentioned in this episode. Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am...

This episode we catch up with Steph. We talk about Andy’s rock to recovery walking scaffell pike which he did quite successfully, and also asking for support for rachs walk on crutches for fnd which she is continuing to do updates on episode notes also conversations on fnd. follow him on Instagram on @punkchef41 and his podcast it’s me it’s me it’s fnd & Facebook page FND NEAD & US. Follow Steph o...

Let’s talk Sensory Processing with FND What is your sensory sensitivities? Sensory sensitivities varies with FND and it’s different from person to person. So identfying what you’re sensitive to in relation to your 4 senses touch smell sight sound in relation to your central nervous system can help find out and identify what your triggers are and what doesn’t help with your flares! Follow Maggie on...

On this episode ofChucky Chat we’ve been actually holding this episode for a very long time. Simply because for a while in Australia since the pandemic we closed the borders interstate and internationally so no one could travel that is until recently. Since then though I’m happy to broadcast this beautiful episode where Chucky not only gives tips on how to travel with FND but also recounts and sha...

Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to.   Thank you Chrissie for joining and sharing y...

Earlier on this month we catch up with Jess. We find out what’s happened and also how she’s been going since then. We hope she continues to recover! Follow Jess on Instagram @functionallyjess Recommendation from Jess : Netflix: Blindspot Jane doe is found at Times Square covered in tattoos each one connected to a case a mystery that leads to another all connected.  https://www.imdb.com/title/tt447...

On this episode of Maggies Corner we start to talk about when Victoria completely opens up (which coincidentally is today in Victoria) we talk about disability in the arts and FND in general it is also nearing Maggies anniversary for FND. We hold space for you and give you love and support xo  Follow Maggie on Instagram @Maggie. Chapman and her creatively on @maggiesa.creative Freedom Day Victoria...

On this episode it’s recorded after the event that Facebook shutdown and connection issues made us realise that connections communications are important. We talk FND , communication from each other to health professionals to being socially responsible online and more. follow him on Instagram on @punkchef41 and his podcast it’s me it’s me it’s fnd & Facebook page FND NEAD & US. Follow Steph on Inst...

On this episode we talk about life in covid times October, FND and the challenges it brings and just life updates for Maggie and Detty. Follow Maggie on Instagram @Maggie. Chapman and her creatively on @maggiesa.creative Maggies Corner recommendations: Redecorating looking at your books and book lists  Cooking especially TikTok  The salmon sushi bowl check it out ! https://vm.tiktok.com/ZSeYt2k24/...

On this episode of Conversations with Chrissie we delve into Cannibis as there has been questions about whether it would be beneficial to have Cannibis with FND. What is it, how does it work, what’s the process it’s obtained and more. Follow Chrissie @chrissiejbutler. for information on accessing Cannibis click on the link below Cannabis for neurological disorders:   https://www.medlink.com/articl...

On this episode we welcome Deb back and catchup on what’s been happening since the last time that we talked from her surgery,her symptoms , pacing and more. Welcome back Deb!  The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, th...

On this episode we talk about National Carers week that has just passed, what it is like to be a caregiver and what uplifts Rod to help him throughout the day. Happy belated national Carers week.  Carers week happens annually every year as they have written "National Carers Week is an opportunity to recognise, celebrate, and raise awareness among all Australians about the diversity of Australia's...

Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have  talked to. Thankyou Jess for talking to me. I’m thankful...

On this episode of the fnd podcast with detty we talk about coffee catch ups and just the catch-ups that are run in the FND Australian Support Services. We talk again with David who is absolutely wonderful and who runs the coffee catch ups. Finding that support whether it be online or in person when you’re ready can help so much. Thankyou so much for speaking with us again David.  Also just lettin...

On this episode we talk about what is happening currently and how it is affecting us with FND. In regards with covid travelling exemptions. Fatigue limitations pacing and more with fnd. Follow Maggie on Instagram @Maggie. Chapman and her creatively on @maggiesa.creative Recommendations for this episode Free guy https://youtu.be/JORN2hkXLyM Tiny Desk concerts on YouTube https://youtu.be/vvgTV5NEpu4...

On this episode of Conversations with Chrissie she remembers what she wanted to say in the last episode. Also we talk about our experiences with FND fatigue and Pacing and tips and tricks how we have managed these. Follow Chrissie @chrissiejbutler FND and Chronic Fatigue come almost hand in hand and one of the most common symptoms most FNDers experience next to Chronic Pain. FND Action explains Pa...

This episode we talk about the valuable information that is available from FND Action.  https://www.fndaction.org.uk/fnd-toolkit/ this is where you can access all the information in regards to FND brochures bracelets lancets downloadable informationmotion to present to your go and more.  Also whilst we pause to listen to Steph live she also graces us with an appearance on the FND United Segment. T...

On this episode Rod talks about the impacts covid has made with the appointments with his mum and procedures. Also taking the steps to reach out and get the help that he needs as his role as a caregiver transitions.  The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The...

This episode we talk about accessibility and it’s an important issue not only in FND but in Disability in general. As a disabled led media ourselves we are amplifying Cripple Media. Follow Maggie on Instagram @Maggie. Chapman and her creatively on @maggiesa.creative links to check out  recommendations today The juice media  goverment advertisement that are false but it’s satire at its best and it’...

We welcome Chrissie to the FND Podcast team with her segment conversations with Chrissie as she starts to answer the questions that were asked via the Instagram community. Follow Chrissie @chrissiejbutler  welcome to the fndpodcast Chrissie!  info to check out; What is cavernous malformations ? To better understand click below : https://www.mayoclinic.org/diseases-conditions/cavernous-malformation...

On this episode of Uniting FND with Jake from it’s me it’s me it’s FND we talk about parenting with FND Christmas big events , we hear about helmets NEAD and FND from SAm hope4fnd aswell as other topics on fnd. It’s always great to talk to Jake! follow him on Instagram on @punkchef41 and his podcast  it’s me it’s me it’s fnd & Facebook page FND NEAD & US.follow him on Instagram on @punkchef41 and...