The Desperate for a Diagnosis Podcast with Laura Nozicka

Ever feel like your doctor isn’t really listening? You're not imagining it. Laura Nozicka was a guest on Menopause the pausitive Way talking about the real issues women face in medical settings. Women often walk out of appointments feeling blown off, with symptoms dismissed as psychological or simply "in your head." This isn't just frustration; it’s a serious issue with real heal...

In this heartfelt episode, Laura Nozicka sits down with Paul Kidwell, a veteran caregiver, author and advocate, to share his profound journey caring for his wife, AiBai, who battled Parkinson's disease for over 18 years. Their story highlights the emotional, physical, and societal challenges of caregiving, especially from a male perspective and explores innovative projects aimed at supporting care...

In this powerful episode of Desperate for a Diagnosis , Laura sits down with Falguni Desai , a scleroderma warrior, advocate, and survivor who nearly lost her life after a rapid progression of this rare autoimmune disease. Falguni shares her path from early misdiagnosis to a life-threatening renal crisis, the reality of living with a complex chronic condition, and how she rebuilt her life, voice,...

Recorded live at the Illinois Society for Healthcare Marketing and Public Relations (ISHMPR) annual conference on September 18, 2025, this presentation by Laura Nozicka , founder of Big Idea Tango and host of Desperate for a Diagnosis , takes a bold look at one of healthcare’s most unspoken challenges...what happens when patients feel dismissed, disbelieved, or left without a diagnosis. With over...

In this episode of the Desperate for a Diagnosis podcast, host Laura Nozicka welcomes Nika Beamon, an accomplished writer and producer in New York City. Nika shares her inspirational story of navigating nearly three decades of misdiagnosed symptoms and her relentless pursuit of a diagnosis. From experiencing spontaneous fevers and joint pain in her college years to being diagnosed with a rare auto...

In this episode, I interview Ambreen Maan, a dedicated cancer advocate and licensed social worker. Ambreen shares her harrowing yet inspiring journey from being a young cancer patient, initially misdiagnosed with potential malaria, to becoming a champion for the adolescent and young adult (AYA) cancer community. She discusses the uniquechallenges faced by AYA cancer patients, the importance of sel...

Join host Laura Nozicka on the 'Desperate for a Diagnosis' podcast as she talks with Alina Gur, an experienced pelvic floor physical therapist, in honor of Pelvic Health Awareness Month. They discuss the importance of pelvic floor health and break down misconceptions about pelvic floor therapy. Medical gaslighting or feeling dismissed can also be a common experience for women with chronic...

In this powerful episode of Desperate for a Diagnosis , host Laura Nozicka is joined by Irene Woerner and Paul Evans for a deeply insightful conversation about one of the most overlooked threats to patient care: fragmented, incomplete, and inaccessible medical data. What happens when your doctor doesn’t have the full picture? The consequences can be devastating—misdiagnoses, adverse drug interacti...

In this compelling episode of The Desperate for a Diagnosis Podcast , host Laura Nozicka welcomes attorney Scott Hammer, a legal expert who has represented mental health professionals for over 40 years. Known for his sharp insight and extensive experience, having handled more than 2,000 cases, Scott shares an unfiltered look into the legal challenges that psychiatrists, psychologists, social worke...

In this thought-provoking episode of Desperate for a Diagnosis , host Laura Nozicka welcomes back Pam Cusick , a seasoned research professional and Senior Vice President of Rare Patient Voice . As one of Laura’s first-ever podcast guests, Pam returns to reflect on the evolution of patient-centered research and the growing importance of real human connection in a world increasingly shaped by AI and...

In this episode of the Desperate for a Diagnosis Podcast , host Laura Nozicka welcomes Matthew Zachary , a 28-year brain cancer survivor, trailblazing patient advocate, and founder of Stupid Cancer . Dubbed “The People’s Voice in Healthcare” by People Magazine , Matthew shares his powerful journey from a misdiagnosed young adult to a leading force in patient advocacy. During their conversation, Ma...

In this episode of the Desperate for a Diagnosis Podcast, guest Joan DelFattore, Professor Emerita at the University of Delaware and a noted author on healthcare equity for single patients discusses the challenges faced by single individuals in the healthcare system, including biases from medicalprofessionals that can lead to different treatment options based on maritalstatus. Professor DelFattore...

Laura Nozicka welcomes Jared Gleaton, a school psychologist, author, and food critic. Just three days before Thanksgiving, Jared shares his inspiring story of losing 176 pounds without trendy diets or drugs, highlighting the psychological and emotional facets of eating. The episode delves into Jared's unique expertise in food psychology, the mental well-being tied to food choices, and how he used...

In this episode of the Desperate for a Diagnosis podcast, host Laura Nozicka interviews Laura Badmaev, a dedicated mother and advocate for children with ultra-rare genetic disorders. Laura Badmaev, founder and chair of the ASXL Rare Research Endowment Foundation, shares her journey and experiences with her son, Alex, who has Bohring-Opitz Syndrome, a rare genetic mutation. They discuss thecomplexi...

Dr. Randy Cybulski, sports chiropractor and longtime physician to athletes of all ages, discusses hisunique approach to chiropractic care, and overcoming chronic pain, and pain due to injury. He also provides insight into treating conditions, the importance of questioning medical authority, and the role ofPRP and stem cell therapy in healing. Dr. Randy also discusses the often-overlooked aspects o...

In this episode of Desperate for a Diagnosis, Dr. Alan Rapoport returns to delve into the concept of medical gaslighting, where patients feel dismissed or misunderstood by healthcare providers. The discussion addresses the evolving complexities of modern medical practice, highlighting constraints faced by doctors, and the importance of patient history for diagnostic accuracy. The episode explores...

In this compelling episode of the Desperate for a Diagnosis podcast, host Laura Nozicka welcomes Dr. Lauren Strauss, a renowned pediatric and adult headache neurologist, to explore the complexities and advancements in pediatric neurology. The conversation dives deep into diagnosing rare neurological conditions in children, including Spinal Muscular Atrophy (SMA) and Alice in Wonderland Syndrome. D...

In this episode of the Desperate for a Diagnosis podcast, I have a heart-to-heart discussion with Dr. Joan Naidorf, an emergency physician, author, and speaker based in Alexandria, Virginia. We delve into the complex and oftenmisunderstood dynamics between patients and physicians, especially when it comes to diagnosing difficult cases. Dr. Naidorf shares her extensiveexperience, offering a unique...

In this episode, join me for an extremely educational conversation with renowned neurologist and headache specialist, Dr. Alan Rapoport, a clinical professor of neurology at UCLA. Dr. Rapoport educates listeners about various headache disorders, including migraines, tension-type headaches, and cluster headaches. Dr. Rapoport discusses the complexities, symptoms, diagnosis, and treatment options fo...

In this episode of the Desperate for a Diagnosis podcast, host Laura Nozicka welcomes communications professional Judy, who shares her harrowing journey through misdiagnosis. Judy recounts her development of shingles, initially mistaken for cluster headaches, which eventually led to a painful condition known as postherpetic neuralgia. The discussion covers her myriad symptoms, including blisters,...

In this episode of the Desperate for a Diagnosis podcast, host Laura Nozicka engages in a comprehensive discussion with Dr. Lee Peterlin, a distinguished clinical neuroscientist and headache specialist. Dr. Peterlin delves deep into the complexities of migraines, addressing common questions about their causes, symptoms, and distinctions from other types of headaches. Dr. Peterlin explains the impo...

In this episode of Desperate for a DiagnosisPodcast, Kelly Leonard, Vice President of Creative Strategy at Second City and I discuss the exciting intersection of improvisation and healthcare. Who knew? We know there's very little funny about healthcare...well, that all depends how you look at it. But improvisational techniques and methodologies are surprisingly applicable to healthcare communicati...

In this compelling episode of the Desperate for a Diagnosis Podcast, host Laura Nozicka warmly welcomes back Dr. Z. Collette Edwards. Dr. Edwards, a renowned board-certified physician with extensive training in health and wellness coaching, health equity, and integrative health, shares her profound insights into the multifaceted menopause journey. The conversation navigates through Dr. Edwards’ im...

In this special episode of thThe Desperate for a Diagnosis Podcast, host Laura Nozicka welcomes back Emma Smith and Olivia Goodreau. These inspiring GenZ young women share their ongoing journeys with long COVID and Lyme disease, discussing the healthcare challenges they have faced and the resilience they’ve shown. They highlight the importance of empathy, consistent care, and self-advocacy in the...

In this episode of The Desperate for a Diagnosis Podcast, host Laura Nozicka sits down with Gen Z, Emma Smith, a 25-year-old freelance journalist, to discuss her ongoing journey with long COVID. Emma shares her experiences battling chronic fatigue, muscle weakness, and various other symptoms, and navigating through the healthcare system, encountering numerous doctors, and facing significant person...