The Desperate for a Diagnosis Podcast with Laura Nozicka

In this episode, host Laura Nozicka welcomes back Matt Ciciretti, Mark's SuperDad, for a compelling update on Mark's health journey following an idiopathic bone marrow failure diagnosis. In previous episodes, Matt discussed Mark's diagnosis and subsequent discovery that a bone marrow transplant was the only solution. This episode covers a successful match with a donor, the process of the bone marr...

Guest, Severine Tarayre recounts her courageous battle against triple-negative breast cancer, a very aggressive cancer type. The episode explores her challenging quest for an accurate diagnosis and the intense emotional struggles she endured. Listeners witness the profound impact of the illness on Severine's personal and professional life, highlighting the unwavering support she received from love...

Dr. Gary Simonds, retired neurosurgeon turned professor at Virginia Tech Carilion School of Medicine and the Virginia Tech School of Neuroscience as well as author of "Death's Pale Flag," a suspense medical thriller, graciously returns to share his wisdom and experiences, adding a personal touch to this "get real" episode. Host Laura Nozicka and Gary explore the vulnerabilities and humanity of doc...

Join host Laura Nozicka for a "lady boss" conversation with the two passionate and compassionate authors of "Navigating Your Healthcare Journey: Lessons Learned to Get the Care You Need and Deserve." Charlene Rothkopf, MA and Z. Colette Edwards, MD MBA offer unique perspectives on the healthcare system from both sides of the bedside. Drawing upon their personal experiences and expertise, Charlene...

Michael Carlon my friend and host of the Uncorking a Story Podcast interviewed me to learn more about the "why?" behind becoming a podcaster. Learn more about what inspired me to start my podcast during this spirited conversation between me and Mike. You can listen to Mike's podcast wherever you get your podcasts or on YouTube . https://www.youtube.com/@Uncorkingastory Connect with Laura Email: la...

In this insightful episode, host Laura Nozicka talks with author Amanda Chay for a deep dive into her personal experiences and challenges with chronic illness, particularly lupus. Get a comprehensive look at Amanda's journey, from the support systems she cherishes to the professional medical relationships she deems crucial for managing her condition. The conversation also explores the hurdles she...

In the latest episode of the podcast, your host, Laura Nozicka delves into an intimate and touching narrative centered on author Audrey Gale's father's struggle with leukemia and his decision to take control of his medical treatment. Audrey long dreamed of being a writer and after 20 plus years in the banking industry, she grew tired of the corporate gamesmanship and pursued a master's in fiction...

In this heartfelt episode of "An Urgent Plea!: 10-year-old Mark's Dire Search for a Bone Marrow Donor," Laura Nozicka is joined by Matt Ciciretti, Mark's SuperDad and Ryan Peña, National Marketing Manager with NMDP/Be The Match. This is the Part 2 Episode and update to Episode 1 discussing Matt’s son’s undiagnosed bone marrow disorder. Matt shares his personal experiences and moments of gratitude...

In this episode of "Unlocking Wellness: Empowering Women in Midlife and Overcoming Autoimmune Challenges," host Laura Nozicka welcomes special guest Susie Day. Susie shares her personal journey with rheumatoid arthritis and her experience navigating the diagnostic process. She emphasizes the importance of turning her mess into her message and how it has transformed her life. Susie has been on a se...

Meg needs your HELP! On this episode of The Desperate For a Diagnosis Podcast , my guest, Meg, expresses her frustration and a lack of acceptance regarding the current state of healthcare. She believes that it is unacceptable for people to be living with high levels of pain in today's society. Meg shares her personal experiences of feeling rushed and unable to fully explain her symptoms to a docto...

In this episode, I am joined by Dr. Gary Simonds a highly experienced neurosurgeon, and former head of an academic neurosurgery program at Virginia Tech/Carilion Clinic. He is a professor, and teaches regularly at, the Virginia Tech School of Neuroscience and the Virginia Tech Carilion School of Medicine. Gary has written and spoken widely on the subjects of neuroscience, medical school admissions...

Laura Roskelly is seeking medical treatment for an undiagnosed condition. Although she doesn't have a treatment plan yet, her condition is suspected to be Postural Orthostatic Tachycardia Syndrome (POTS). She discusses her frustrations with the medical system and the lack of understanding or support she has encountered. Laura describes experiencing symptoms such as fatigue, muscle aches, flu-like...

In this episode, host, Laura Nozicka interviews Olivia Goodreau, a remarkable young lady who shares her journey with Lyme disease and the impact it has had on her life. Olivia's struggle with Lyme disease began at the age of six when she started experiencing tremors and blackouts. After years of tests and illness, she was finally diagnosed with Lyme disease and five other tick-borne illnesses. Des...

In this episode, Pamela Wirth, a hockey mom and lifelong learner, shares her journey with her son's undiagnosed illness and how she trusted her intuition to seek alternative treatments. She eventually found a doctor who recommended plant-based supplements as an option, which the Pamela was willing to try due to her desperation for a solution. She emphasizes the importance of optimizing our bodies...

For a patient, coping and coming to terms with a chronic or terminal illness is beyond difficult or easy to accept. For a spouse caregiver, it can be a labor of love yet daunting, frustrating, scary and filled with sorrow and sometimes denial. Author, Suzanne Marriott shares her journey caring for husband, Michael for ten years after being diagnosed with Multiple Sclerosis. Suzanne lovingly discus...

In thisconversation, Pam Cusick of Rare Patient Voice discusses the importance ofpatients participating in market research and clinical trials. With over 1400conditions currently represented, Rare Patient Voice welcomes everyone who iswilling to participate. The conversation also touches on the challengespatients face when seeking medical attention and how Rare Patient Voiceempowers patients by co...

The Desperate For a Diagnosis Podcast features Melissa Schroeder discussing her journey with Ehlers Danlos (EDS) and POTS (Postural Orthostatic Tachycardia Syndrome). She talks about her struggles with joint dislocations and the difficulty of getting a diagnosis due to the high cost of genetic testing. Melissa shares her personal experience of struggling to find a diagnosis for their medical condi...

Title: A "Special Boy's" Mystery Genetic Disorder: One Dad's Crusade To Find Answers, An Interview With Matthew Ciciretti In this heartfelt episode, Laura interviews Matt Ciciretti, a super dad of five kids, two dogs, three cats, and a goldfish. He shares his journey with his 10-year-old son Mark, his "special boy," who was born with a cleft lip and palate, and developmental delays. Doctors also r...

This is a podcast featuring inspirational patient stories of perseverance to find the answers!  Welcome to The Desperate for a Diagnosis Podcast with Laura Nozicka. I am so thrilled to be launching this podcast. I had intended to launch back in February of this year, 2023, but God had another plan. My dad passed away on January 29, 2023. He had been diagnosed with congestive heart failure and type...

EPISODES COMING SOON! This is a podcast featuring inspirational patient stories of perseverance to find the answers! Are you tired of the healthcare revolving door? Have you seen doctor after doctor begging to put a name to your symptoms? How long have you been seeking answers? Months? Years? If this describes your experience, the "Desperate For a Diagnosis" podcast wants to tell your st...