Lupus Foundation of America Greater Ohio Chapter

My Lupus Living Room

Health EN ↓ 56 episodes

The Lupus Foundation of America, Greater Ohio Chapter welcomes you to My Lupus Living Room, a space where we get real about what it’s like to live with lupus. Join our host, chapter President and CEO, Suzanne Tierney, for candid conversations about topics that so often get overlooked. You’ll hear from our Ohio lupus community— including patients, caregivers, and medical experts— about the highs, lows, insights, and advice. Thanks for stopping by My Lupus Living Room. We hope you stay for a while.

Author

Lupus Foundation of America Greater Ohio Chapter

Episodes

Episode 6- ExactCare Pharmaceuticals 27.05.2021 34:16

This week, Suzanne talks to Margaret Lizotte, Vice President of Clinical Development at ExactCare.  We have some exciting news to share with you regarding Hydroxychloroquine.  Listen to the episode to find out more! * The Lupus Foundation of America, Greater Ohio Chapter does not give medical advice to patients regarding their lupus treatment. Your physician is the best source of informa...

Episode 5- The COVID-19 Vaccine from Patients' Perspective 09.04.2021 32:37

The Covid-19 Vaccine is here, and we're all eager to ensure our safety. But as a lupus patient, you might have more questions. Should you get it? Is it safe? Will it cause a flare? What are the side effects? What is the process? We hear you, and we want to answer your questions. On this episode of My Lupus Living Room, Suzanne sits down with lupus patients, Adrienne Fernandez and Kathy Holmes to t...

Episode 4- All About Hair! 03.03.2021 33:10

For many lupus patients, hair loss is a real issue. How can we prevent hair loss and hair damage? What products should we use to protect our hair? What kinds of wigs are worth looking into? In this episode, Suzanne talks with stylist and Salon owner Rachelle Yarnell about all things hair! Rachelle has been working with hair for years, and she is the owner of The Studio Hair salon, Studio3 Hair Sal...

Episode 3- Preparing for the Unknown 10.02.2021 43:54

The future is so unknown, especially in today's world. How can we prepare for the future when we have no idea what could happen? What if something does happen? In this episode, our host Suzanne talks to attorney David Santoli about those what if's. Suzanne and David tell us what we can do to make sure that our friends and family are taken care of if something goes wrong. This is such an important...

Episode 2 - Don't Be Blue, Talk it Through! 23.12.2020 32:26

Mental health is so often overlooked in the treatment plan for chronic illnesses, yet it is so crucial to overall wellness. Our host, Suzanne, gets real about mental health while living with lupus. She is joined by Cari Kepic, a lupus and mental health advocate who is supporting her daughter through her lupus journey. The LFA, GOC is here to listen if you need someone to talk to. For more informat...

Episode 1 - Ghosting the Support Group 11.11.2020 30:11

So, you've finally reached a good place in your lupus journey. But where do you go from there? Suzanne chats with Aletha Acree about her path from newly diagnosed patient in a support group to LFA, GOC Community Outreach Coordinator. Years ago, when Aletha had finally gotten her lupus under control, she decided she didn’t need her support group anymore. She shares what brought her back to the chap...