My Lupus Living Room

Courtney joins the podcast to talk about her journey with lupus and share the details of an upcoming Motorcycle Ride she is helping to organize to raise money and awareness. She is joined by Michael from Punishers LEMC which is the club hosting the event! Michael shares a little bit of the history of Punishers LEMC as well as why its important to give back to the community.

Dr Vicki Nahra from University Hospitals in Cleveland joins Suzanne to discuss biologic therapies available for lupus patients! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.org ⁠ Upcoming Events: https://linktr.ee/lupusgreateroh 🎗️ Lupus Foundation of America, Greater Ohio Chapter (LFA-GOC)We’re a 501(c)(3) nonprofit organiz...

Rachelle Roy shares her journey overcoming discoid lupus, taking pride in her work and serving her community. She is well traveled, hopelessly optimistic, and a beacon of light in the community she serves! 🎗️ Lupus Foundation of America, Greater Ohio Chapter (LFA-GOC)We’re a 501(c)(3) nonprofit organization improving the lives of those affected by lupus through research, education, support, and ad...

Latasha has been living with lupus for the last 25 years. As a Chef by trade often working 10-12 hours per day, she has her good days and bad. Latasha shares how her unbreakable spirit and can do mindset has allowed her weather every storm and persevere! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.org

Jen Oster started getting a strange rash on her legs while recovering from COVID. After multiple doctors appointments, prescribed rounds of medication and testing she was diagnosed with lupus. Jen sits down with Suzanne to share what she went through along the way and ultimately how it changed her life forever. Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your ap...

Valerie is a newly diagnosed lupus patient just beginning her journey. She shares her struggle to accept and understand her diagnosis while also in recovery from alcohol. Her story is a testament to strength, resilience, and perseverance. Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.org

Melissa shares her incredible journey with lupus and how she, and her family, have managed to find strength together to overcome many hurdles along the way! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.org

Brittney embodies the definition of a lupus warrior. 556 Days. 6 different hospitals. Countless surgeries. A lot of people may have given up. She was determined to come home. Listen to her incredible story! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.org

The Greater Ohio Chapter held the "I Got It Right" Minority Retreat Saturday April 12. Patients and caregivers from across the region celebrated Minority Health Month by learning about Reiki, Meditation, Hair Care, Yoga, and Much More! After the program concluded Sarah, Laura, and Larissa sat down with Alex to share their thoughts on the program, their journey with lupus and the communit...

Kim opens up to Suzanne about her journey with lupus including finding purpose, and how she uses beauty pageants as a platform for change! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.org

Michelle Lamb joins Suzanne to talk about how she educates her community about various health related topics while behind the chair! As the owner of Hairport Beauty & Barber Studio in Cincinnati, Michelle saw a need for more informal education and awareness. During the height of the pandemic she saw an opportunity and seized it! Want to share your lupus story? Email our shows producer, Alex Ac...

Suzanne sits down with Rick Delarosa, CTSP to discuss how lifestyle changes can aid lupus patients in their journey. Rick discusses healthy sleep habits, exercise, and the pillars of a healthy diet. Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.org About Rick Delarosa, CTSPblamelessbodyfitness.comWith over fifteen years as an...

Suzanne & Alex sit down to layout what the chapter has planned in the coming year! The Cleveland & Columbus walk dates, our next educational program, support groups, our minority retreat and so much more!

Join us for this winter break edition of My Lupus Living Room as we get to know Chris, the newest member of the LFA,GOC Team! Chris is our events assistant and moved from Long Island, New York to help us with educational programs, our walks and everything in between! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.org

Roberta and Jessie sat down with Suzanne just after the Cleveland Walk To End Lupus Now. This Mother/Daughter duo have an amazing story that we thought was fitting to share during the holiday season. Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Alex@lupusgreaterohio.org

Suzanne is joined by Becky Hayward, The Outreach & Education Supervisor, from the Ohio Senior Health Insurance Information Program (OSHIIP). Becky discusses important changes coming to Medicare for 2025 that patients will want to consider during this open enrollment season!

On this episode Suzanne is joined by Chad Limones from Aurinia Pharmaceuticals to discuss lupus nephritis. The two have a broad conversation about what exactly lupus nephritis is, the warning signs, and what resources are available for patients that have been diagnosed or suspect they have lupus nephritis. The information discussed is not meant to treat, diagnose, or otherwise recommend specific t...

Suzanne sits down with Dr. William Fikter, a Psychiatrist, with Signature Health. They discuss the challenges that lupus patients may face with mental health and the ways that Signature Health and the LFA,GOC can help! If you would like to share your story, or have a topic you think would benefit lupus patients, contact our shows producer:Alex AcevedoAlex@lupusgreaterohio.org440-717-0183

Suzanne sits down with Steve Perhach to talk about his experience with being married to someone with lupus.  Steve’s wife, Kelly, is a brave lupus warrior who has had her share of ups and downs throughout her journey.  They are both heavily involved in their community and spend time volunteering at various organizations If you would like to share your story, or have a topic you think would benefit...

Suzanne joined by Hannah Powell, a relatively newly diagnosed patient who has already had her fair share of trials and tribulations. Hannah talks candidly about her diagnosis, the challenges she's faced and what finding the Walk To End Lupus Now has meant to her. If you would like to share your story, or have a topic you think would benefit lupus patients, contact our shows producer Alex by em...

Suzanne sits down with Steve Morris of Intervention Point to discuss the benefit of setting up a trust and what it could mean for your family. Not only can they provide security, and peace of mind, but also keep the courts and government from complicating things when that time comes. To learn more about setting up a trust email lupuslegacy@interventionpoint.com

Kelly Perhach stopped by the office to provide a recap of her recent Links Fore Lupus golf outing. Kelly holds many fun and unconventional fundraisers throughout the year to raise money for our chapter and we are beyond thankful for all of her efforts! If you would like to share your story with lupus and help inspire others please email Alex@lupusgreaterohio.org

For this month's episode we wanted to share Dr. Van Warren's presentation from our Passport to Better Health event in April. Dr. Warren provides a broad overview of lupus and answers patient questions.

On this episode Suzanne sits down with Ashley Houston. Ashley's sister, Dontasia Nevins, passed away in January of 2023 from complications of lupus. Ashley discusses her sisters battle with lupus, keeping her memory alive, and what she does to raise awareness for lupus warriors! Visit https://www.facebook.com/OhioSkateForLife to learn more about the incredible work they do. If you would like t...

Suzanne sits down with our newest Patient Navigator Samantha to discuss her lupus journey, role at the chapter, and so much more. If you would like to share your story, or have a topic you think would benefit lupus patients, contact our shows producer Alex. Alex@lupusgreaterohio.org