My Lupus Living Room

On this episode of My Lupus Living Room Suzanne connects with Dr. Hermine Brunner, Director of Rheumatology, at Cincinnati Children's Hospital. Dr. Brunner discuss pediatric lupus nephritis, and her exciting project known as the PLUMM Study!

Suzanne sits down with Patti Esparza to discuss Patti's remarkable journey with lupus nephritis. Patti opens up about the the challenges she faced including a having a kidney transplant as well as the importance of having a strong support system to lean on along the way. If you would like to empower fellow lupians by sharing your journey please email alex@lupusgreaterohio.org

Alex sits down with Lisa Brieding on this episode of the podcast. Lisa shares her story of getting diagnosed with lupus, becoming a facilitator & patient navigator with our chapter, and why she feels lucky when it comes to her journey!

With Suzanne on vacation, our Lead Project Coordinator, Adrienne Fernandez takes the helm for this episode of My Lupus Living Room. Adrienne sat down with Alex, our Digital Assets Manager, to learn a little more about him and what he does here at the LFA, GOC. They also give a sneak peak at what our constituents can expect from the chapter in the next year!

In this episode of My Lupus Living Room Adrienne shares her recent experience with Covid and the struggles she faced. Suzanne is also joined by our Lead Patient Navigator, Rita Piccin BS, ND, RN and the group discusses the uptick in cases, getting the new vaccine, and what patients should do to protect themselves.

On this episode of My Lupus Living Room Suzanne sits down with our new Development Manager, Brian Haynes. Brian shares a little bit of his background and provides updates on some of our fundraising events coming up.

On this episode of My Lupus Living Room our board chair, Maria Rey Woyma, sits down with Gabriela Sison, MSN, BSN, RN of GSK. Both women are fluent in spanish so we took this opportunity to record this podcast that caters to our spanish speaking audience.

In episode 24 Suzanne sits down with Bev & Virgil at the LFA, GOC office. This wonderful couple shares their amazing journey and the lessons they learned along the way. Their story is a lesson in strength, love, and perseverance!

On this episode of My Lupus Living Room, Adrienne fills in for Suzanne and sits down with Dr Emily Littlejohn, DO, MPH from the Cleveland Clinic. She may be our most accomplished guest yet, and while she did complete her Rheumatology Fellowship at that school up north, she's made up for it in spades by helping countless lupus patients across Ohio. We've put her resume below: Emily Littlejo...

In this edition of My Lupus Living Room, Suzanne sits down with Kelly Perhach.  Kelly shares all of the ups and downs of her lupus journey.

Today we have the pleasure of sitting down with Chef Chanel Nowel, AKA The Vegan Vixen!  She shares her lupus journey and how she uses a plant based diet to manage her lupus.  

While the holiday's are supposed to be an exciting time filled with family and love, they can be extremely tough for lupians.  We discuss tips and tricks to make sure your holiday season is joyous and filled with cheer, and provide an overview of the year ahead at LFA, GOC.  

As the embark on another holiday season, we are grateful for our brave lupus warriors, and supporters who fight with us everyday in the battle to End Lupus Now!

We are SO exited to bring you this new episode of My Lupus Living Room!  Suzanne talks to Rachelle Roy, who is a patient who is ON FIRE about spreading lupus awareness in Toledo. Rachelle has done so much for lupus, including gaining extensive media coverage on her events. You are going to see her at the Walk To End Lupus Now® on Saturday and you cant miss her! Her enthusiasm is contagious! &...

The Walk To End Lupus Now® will be on September 24th in Cleveland Ohio.  This walk is going to be hybrid, which means you can also join in online! The walk will be held at the Hofbräuhaus by Playhouse Square!  We will be walking through some pretty cool places, including Cleveland State university! We are so excited to be back in person and we hope to see you there! Click the link to reg...

On this Episode of My Lupus Living Room, Suzanne sits down with Mackenna Willis, another new addition to our LFA, GOC team!  Mackenna is our wonderful new Graphic Designer who has quite a story herself.  Mackenna tells us about her battle with Brain Cancer; the highs, the lows, and all of the things she has learned along the way.  We are happy to say that she has been in remission f...

On this episode of My Lupus Living Room, Suzanne Sits down With Amy Filbert, the newest member of the LFA, GOC team!  Amy is an intern here at the foundation, as well as a lupus warrior!  She talks about her diagnosis journey and all of the ups and downs of getting to where she is now.  We are so happy to have Amy in our office and we hope you enjoy this episode! 

On this episode of My Lupus Living Room, Suzanne talks to Hayley Shasteen. Hayley is a lupus warrior with a passion for understanding the disease. She recently received her Masters from Kent State University and is an incoming Ph. D. student at Pennsylvania State University. In this episode, Hayley talks about her diagnosis journey, her experience of going from a teen to an adult with lupus, and w...

In this episode of My Lupus Living Room, Suzanne talks to Cat Liptak.  Cat is a fellow lupian who has been with the foundation for years.  She has faced many many hardships due to lupus and has an incredible story to share.  Cat is also the leader of the prayer group, Lupians Leaning on the Lord.  We hope you enjoy this episode of My Lupus Living Room!  For more informatio...

Hello!  We have a great new episode of My Lupus Living Room!  On this episode, Suzanne talks to Allison Fedon. Allison is a patient navigator for the Cincinnati area. She talks about her journey with lupus, as well as her experience as a patient navigator at the LFA, GOC.  If you want to reach out to Allison, her email is allison@lupusgreaterohio.org.  We hope you enjoy this ep...

 In this episode of My Lupus Living Room, Suzanne Talks to Rita Piccin, a Patient Navigator and newest employee of the LFA, GOC.  Rita tells us all about the wonderful projects she has been working on and Suzanne talks about some exciting new programs coming in 2022!  This is a great episode to kick off the new year and we hope you enjoy listening to it!  *The Lupus Foundation...

In this episode of My Lupus Living Room, Suzanne talks with Michael Liner from Liner Legal. Michael founded Liner Legal in 2013 and is one of the top Disability Attorneys in the nation. Michael loves helping those in need,  and he has helped many (including people with lupus) obtain the funds they need in social security benefits. If you want to learn more about Liner Legal, you can go to lin...

On this episode of My Lupus Living Room, Suzanne talks to Katie Gugle! Katie is a long time constituent of the Lupus Foundation of America, Greater Ohio chapter, and a Support Group Facilitator for our Westerville Support Group!   In this episode, she talks about her story with lupus as well as multiple other autoimmune diseases and how she manages them.  We are so glad we were able...

On this episode of My Lupus Living Room, Suzanne talks with Shannon Cabot from Aurinia Pharmaceuticals Inc..  Shannon is in charge of Regional Professional Relations & Advocacy and she talks about ALL IN for Lupus Nephritis.  The ALL IN program and website is a source of information, resources, and support for those affected by lupus nephritis. To learn more about lupus nephritis, go...

Lupus comes in many forms, but lupus nephritis is probably one of the most serious. In this episode of My Lupus Living Room, Suzanne talks to Ryan Pike about his long and inspiring journey with lupus nephritis. Ryan is the Client Success Manager at Terraboost Media and has done work for the LFA, GOC in the past.  Ryan was diagnosed with lupus when he was a teenager and has been on quite a jou...