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MS-Perspektive - The Multiple Sclerosis Podcast
In the MS-Perspektive Podcast, I present my view of multiple sclerosis and show you how you can make the best of the diagnosis. Because a beautiful and fulfilling life is also possible with multiple sclerosis. Here you will find information and strategies on how you can actively influence your course. In addition, I publish solo articles with my experiences, interview experts and on various topics related to living with MS as well as other affected people. In addition, there are a few episodes that serve the relaxation, positive attitude and stimulation.
Where to listen?
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Episodes
#050: Future Treatment of MS. Interview with Prof. Tjalf Ziemssen 28.02.2024 1:06:48
Prof. Tjalf Ziemssen talks about the future treatment for MS-patients from precision medicine to neuroprotection and patient-centered care. You can read the full transcript of the interview on my blog: https://ms-perspektive.com/50-tjalf-ziemssen To mark the 50th episode of the international MS Perspective podcast, I have invited my neurologist Prof. Dr. Tjalf Ziemssen to talk to me about the futu...
#049: CogeX Study Insights for Progressive MS on Cognitive Rehabilitation with Prof. Dr. Anthony Feinstein 21.02.2024 38:04
The CogeX study investigated the effect of aerobic training and cognitive training on the processing speed of progressive MS patients. You can find the transcript of the full interview on my blog: https://ms-perspektive.com/049-cogex-anthony-feinstein Today, I'm talking to Prof. Dr. Anthony Feinstein about the results of the CogeX study, that focussed on improving cognitive function, especially pr...
#048: Living with progressive MS in Canada. Interview with patient advocate Ardra Shephard 14.02.2024 54:51
Ardra Shephard deals with the everyday struggles of progressive MS in Canada and talks about it on her blog and podcast and our interview. You can find the written questions and answer to on my blog: https://ms-perspektive.com/048-ardra-shephard Ardra Shephard has been writing about her life with multiple sclerosis on TrippingOnAir.com for many years, trying to break down the stigmas that people w...
#047: Spasticity in MS – far more than normal muscle cramps 07.02.2024 10:29
Spasticity caused by MS can lead to cramping, shortened, stiffened or even paralyzed muscles, but is well treatable. Learn more about it. You can find the written version of the episode on my blog: https://ms-perspektive.com/047-spasticity Episode 47 is about the symptom of spasticity. A good two thirds of all people with multiple sclerosis have to deal with spasticity over the years. Some only ex...
#046: MS and Adventure: 10 Essential Traveling Tips You Can't Miss 31.01.2024 18:17
Traveling with multiple sclerosis should be prepared well in order to enjoy the trip fully and come home with lots of great memories that stay with you forever. You can read to the complete blog article here: https://ms-perspektive.com/046-10-travel-tips Traveling with multiple sclerosis is not a problem as long as you pay attention to a few things and prepare well. Depending on the vacation desti...
#045: NoStressMS – Entertaining education about MS. Interview with Damian Washington 24.01.2024 1:22:46
Damian Washington is a patient advocate of the black community in the US and provides his content in a very entertaining and authentic way. You can read my questions and Damians answers on my blog: https://ms-perspektive.com/045-damian-washington Damian Washington is my interview guest today, and we talk about his important role as a black patient advocate, speaking up and bringing visibility to a...
#044: Shared Decision Making (SDM) for Treatment Success in MS. Interview with Prof. Christoph Heesen 17.01.2024 46:29
Prof. C. Heesen explains what it needs to have shared decision making in MS and where there are the pros and cons, options and limitations. You can find the transcript of the interview on my blog to read it: https://ms-perspektive.com/044-shared-decision-making Today's interview is about the topic of shared decision making in the treatment of MS. What requirements must be met to enable shared deci...
#043: Mind Matters. Navigating Neuropsychological Testing with MS 10.01.2024 18:07
Neuropsychological testing is very important in MS, as the disease can progress in secret and should be tackled at an early stage. You can read the full article at my blog: https://ms-perspektive.com/043-neuropsychological-testing Multiple sclerosis can affect walking ability and movement, but invisible symptoms such as cognition play at least as big a role and should be monitored through neuropsy...
#042: Movement restrictions in MS – how to maintain your strength, balance and mobility in the best possible way 03.01.2024 18:55
Movement restrictions in MS affect 90% of all patients. Find out how to maintain your strength, balance & mobility in the best possible way. You can find the full article to read on my blog: https://ms-perspektive.com/42-movement-restrictions Episode 42 is dedicated to movement restrictions caused by MS. Multiple sclerosis manifests itself in a wide variety of symptoms and can also affect your ove...
#041: Review of 2023 and outlook for 2024 26.12.2023 18:19
My review of 2023 is about the podcast and my personal goals. And I'll give you an outlook on what I have planned for 2024. You can read the full article on my blog: https://ms-perspektive.com/41-review-2023 Welcome to episode 41, the last of 2023, in which I look back and review the year with you. Then there's a look ahead to 2024, well aware that life always has its own ideas and that while plan...
#040: Autologous stem cell therapy (aHSCT) in MS. Facts and experiences with Dr. Roland Martin 20.12.2023 49:12
Dr. Roland Martin is one of the leading experts in autologous stem cell therapy (aHSCT) for MS. He shares facts and his experience. You can find the written version of the interview on my blog: https://ms-perspektive.com/40-ahsct-roland-martin This time I talk to Prof. Dr. Roland Martin about the findings to date on autologous stem cell therapy (aHSCT) in MS patients and his experiences. As former...
#039: Interview with Dr. Barry Singer on precision medicine for MS 13.12.2023 38:48
Dr. Barry Singer explains how to make the most of precision medicine for MS patients. He shares his Insights and perspectives. You can read the full transcript on my blog: https://ms-perspektive.com/39-barry-singer Dr. Barry Singer provides insights and perspectives into the precision medicine of today for people with multiple sclerosis. He also provides some outlook into future treatment options...
#038: Brain health. Time matters in multiple sclerosis – Summary of the report 06.12.2023 22:25
Facts in a nutshell! The MS Brain Health Organization's report on a healthy brain explains why time is important in multiple sclerosis. You can find the full text together with explaining graphics on my blog: https://ms-perspektive.com/38-time-matters-in-ms Today I am providing a summary of the Brain Health Report – Time matters in multiple sclerosis, which was last updated in 2018. Even though so...
#037: Unlocking the Nutritional Code for MS. Exploring the Nourand project with Dr. Mireia Sospedra 29.11.2023 36:41
Unlocking the Nutritional Code for MS. Exploring the Nourand project with Dr. Mireia Sospedra. How, what and when to eat with multiple sclerosis. You can find the written version of the interview on my blog: https://ms-perspektive.com/37-mireia-sospedra This time Mireia Sospedra is my interview guest and we are talking about Nourand, an information plattform for multiple sclerosis patients who are...
#036: Rehabilitation in MS (RIMS) - Interview with Dr. Lars Hvid about the scope and projects 22.11.2023 45:39
Dr. Lars Hvid explains the scope and projects of the Rehabilitation in MS (RIMS) network for best practice and research. You can find all questions and soon the transcript of the episode on the blog: https://ms-perspektive.com/36-lars-hvid Today I talk to Dr. Lars Hvid from Aarhus University in Denmark about his role as Communications Officer for RIMS – the Rehabilitation in Multiple Sclerosis Net...
#035: Empowering people with MS to live a fulfilling life. Interview with Psychotherapist and Coach Indu Khurana 15.11.2023 38:41
Indu Khurana uses her expertise as coach and psychotherapist to help people with multiple sclerosis facing their battles with the disease. You can find all questions and answers on my blog where is lots of other great content as well: https://ms-perspektive.com/35-indu-khurana Today I'm talking to Indu Khurana who received her MS diagnosis in 2017, approximately 25-years after her first symptoms....
#034: Inclusive Advocacy – Elevating Diverse Voices in Patient Engagement for MS Patients. Interview with Trishna Bharadia 08.11.2023 1:05:24
Patient Engagement Consultant Trishna Bharadia talks about how people with MS can adivcate for themselves or for a wider community. You can find an overview of the questions I asked Trishna on my blog: https://ms-perspektive.com/34-trishna-bharadia Today I am speaking with Trishna Bharadia, who is a very active patient engagement consultant and works with a variety of companies and patient organiz...
#033: Can neurodegeneration be treated in MS by modulating HERV-W? Interview with Prof. Dr. Patrick Küry 01.11.2023 39:17
Prof. Patrick Küry talks about treating neurodegeneration in Multiple Sclerosis by modulating HERV-W and binding to its envelope protein. You can read the questions and short answers on my blog: https://ms-perspektive.com/33-patrick_kuery This time I talk to Prof. Dr. Patrick Küry about whether we can treat neurodegeneration in multiple sclerosis by modulating HERV-W? Multiple sclerosis is driven...
#032: ECTRIMS 2023. Day 3. Paediatric MS. Female Health. Prodromic MS. HSCT in MS. 25.10.2023 31:06
Pediatric MS. Female Health. Prodromic MS - can the risk of conversion be reduced? HSCT in MS - new perspectives. You can find the full text to read on my blog: https://ms-perspektive.com/032-ectrims-2023-day-3 The third day at MS Milan 2023 offered again lots of interesting topics. This time I selected the following ones: Paediatric MS Female health Prodromic MS HSCT in MS Table of Contents Scien...
#031: ECTRIMS 2023. Day 2. Menopause. Treatment Efficacy. Immune Reconstitution Therapy. Healthy Lifestyle. 23.10.2023 28:17
Effect of menopause on MS progression? Efficacy of different treatment algorithms incl. immune reconstitution therapy. Healthy lifestyle. You can find the written version to read on my blog: https://ms-perspektive.com/031-ectrims-2023-day-2 The second day at MS Milan 2023 was again packed with lots of valuable information. And so many exciting presentations happened at the same time. I will focus...
#030: ECTRIMS 2023. 10 Hot Topics and my highlights of day 1 18.10.2023 20:56
Overview on the hot topics of ECTRIMS 2023 and detailed look into the vision of curing MS, MS and EBV and MS in the elderly. you can read the full text with some more details on the statistics of the trials on my blog: https://ms-perspektive.com/030-ectrims-2023-day-1 MS Milan 2023 was the 9th joint meeting of the European ECTRIMS and American ACTRIMS congress. Over 8,600 participants from 108 cou...
#029: Living a fulfilling life with MS in the USA. Interview with patient leader Cathy Chester 16.10.2023 1:05:28
Cathy Chester was diagnosed with MS in 1981, way before first medications were available and keeps advocating for the community ever since. You can read the interview with all questions and answers on my blog: https://ms-perspektive.com/029-cathy-chester Today I'm speaking with patient advocate Cathy Chester, whose blog, An Empowered Spirit , is an important resource for those affected by mul...
#028: Clearing the Fog – Understanding Vision Problems in Multiple Sclerosis 13.10.2023 9:28
Uncover the impact of Multiple Sclerosis on vision problems, their causes, and effective management strategies. You can read the full text on my blog: https://ms-perspektive.com/028-vision-problems In this episode, we continue with the symptoms of multiple sclerosis. This time, the focus is on vision problems. How is vision affected? What is important now? When do visual disturbances occur? And ho...
#027: Living with MS in Poland. Interview with Dominika Czarnota – Szałkowska 11.10.2023 36:32
Dominika works for the Polish Multiple Sclerosis Society and provides tips how to get the available support when living with MS in Poland. You can find all questions on my blog: https://ms-perspektive.com/027-ms-in-poland This time I'm talking to Dominika Czarnota – Szałkowska about how people with multiple sclerosis can get the best support who live in Poland. Dominika has been working as Secret...
#026: Cognitive disorders in MS – when the mind goes on strike 09.10.2023 14:51
Cognitive disorders belong to the invisible symptoms and can complicate everyday life a lot. However, there are many treatment approaches. You can read the full article on my blog: https://ms-perspektive.com/026-cognitive-disorders This time it's about an invisible MS symptom, cognitive impairment. At least 40 percent of people with MS suffer from it, but the number could be significantly higher,...
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