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MS-Perspektive - The Multiple Sclerosis Podcast
In the MS-Perspektive Podcast, I present my view of multiple sclerosis and show you how you can make the best of the diagnosis. Because a beautiful and fulfilling life is also possible with multiple sclerosis. Here you will find information and strategies on how you can actively influence your course. In addition, I publish solo articles with my experiences, interview experts and on various topics related to living with MS as well as other affected people. In addition, there are a few episodes that serve the relaxation, positive attitude and stimulation.
Where to listen?
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Episodes
#025: Living with progressive MS. Interview with disability advocate Mark Webb from UK 06.10.2023 44:24
Mark Webb lives with progressive MS and shouts out loud for integrating all people with disabilities into society on all levels. You can read the complete transcript of the interview on my blog: https://ms-perspektive.com/025-mark-webb Hello, and welcome to episode number 25, Living with Progressive MS. An interview with disability advocate, Mark Webb, who is known for his loud voice when it comes...
#024: Research on myelin repair – interview with Dr. Markley Silva Oliveira Junior on the effect of corticosteroid medrysone 04.10.2023 1:07:08
Dr. Markley Silva Oliveira Jr. has done research on astrocytes and how they can contribute to better myelin repair for PwMS using Medrysone. You can find the full transcript to read on the corresponding blog article: https://ms-perspektive.com/024-research-on-myelin-repair Episode 23 is about an exciting research work on myelin repair in the progressive course of MS with the help of astrocyte cell...
#023: Interview with Tamara Fumagalli from Italy about her life, writing and travelling with MS 02.10.2023 56:37
Tamara lives with progressive MS in Italy. Thanks to her impressive resilience she keeps on travelling, writing books and teaching kids. You can read her short answers to all questions in the blog article: https://ms-perspektive.com/023-tamara-fumagalli My interview guest today is Tamara Fumagalli from Lombardy in Italy, who enjoys life and loves to travel despite her progressive MS. Tamara was di...
#022: Exploring exercise's immune benefits and MS symptom relief: Prof. Ulrik Dalgas shares insights 29.09.2023 1:07:58
Prof. Ulrik Dalgas explains the various proven benefits of exercise and on the immune system and dedicated MS symptoms for patients. You can read the complete transcript on the blog article: https://ms-perspektive.com/022-ulrik-dalgas Today I talk with Prof. Dr. Ulrik Dalgas from the Aarhus University in Denmark about various evidence proven effects of exercise on the immune system and existing...
#021: Living with MS in Ireland. Interview with patient advocate Ciara O'Meara 27.09.2023 41:28
Ciara gives inside views into her life with MS, the health care system in Ireland, what PwMS can expect and available private initiatives. Here is the link to the blog article, where you find all questions and short answers: https://ms-perspektive.com/021-ms-ireland Today I talk to Ciara O'Meara from Galway about what it's like to live with MS in Ireland. She herself was diagnosed with multiple sc...
#020: How to optimize employment and prevent job loss for people with MS. Interview with Dr. Blanca De Dios 26.09.2023 37:34
Dr. Blanca de Dios talks about how people with MS can keep their job and prevent loosing it, an the benefits of staying in working life. You can read the full interview with all questions and answers on my blog: https://ms-perspektive.com/020-optimize-employment In this article, we'll explore how people with MS can optimize employment and prevent job loss with Dr. Blanca De Dios who is working o...
#019: Sensory disturbances in MS – from waddling to electricity shocks 25.09.2023 12:14
Sensory disturbances in MS are among the common symptoms and range from absorbent cotton and numbness to stabbing pain. You can read the full article on my blog: https://ms-perspektive.com/019-sensory-disturbances Episode 19 is about the variety of sensitivity disorders that people with multiple sclerosis can get. Have you already experienced sensory disturbances? If so, no wonder. They are one of...
#018: Movement limitations in MS – how to best maintain strength, balance and mobility 22.09.2023 19:05
Movement limitations in MS affect 90% of all patients. Learn how to maintain your strength, balance and mobility. You can read the full article on my blog: https://ms-perspektive.com/018-movement-limitations This episode is dedicated to the movement limitations caused by MS. Multiple sclerosis manifests itself in a wide variety of symptoms and it can also affect your overall mobility. To be mobile...
#017: Living with MS in Italy. Interview with patient expert Paola Kruger 21.09.2023 17:26
Paola Kruger is a patient expert from Italy and gives an insight view into the health care system and support options for people with MS. You can read all questions and answers in my blog article: https://ms-perspektive.com/017-paola-kruger Today I'm talking to Paola Kruger, Patient Expert at EUPATI in Rome, Italy. Paola lives with the diagnosis of multiple sclerosis herself and helps to improve...
#016: What is fatigue and how do you deal with it best? 20.09.2023 10:12
Fatigue is one of the invisible symptoms of MS and very distressing. But what is chronic fatigue and how do you best manage it? Learn more. You can read the full article on my blog: https://ms-perspektive.com/016-fatigue Today we're talking about fatigue, an invisible MS symptom with a big impact on daily life. The article is part of the series about MS symptoms. What is chronic fatigue? What fa...
#015: Living with MS in Belgium. Interview with patient advocate Pieter van Galen 19.09.2023 45:11
Pieter van Galen is a patient advocate from Belgium who give insight into living with MS in his country and national health care offers. You can read all questions and answers on my blog: https://ms-perspektive.com/015-pieter-van-galen Today I welcome Pieter van Galen as my interview guest and we are talking about living with MS in Belgium. Pieter is a patient advocate at the European Multiple Scl...
#014: Smoking and MS. Why and how to quit? Interview with Dr. Claudia Marck 18.09.2023 32:15
Dr. Claudia Marck explains the benefits of smoking cessation for multiple sclerosis patients and presents strategies for successful quitting. You can read the full interview on my blog: https://ms-perspektive.com/014-smoking Today I talk with Dr. Claudia Marck about smoking and its impact on multiple sclerosis. Claudia gives tips on how to successfully become a non-smoker. She knows what she is...
#013: How to prevent falls caused by MS. Interview with Laurits Taul Madsen 15.09.2023 34:15
Falls happen often to people with MS and they can make a problematic situation more severe. But how can they be prevented. We talk about it. You can read the transcripted version of the interview on my blog: https://ms-perspektive.com/013-laurits-madsen Today I'm talking with Laurits Taul Madsen about how falls can be prevented for people living with MS. What reasons increase the risk of falls a...
#012: Overview about possible MS Symptoms 14.09.2023 7:24
Multiple sclerosis is called the disease of 1,000 faces because symptoms vary widely from patient to patient and over the course of MS. Here you can find the full article to read through again and lots of additional content: https://ms-perspektive.com/012-ms-symptoms This time it's all about MS symptoms and giving you an overview of what can be related to the disease. Because especially at the beg...
#011: Empowerment through adventure. Interview with Lori Schneider from the United States 13.09.2023 40:52
Lori Schneider was the first woman with MS to climb the seven summits including Mount Everest. Adventure was her way to fight for her health. You can read the full interview on my blog: https://ms-perspektive.com/011-lori-schneider Lori Schneider decided after her MS diagnosis to focus fully on adventure, climbing the highest peak on each of the seven continents. To do so, she trained hard, quit h...
#010: The disease-modifying therapy (DMT) to prevent MS progression 12.09.2023 15:57
The evaluation of many studies worldwide has shown that the disease-modifying therapy (DMT) is the best tool against the progression of MS. You can read through the whole article on my blog: https://ms-perspektive.com/010-dmt This time we are talking about the disease-modifying therapy (DMT), which according to most experts is one of the most important pillars in the treatment of people with multi...
#009: Motoric Cognitive Risk (MCR) Syndrome in MS. Interview with Dr. Alon Kalron 11.09.2023 36:24
The Motoric Cognitive Risk (MCR) Syndrome combines cognitive and physical symptoms that increase the fear and actual risk of falling. You can read the transcripted interview here in full length: https://ms-perspektive.com/009-alon-kalron Today I'm talking with Dr. Alon Kalron about the Motoric Cognitive Risk syndrome (MCR) and what it means for people with MS. MCR describes the combination of ph...
#008: Different types of treatment and prevention for MS 08.09.2023 13:01
This includes relapse management, disease-modifying therapy, symptom management, complementary therapy and a healthy lifestyle. You can read the full article on my blog: https://ms-perspektive.com/008-types-of-treatment Today, we will focus on the different treatment approaches and preventive measures that can be used in multiple sclerosis. These include acute treatment of relapses, disease-modi...
#007: The types of MS - from prodromal phase to progressive course 07.09.2023 10:05
Multiple sclerosis (MS) is one disease but it is defined in different types depending on the prominent aspect at the moment of treatement. You can read the full article on my blog: https://ms-perspektive.com/007-types-of-ms This time I would like to introduce you to the different types of MS. But be aware, leading MS experts worldwide are increasingly breaking away from these terminologies, as in...
#006: Interview about the international MS-Community Austria and more with Tania Pilz 06.09.2023 50:24
Tania Pilz talks about her experiences with MS and the international MS-Community Austria which she founded for more inclusion. You can read all questions and answers on the corresponding blog article: https://ms-perspektive.de/006-tania-pilz Today my interview guest is Tania Pilz from Austria. Tania was born and raised in South America and came to Austria for her studies. She received her MS di...
#005: Whom do I tell about my MS diagnosis? 05.09.2023 9:19
The topic today is the pros and cons of dealing openly with the MS diagnosis. Who should know about it and who perhaps (at first) should not. You can read the full article on my blog at: https://ms-perspektive.de/005-whom-do-i-tell This time it's about the pros and cons of who you tell about your MS diagnosis in your family, circle of friends, love relationships and work environment. I believe it'...
#004: Interview with Dr. Aaron Boster on the 10 red flags when to change your neurologist 04.09.2023 49:23
Dr. Boster explains in detail the 10 red flags you shouldn't ignore when going to your neurologist and when it is time to find a new doctor. On the blog article you can look up the complete transcripted interview: https://ms-perspektive.com/004-aaron-boster Today I'm talking to Dr. Aaron Boster about the 10 red flags when you should talk to your neurologist or maybe even look for a new one. Havin...
#003: 10 reasons to see a neurologist who specializes in MS 01.09.2023 15:13
There are at least 10 reasons to see a MS neurologist when you have MS. THey include expertise, early diagnosis, personalized care, etc. On the blog article you can look up the complete content once more: https://ms-perspektive.com/003-ms-specialist . Today, we're talking about why you're best off seeing a neurologist who specializes in MS. Neurology covers a wide range of diseases. If you want to...
#002: How can a rapid and clear diagnosis be made? 31.08.2023 26:39
The diagnosis of MS cannot be made on the basis of a single test; rather, it is a matter of an interplay of different findings. You can read the full article on my blog: https://ms-perspektive.com/002-diagnosis Today's post is about the examinations that are needed at the beginning of the diagnosis of multiple sclerosis. Of course, there are very clear cases that have such a typical and clearly re...
#001: My personal journey with MS 30.08.2023 20:52
Before I'm going to ask other people living with MS about their way I'm sharing my personal journey with the disease so far. You can read the complete blog article here: https://ms-perspektive.com/001-my-journey Welcome to episode one of the podcast and correspondent blog article where I speak about my personal journey with MS so far. I have choosen all the questions that I'm going to ask my upcom...
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