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MS-Perspektive - The Multiple Sclerosis Podcast
In the MS-Perspektive Podcast, I present my view of multiple sclerosis and show you how you can make the best of the diagnosis. Because a beautiful and fulfilling life is also possible with multiple sclerosis. Here you will find information and strategies on how you can actively influence your course. In addition, I publish solo articles with my experiences, interview experts and on various topics related to living with MS as well as other affected people. In addition, there are a few episodes that serve the relaxation, positive attitude and stimulation.
Where to listen?
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Episodes
#075: Decoding the EDSS Score. How It's Measured and What It Means 21.08.2024 7:41
The EDSS score helps neurologists to measure the progression of MS as it measures limitations in functional systems. You can find the full article at: https://ms-perspektive.com/75-edss The Expanded Disability Status Scale (EDSS) is a key tool used by neurologists to measure how Multiple Sclerosis (MS) affects your body. Understanding the EDSS can help you gain insight into your condition and assi...
#074: S1P Modulators - Fingolimod (Gilenya), Ozanimod (Zeposia), Ponesimod (Ponvory), Siponimod (Mayzent) for active RRMS & SPMS 14.08.2024 31:10
Learn more about the S1P Modulators, known by the brand names Gilenya, Zeposia, Ponvory, Mayzent and their usage against active RRMS & SPMS. You can find the complete text to read on my blog: https://ms-perspektive.com/074-s1p-modulators Today it's all about the group of S1P modulators, which includes fingolimod (Gilenya), ozanimod (Zeposia), ponesimod (Ponvory) and siponimod (Mayzent). The first...
#073: "Haciendo Lo Invisible, Visible". Crys's Journey of Invisible Battles and Visible Triumphs as Latina with MS in the US 07.08.2024 52:57
Crys was diagnosed with MS at the age of 11. She talks about her experiences as a first-generation Latina and her mission on social media. You can find all questions and answers on my blog: https://ms-perspektive.com/073-crys Today I'm talking to Crys about her life with multiple sclerosis as a first generation Latina. Crys was diagnosed at age eleven and experienced her most severe episode at a...
#072: Natalizumab (Tysabri, Tyruko) for active relapsing remitting MS 31.07.2024 22:13
Natalizumab (Tysabri, Tyruko) is approved as disease-modifying therapy (DMT) for active RRMS with a rapidly evolving severe MS. You can read the complete article on my blog: https://ms-perspektive.com/072-natalizumab Today we are talking about natalizumab, which is known under the trade names Tysabri and Tyruko. The immunotherapy is used for active, severe courses of relapsing forms of MS. Nataliz...
#071: Insights into MS treatment in Colombia with neurologist Dr. Adriana Casallas Vanegas 24.07.2024 41:39
Dr. Adriana Casallas V. provides insights into the treatment and care of MS patients in Colombia including improvements and challenges. You can find all questions and answers to read through on my blog: https://ms-perspektive.com/71-adriana-casallas MS has long been known as an orphan disease in Colombia, but the increasing number of newly diagnosed patients is changing this picture. Dr. Adriana C...
#070: Teriflunomide (Aubagio) for relapsing remitting MS 17.07.2024 19:06
Teriflunomide (Aubagio) is approved as disease-modifying therapy for mild to moderate RRMS from 10 years of age. You can find the full article to read on my blog: https://ms-perspektive.com/70-teriflunomide This time it's about teriflunomide, which is known under the trade name Aubagio. The immunotherapy is used for mild to moderate courses of relapsing forms of MS. Teriflunomide also has a broade...
#069: Beyond Boundaries. Advocacy, Research, and Recognition in MS with Rachel Horne 10.07.2024 1:00:18
MS patient and advocate Rachel Horne sponsors a prize for women in MS research and campaigns for more diversity in clinical trials. You can read all questions and answers on my blog: https://ms-perspektive.com/69-rachel-horne Rachel Horne was diagnosed with multiple sclerosis at the age of 43, when she felt fit and healthy. She established the Rachel Horne Award to raise the visibility of women in...
#068: Interferon-beta (Avonex, Betaferon, Extavia, Plegridy, Rebif, …) for CIS, RRMS & SPMS 03.07.2024 21:52
Interferon-beta (Avonex, Betaferon, Extavia, Plegrid,y Rebif) is used as a disease-modifying therapy for mild to moderate RRMS, CIS & SPMS. You can find the full article to read on my blog: https://ms-perspektive.com/068-interferons In today's article, I present interferon-beta, which include several active substances and are known as Avonex, Betaferon, Extavia, Plegridy, Rebif, or under other tra...
#067: MS Speech Therapy Insights. Enhancing Communication and Swallowing 26.06.2024 16:19
Discover how speech therapists can address often overlooked MS-related swallowing and communication disorders for timely intervention. You can find the written version to read on my blog: https://ms-perspektive.com/67-speech-therapy Swallowing and speech disorders usually play a subordinate role in the perception of patients. However, problems with swallowing occur in up to 40% and with speech in...
#066: Pioneering Paths. Empowering Young Minds in MS & NMO Research with Dr. Sara Samadzadeh 19.06.2024 49:08
Dr. Sara Samadzadeh contributes to research in the field of NMOSD and MS by creating networks between young researchers worldwide. You can find all questions and answers as well as all links on the blog article: https://ms-perspektive.com/066-sara-samadzadeh Multiple sclerosis and NMOSD have made tremendous advances in treatment due to research conducted over the past decades. Nevertheless, there...
#065: Glatiramer Acetate (Copaxone, Brabio) for relapsing remitting multiple sclerosis 12.06.2024 18:31
Glatiramer Acetate, brand names Copaxone and Brabio, belongs to the oldest immunotherapies for relapsing remitting multiple sclerosis. You can find the written version of this episode on my blog: https://ms-perspektive.com/065-glatiramer-acetate This time I am presenting glatiramer acetate, which is known as Copaxone, Brabio or other tradenames and is one of the approved disease-modifying drugs fo...
#064: Navigating MS Treatment in Turkey with Neurologist and Associate Professor Meral Seferoglu 05.06.2024 28:55
Dr. Meral Seferoglu gives an insight into the treatment of MS in Turkey and how she uses her expertise to support patients. You can read all questions and answers on my blog: https://ms-perspektive.com/64-meral-seferoglu This time I have Dr. Meral Seferoglu as an interview guest on the show and we talk about MS treatment in Turkey. It's always interesting to hear about other countries and how they...
#063: Finding Joy Again. Navigating MS-Related Sexual Dysfunction 29.05.2024 17:11
Sexual dysfunction is common in multiple sclerosis. However, there are many ways to overcome them and enjoy intimacy again. You can find the written version of the episode on my blog: https://ms-perspektive.com/63-sexual-dysfunction Sex can be one of the best things in life and sexual dysfunction can therefore cause a lot of frustration. In this article, you will learn about the background and man...
#062: Dimethyl fumarate (Tecfidera) and Diroximel fumarate (Vumerity) for relapsing remitting multiple sclerosis 23.05.2024 19:55
Tecfidera and Vumerity, the fumarates kick-off the informative series about immunotherapy for multiple sclerosis. You can find the full article to read on my blog: https://ms-perspektive.com/62-fumarates Tecfidera and Vumerity, the fumarates, kick off the series on the approved disease-modifying therapies for MS. I am trying to give a good overview, but it does not claim to be complete information...
#061: How to recognize bladder disorders in MS with the help of a simple questionnaire 15.05.2024 8:58
Bladder disorders in MS are common and remain untreated in half of those affected. Nine simple questions are designed to help treat this symptom earlier. You can find the full article to read on my blog: https://ms-perspektive.com/61-bladder-check Today I would like to introduce the „MS Bladder Check Tool", which was developed by a team of neurologists, urologists and rehabilitation specialists. I...
#060: Overcoming MS Sleep Challenges for Restful Nights and Brighter Days. 08.05.2024 10:53
Sleep disorders in multiple sclerosis can have a negative impact on many symptoms, which is why they should definitely be treated. You can find the transcript of the interview on my blog: https://ms-perspektive.com/60-sleep-challenges This episode is about sleep disorders caused by multiple sclerosis and how they can be treated. Almost three quarters of all people with MS suffer from sleep disorde...
#059: Scoring for Science: The Dunk MS Fundraiser with Blake Arnet 01.05.2024 26:01
Blake Arnet talks about his motivation for the Dunk MS fundraiser event that takes place each spring in Los Angeles. You can read the full interview on my blog: https://ms-perspektive.com/59-blake-arnet Welcome to today's episode where I talk with Blake Arnet, a former UCLA basketball player, about his fundraising event, Dunk MS. Blake's mother was diagnosed with MS and passed away shortly after....
#058: Immunotherapy for MS. A guide to efficacy and choice with Prof. Tjalf Ziemssen 24.04.2024 58:37
Choosing the right immunotherapy for each individual patient is a complex process. Prof. Ziemssen explains what needs to be considered. You can read the full transcript of the interview here: https://ms-perspektive.com/58-immunotherapy Today's interview on immunotherapy for MS marks the start of the series on disease-modifying therapies. It is also episode 250 for the German podcast and I transl...
#057: Depression and MS. How to find your way back to emotional balance 17.04.2024 17:34
Depression can bring your everyday life to a complete standstill. Find out when you need help and what services are available. You can read the full article on my blog: https://ms-perspektive.com/57-depression Depression and mood disorders can bring your entire everyday life to a standstill. That's why I'm dedicating this article to negative changes in the psyche. You will find out what triggers t...
#056: Insights into the activities of the European Charcot Foundation with Prof. Giancarlo Comi 10.04.2024 1:01:21
Prof. Giancarlo Comi presents the extensive work of the European Charcot Foundation to help improve the lives of people with MS worldwide. You can find the complete transcript of the interview on my blog: https://ms-perspektive.com/56-prof-comi This time I welcome Prof. Giancarlo Comi, President of the European Charcot Foundation (ECF), for an interview. We talk about the important role of the F...
#055: Therapeutic decisions regarding pregnancy and lactation. Interview with Prof. Celia Oreja-Guevara 03.04.2024 51:14
For women with MS desiring motherhood, controlled MS and informed choices in pregnancy and lactation ensure a fulfilling journey, with modern therapies supporting both mother and child's health. You can find the questions and asnwers to read on my blog: https://ms-perspektive.com/55-celia-oreja-guevara Prof. Celia Oreja-Guevara advises women with multiple sclerosis and the desire to have children...
#054: Living Fully with MS. Managing Bladder and Bowel Disorders 27.03.2024 17:18
Learn more about strategies, tools and medications to manage bladder and bowel symptoms associated with MS to regain your quality of life. You can find the full article to read on my blog: https://ms-perspektive.com/54-bladder-bowel This time it's about bladder and bowel disorders caused by multiple sclerosis. Around two thirds of all people with MS have at least one episode of impaired bladder an...
#053: EBV Insights. Shedding Light on Its Impact on MS with Prof. Dr. Christian Münz 20.03.2024 32:55
Discover Prof. Christian Münz's research on the connection between EBV and MS, including theories, mechanisms, and potential treatments. You can find the transcript of the interview on my blog: https://ms-perspektive.com/52-christian-muenz EBV, the Epstein-Barr virus, and its influence and impact on multiple sclerosis has long been a subject of interest to Dr. Christian Münz. As Professor of Viral...
#052: Sequencing and Escalation in MS. Navigating Treatment & Progression with Prof. Tomas Kalincik 13.03.2024 1:16:26
Prof. Kalincik gives insights into the statistical results of treatment regimens and why most PwMS benefit from highly effective therapies. You can find the transcript of the interview to read through on my blog: https://ms-perspektive.com/52-tomas-kalincik Tomas Kalincik is Professor of Neurology and Applied Statistics at the University of Melbourne and the Royal Melbourne Hospital in Australia...
#051: MS Symptom Pain. How to regain your quality of life 06.03.2024 15:02
Pain can be caused directly or indirectly by multiple sclerosis. Find out what you can do to improve your quality of life. You can find the full article to read on my blog: https://ms-perspektive.com/51-pain This time it's about nerve pain caused directly by multiple sclerosis and indirect pain caused by irritated pain receptors. Find out more about the causes and possible approaches to combat the...
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