Long COVID Real Talk Podcast

Discusses recent road trip while trying to pace. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Google Voice/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

Balancing out last episode’s “what not to say” to someone with Long Covid, here are some HELPFUL, AFFIRMING phrases shared by Long Haulers in Long Covid Support Groups on Facebook. Thank you to everyone who contributed! Please reach out at longcovidrealtalk@gmail.com to connect with me and if you liked this episode, please consider sharing with others with Long Covid and rate/write a review/subscr...

Thank you to all the fellow Long Haulers in Facebook Support Groups for your contributions! Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Google Voice/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

A glimmer/silver lining of Long Covid — I found a new hobby! Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Google Voice/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

Universal stressors/stress around moving while also hosting out-of-town visitors. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Google Voice/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

Our momentous attempts to decrease our monthly expenses and create a more relaxed life. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Google Voice/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

Thanks for listening when I’m not feeling so great. Please email me at longcovidrealtalk@gmail.com — I promise to write back!

How our learned roles can contribute to feelings of shame when recovering from Long Covid. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

Discusses symptoms people with Long Covid experience and how to know if you have Long Covid. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

The struggle of trying to fulfill social role norms while having long covid is real! Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

What to do if people give you a hard time when you try to set boundaries, and how to set boundaries with particularly challenging people. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

My brain isn’t working well right now, just had a meeting with law firm helping with retirement. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

Discussion from Nedra Glover Tawwab’s book “Set Boundaries, Find Peace” about what keeps us from setting boundaries, how to set boundaries and practical tips to use when setting boundaries. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone/Text: 1-650-382-2217 (for VM < 1 min you can use Spotify voice messaging)

Discussion of the treatment plan from my chronic fatigue clinic appointment. *My brain isn’t working great during this episode but wanted to get the treatment plan out ASAP in case it may help someone else.*

Discussion of boundaries from Nedra Glover Tawwab’s book “Set Boundaries, Find Peace” — how to know if you need better boundaries. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

Discussion of two traits commonly found in ADHD that make Long Covid recovery more challenging. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

The vicious cycle — starting to feel better leading to yet another episode of severe PEM. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

I describe my experience participating in the RECOVER-VITAL study, hoping to get 15 or 25 days of Paxlovid. You can review on clinicalstudies.gov and reach out to the investigators if there is a study going on near you. You can also try reaching out here for the RECOVER-VITAL study: https://recovercovid.org/contact-us. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/4183060208...

When you start to feel better, how much is too much? How do you find a balance between action and rest to prevent an episode of Post-Exertional Malaise (PEM)? Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

My husband, Michael, discusses what life is like from the perspective of the partner of someone with Long Covid. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify) ***Click here to listen to me tell my Long Covid story as a guest on the...

Discussion of how things are going since the Paxlovid study started earlier this week. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise use voice messaging available through Spotify)

Discussion of a great tool to develop and utilize in our Long Covid recovery — setting better boundaries to better protect our energy, needs and well-being. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

KathleenSue’s voicemail, Karolina’s email and Sara’s text messages all telling their story, their experiences of having Long Covid. Please send me your story so I can publish your story, too! Voicemail, email or text message! It is so powerful to hear one another’s stories. Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for...

Not every day is a bad day — sometimes there are good days, too! Also, sometimes music really helps! Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

Update on attempts to find a cheaper set-up for living/lower monthly bills while preparing to take a significant income cut due to disability retirement. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)