Long COVID Real Talk Podcast

Update after 4 calls to insurance company over 2 days for a total of about 2.5 hours of my life I will never get back, that has turned my brain to mush. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

Perhaps the ugliest part of Long Covid — the lack of support and awareness in our time of greatest need. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise, use voice messaging available through Spotify)

Disclaimer: these are the medications I am taking, recommended by my medical providers. Please do not take this as medical advice. Anything that piques your interest, please talk to your medical provider first before trying any new medications/supplements. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (...

Discussed worldwide studies you can look up on clinicalstudies.gov and reach out to the investigators if there is a study going on near you. You can also try reaching out here for the RECOVER-VITAL study: https://recovercovid.org/contact-us. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min o...

Hit with another crash after trying to spend just a little time on a project after getting through a several day long flare-up. Lesson learned: if you push against LC, it will push back way harder! As backwards as it may sound, relaxing is the way to fight LC. I am not used to truly relaxing. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealt...

I use scripts from my uncle’s book to make a Long Covid-focused healing meditation. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise use voice messaging available through Spotify)

Just coming out of a nasty Post-Exertional Malaise (PEM) Episode, I made a list of all the things I usually do during a flare-up. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise use voice messaging available through Spotify)

Discusses how Long Covid affects our ability to exercise and how to figure out what is best for your body. Article about Long Covid & Exercise: https://www.npr.org/sections/health-shots/2024/01/09/1223077307/long-covid-exercise-post-exertional-malaise-mitochondria A Facebook Group has been created for further fellowship! Please search for "Long Covid Real Talk" or just click here: https://www.face...

What is it like to have a Long Covid flare up caused by post-exertional malaise (PEM)? Day 1: Did not take temperature, severe exhaustion, fatigue, brain fog, and mental distress/guilt/frustration Day 2: temp 100.4, brain fog, in bed all day and night except to use the bathroom or eat, severe exhaustion, severe body aches and malaise, sleeping the majority of the day, significant mental distress/f...

Intro of what to expect followed by a guided sleep meditation to help you sleep better and more deeply. A Facebook Group has been created for further fellowship! Please search for "Long Covid Real Talk" or just click here: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise use voice messaging available through Spotify)

Discusses sleep hygiene — some things normally recommended for good sleep hygiene may not be appropriate for people with Long Covid. A Facebook Group has been created for further fellowship! Please search for "Long Covid Real Talk" or just click here: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise use voice messagin...

Processing the major life changes caused by Long Covid. Missing my pre-Covid brain, pre-Covid body and pre-Covid self. Name of podcast I referenced: Long Covid MD, you can find on Apple Podcasts. A Facebook Group has been created for further fellowship! Please search for "Long Covid Real Talk" or just click here: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Ph...

Discussion of types of exercises you can do, making sure you get your Vitamin D and get outside, and how pets can be a phenomenal support. A Facebook Group has been created for further fellowship! Please search for "Long Covid Real Talk" or just click here: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise feel free to...

Goes through things you can plan and ahead of time, so during your next flare-up you don’t have to think so much — you can just rest. A Facebook Group has been created for further fellowship! Please search for "Long Covid Real Talk" or just click here: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise feel free to use...

Stop. Rest. Pace. And why some people really struggle with pacing more than others. I want to hear from you! A Facebook Group has been created for further fellowship! Please search for "Long Covid Real Talk" or just click here: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise feel free to use voice messaging available...

How to keep your mental health on point when you are not feeling well so it does not worsen your symptoms and/or delay your recovery. A Facebook Group has been created for further fellowship! Please search for "Long Covid Real Talk" or just click here: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise feel free to use...

Discusses grief people with Long Covid have to process, that their grief is disenfranchised grief, and why that makes grieving the loss of their previous lives that much more difficult. A Facebook Group has been created for further fellowship! Please search for "Long Covid Real Talk" or just click here: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650...

How to Grow Your Support Network. A Facebook Group has been created for further fellowship! Please search for "Long Covid Real Talk" or just click here: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise feel free to use voice messaging available through Spotify for messages)

Discusses ways to support your mental health while recovering from Long Covid. A Facebook Group has been created for further fellowship! Please search for "Long Covid Real Talk" or just click here: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone: 1-650-382-2217 (for VM >1 min otherwise feel free to use voice messaging available through Spotify for messag...

Medical provider with Long Covid seeking a platform to discuss the emotional aspect of having Long Covid. Understanding and processing our experiences, grieving and moving forward with hope. A Facebook Group has been created for further fellowship! Please search for "Long Covid Real Talk" or just click here: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Phone:...