Long COVID Real Talk Podcast

BONUS EPISODE #5: My Cardiology Appointment Discusses most recent appointment to see the cardiologist in an attempt to seek treatment for symptoms of POTS and variable blood pressures based on body positioning. Please rate, review, share, and leave a 5 star review if you liked today’s episode to help others find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Faceboo...

A snapshot into the life of someone living through a Post-Exertional Malaise (PEM) episode after minimal exertion the previous day. Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350...

I was able to try putting music in the background but there is no way to adjust the volume so I was on the fence as to whether to keep the music or not. Today my brain is not working well and is very tired. I hope if you are having a similar day that it passes quickly. Remember - you are not alone! Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other peo...

BONUS EPISODE #4: My Infectious Disease Appointment Discusses most recent appointment to see the infectious disease physician in an attempt to get on an antiviral since there were such favorable results from both Paxlovid trials. Please rate, review, share, and leave a 5 star review if you liked today’s episode to help others find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covi...

This episode discusses the importance of having things to look forward to in order to keep your mental health on point. Furthermore, discusses the universal dilemma of finding one’s worth. Whether you are able-bodied or not, your worth is exactly the same, you are not worthless because your productivity has diminished compared to what you used to be able to do. Please rate, review, share, and leav...

Home repairs and feeling left out — how people with Long Covid, ME/CFS, POTS, and dysautonomia have to miss social gatherings and fun outings because of our illness. Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.fa...

Discusses the loss of a colleague to Amyotrophic Lateral Sclerosis (ALS) which leads to grief and existential distress — am I doing what I was meant to be doing? How do I know? How do we carry on after the loss of a person in our life? How do we carry on after the loss of our lives as we knew them to Long COVID? How do we, the survivors of COVID, carry on after all the people we have lost to COVID...

For all of us with Long Covid, ME/CFS, POTS, dysautonomia, brain fog, severe, debilitating fatigue, significant weight gain (or loss) who feel like this entire experience has essentially ruined our lives as we knew them, aged us, and made us feel really old and fat (or too thin). One of the things mentioned is to dress for your current body type/size and to try to embrace yourself just for being y...

A topic I should have discussed way before now — tips and tricks for people with Long Covid, ME/CFS, POTS, and dysautonomia to help make getting ready in the morning or at nighttime a little bit easier. And remember — you’re not alone in this! Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much...

How having symptoms of Long COVID, ME/CFS, POTS, MCAS, Fibromyalgia, etc. such as debilitating fatigue, brain fog, myalgias, dysautonomia, etc. affects relationships. Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.f...

Overall life and disability retirement update. Also, a new mantra to help visualize acknowledging Long Covid and its effect on our life: To our old lives = Rest In Peace. To our new lives = Rest & Pace. This podcast is for patients with Long Covid, post acute sequelae of covid-19 (PASC), myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), postural orthostatic tachycardia syndrome (POTS),...

Tips and tricks for how to make cupcakes (or just generally cook) for patients with Long Covid/post acute sequelae of Covid-19 (PASC), myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), postural orthostatic tachycardia syndrome (POTS) and the resulting debilitating fatigue, brain fog, memory issues, post-exertional malaise (PEM) and the myriad of 200 symptoms known to exist as a part of...

Updated episode re: all the meds and supplements I am taking right now as well as why I am taking them. This episode is NOT meant to be used to determine what YOU should be taking. The purpose is to provide insight on what is being done in different long covid clinics so anyone who does not have access to a long covid clinic has a starting point with which they can go to their medical provider to...

Laurie, a fellow long-hauler, recently participated in a study that focused on brain stimulation and using an app (BrainHQ) to play brain games to improve neurological function. She has had some fantastic results and wanted to share her experience with the BrainHQ app that has worked so well in her Long Covid recovery. Something you can do today to help with your recovery from Long Covid!

How my life focus and friendships have changed and my world has gotten smaller since Long Covid. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Google Voice/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

I go over the Cleveland Clinic’s webpage about Postural Orthostatic Tachycardia Syndrome (POTS). Website: Https://www.my.clevelandclinic.org/health/diseases/16560-postural-orthostatic-tachycardia-syndrome-pots Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Co...

For the days when you are having trouble just existing, here are some tips and tricks to help you make it through the day. One thing I did not mention - if you are having thoughts of harming yourself, please reach out to your local crisis line and/or suicide hotline. If you are in the United States you can call 988 any time day or night to speak with someone who can help. Please rate, review, shar...

For the times you are not bed-bound or home-bound, here are some tips and tricks to help you travel with Long Covid. Please comment with any other travel tips, tricks or recommendations for your fellow Long Haulers! Reach out and say hello! My email is longcovidrealtalk@gmail.com.

Spotify for Podcasters no longer allows podcasters to create podcasts in their app — now they recommend using Riverside, then saving it as a file, then uploading to Spotify for Podcasters. But now there is no way to overlay the podcast soundtrack/music with the podcast itself. Here are some things I have tried as a work-around. It is embarrassing and I feel like an idiot, but this is an example of...

In celebration of the end of season 2, three lucky listeners will receive a crocheted animal gift! Send your name, address and favorite animals to longcovidrealtalk@gmail.com.

Recommendations for how to see a movie when you have Long Covid— what I wish I had done!
 Please reach out, say hey, and tell me what you think! Email: longcovidrealtalk@gmail.com 


Balancing careful, paced exertion (to avoid post-exertional malaise [PEM]) with making social connections to keep your mental health on point. Also, listening to others’ issues can help you feel better/more normal again, even if they are not able to fully understand your suffering. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.c...

Discusses picking up the pieces of your old life and starting to build a new post-Covid life. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Google Voice/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

Discusses how a visit from a friend going through her own problems was fun and life-giving and helped give my brain a reset. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Google Voice/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)

Feeling like it is hard to find meaning in my life, hard to find things to look forward to now that my life has so drastically changed. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Google Voice/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)