Invisible Not Broken - Chronic Illness Podcast Network

Come to the Dark (Humor) Side, Sign Up & Join Us Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Follow Desiree  Instagram Follow Sirius @sirius.service.dog Desiree @desireejaykins What is your disorder?  * Reflex Sympathetic Dystrophy/ Complex Regionals Pain Syndrome , Ehlers Danlo’s Syndrome , other GI issues At what age...

#30dayspooniechallenge. JOIN THE DARK (HUMOR) SIDE Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you!  So this is stupid simple and all you need to do is just post a video or a picture of what your life is like with a chronic illness. Can be as long or short as you like. Just add a not or say where you are from. We have been so lu...

Come to the Dark (Humor) Side, Sign Up & Join Us Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Follow Desiree  Instagram Follow Sirius @sirius.service.dog Desiree @desireejaykins What is your disorder?  * Reflex Sympathetic Dystrophy/ Complex Regionals Pain Syndrome , Ehlers Danlo’s Syndrome , other GI issues At what age...

Join The Dark (Humor) Side Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you!   Before you travel Make sure you have more than enough meds to get you through the trip. (My rule of thumb is to always make sure I have enough for 3-5 extra days in case I get stuck somewhere due to weather or other problems) If you use a daily pill so...

Join the Dark (Humor) Side Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Alright maybe I have listened to too many Tim Ferris Podcast  episodes (no really super motivating. Give it a try if you haven't). I decided to run a personal experiment as the US has yet again made it more difficult to get pain medication even when you...

Join Us Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Warning: We really got into some intense issues from body issues, to disordered eating to suicide. If these are upsetting please look under recommendations for help and helplines. First an apology on behalf of Skype on the frustrating audio! If any of you tech geniuses kno...

Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Warning: We really got into some intense issues from body issues, to disordered eating to suicide. If these are upsetting please look under recommendations for help and helplines. First an apology on behalf of Skype on the frustrating audio! If any of you tech geniuses k...

Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Panel Discussion: The Cost of Having an Invisible Illness   Important Note: According to a 2017 RAND study, as of 2014, 60 percent of Americans had at least one chronic condition, and 42 percent had multiple chronic conditions. These proportions have held steady since 20...

Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you!  This week we’re talking about the Thoracic Outlet Syndrome with Jen Hein and I have been waiting a long time for this episode because I really want to talk to another person who has a chronic illness and had to close of business that they built. Some of you know that I...

Subscribe Sign up with your email address to receive news and updates. First Name Last Name Email Address Sign Up We respect your privacy. Thank you! Hidden in Plain Sight The Life of a Secret Spoonie: Part Two: Origins   Hello everyone and welcome back to Hidden in Plain Sight. For those of you just joining me, my intent is for this to be a monthly column about the trials and tribulations of livi...

The Body Image Blueprint: Your Go-To Guide for Radical Self-Reverence By Jenny Eden Berk MSEd Show Notes The Body Image Blueprint Jenny Eden Coaching Hashimotos Alopecia Areata Body Dysmorphia National Eating Disorder Helpline Sarah Silverman Time Ferris Adam Ruins Weight Loss Zombies, Run App Purple Carrot Don't Miss A Thing! Sign up with your email address to receive news and updates. Email Addr...

Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Visit Colitiscope Nutrition Holly Fowler's blog:  www.colitiscopenutrition.com Holly Fowler's Instagram:  www.instagram.com/colitiscopenutrition   1.  11 Life Hacks for Minimizing Chronic Fatigue 2.  Coffee Alternatives: When Coffee Isn't An Option 3.  5 Ways To Combat B...

From the best way to support a spoonie to great ways to manage anxiety to the true story of postpartum depression with and without medication this episode is absolutely full of great spoonie life hacks and some real information about bipolar, anxiety, and migraines from high school to college to being a new mom. Make sure to share this episode with anyone who has or anyone you would like to know m...

Kyros and I heavily debated doing this episode on Faking It All About Disability Placard and Service Animal Abuse of the System. Though we are not fans of calling people out this has become such an issue in our and others lives. The abuse of the system means life is so much more difficult for those who need these services. Take a listen and let us know what you think or if you have solutions we'd...

This week Lucas Robak was kind enough to talk about his experiences with Multiple Sclerosis , time as a lab rat, and some interesting views (his please don't sue us) on the medical system, charity and research organizations, and medicine in the US. Lucas Robak The rule everything out diagnosis Hypnotherapy for pain management (also concerned for how my kids would use this for non-pain management)...

You Are Not Your Diagnosis What is your disorder?  * polycythemia vera At what age did your disorder become a daily issue?  * 25 Who were you before your illness became debilitating?  * I was a graduate student pursuing a career in academia but I was completely miserable on my path. What would you do if you were not dealing with your invisible illness?  * I don't know that I'd be doing much differ...

Hidden in Plain Sight   The Life of a Secret Spoonie: Part One: Introduction   Hello everyone and welcome to Hidden in Plain Sight. This will be a monthly column about the trials and tribulations of living life with invisible illnesses that (most) people don’t know about. I am not entirely closeted, as some of my friends and family know about my medical conditions, but for the most part I live my...

Don't Forget To Share & Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! An interview with Kevan, the owner of Made In California who suffers from chronic migraines. This week is near and dear to my heart, chronic migraines  are not unknown in my house. We really went into the weeds on what it is like to being a st...

“ I am an extrovert. My body is an Introvert ” — Lauren Selfridge Show notes from Remitting MS and Interview With Lauren Selfridge from This Is Not What I Ordered A Chronic Illness Podcast Lauren Selfridge had remitting MS is a therapist in the SF Bay Area and runs a wonderful chronic illness podcast called This Is Not What I Ordered. To be VERY clear Lauren is on the calmer side of the spectrum o...

Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! What is your disorder?  * Complex Regional Pain Syndrome (CRPS) At what age did your disorder become a daily issue? * 24 Who were you before your illness became debilitating?  * I was a trained Barrister (lawyer), I was lecturing in Law and became Head of Law at a colleg...

Lupus , Fibromyalgia , EDS , and a Car Accident: Karma needs to chill. A discussion with naturopath Elizabeth Clamon from Clamon Natural Health , and Monica Michelle who between the two of them are dealing with Chronic Fatigue , Lupus, Ehlers Danlos, Chronic Pain, Car Accident, and Fibromyalgia. This is a panel talk all about LIVING with a horizontal life or how to live when bedbound with chronic...

Links & Show Notes For Medical Marijuana and Chronic Pain Panel Discussion Jason David and child seizures medical marijuana Charlottes Web CBD treatment for pediatric seizures Sanjay Gupta Oprah and Medical Marijuana Sunset Magazine and Medical Marijuana in landscaping National Geographic and Medical Marijuana Medical Marijuana Refugees Medical Marijuana and Cancer , Medical Marijuana and PTSD...

Click to See Francis' Blog Questions What is your disorder?  * CFS (and PCOS ) Please read Frances' blog post about CFS  at her blog Fancy Like That and follow all of her social media I spent close to stalker-like hours on her Pinterest page. At what age did your disorder become a daily issue?  * 24 Who were you before your illness became debilitating?  * I was a quote-unquote 'normal' twenty-some...

Show Some Love Share And SIgn Up Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! So Kyros just got back from traveling overseas and came back to talk all about disability and travel. Recommendations Global Entry Compression Socks   What are your best tips for traveling? Tweet @invisiblenotbrk or comment below Hosted on Acast. S...

You might remember Karina Strum , if you don’t here is her interview. This is where I got the tables reversed and she interviewed me about my daily life which absolutely includes daily dislocations, opioids, medical marijuana, and daily fear that a government and overzealous media will make getting the medication I need for daily survival harder or impossible to access. Along with the audio I’m in...