Invisible Not Broken - Chronic Illness Podcast Network

Disability, staying home, guilt, and screwing with the feminist agenda. Trying to get over "letting down" the people in your life by staying home for disability. Some behind the scenes of what happened when Monica Michelle had to shut down her Menlo Park photography studio. Trying to justify your day when you stay home every day. Spoon theory and getting to work using public transportation which i...

Show Notes For This Weeks Chronic Illness Podcast What it’s like when ALL your medical tests show you are the healthiest sick person Oh that’s a thing and the amazing crazy things your body can do with chronic illness You know that feeling when you can’t breathe…yay like that most of the time Is it Prednisone or is it LSD? Show & Tell Can Go Horribly Wrong With Chronic Illness No Diagnosis mea...

“ Sucess is not final: failure is not fatal it is the courage to continue that counts ” — Winston Churchill “ I’m scared of how much my body will limit my vision for this. ” — Monica Michelle Two women in business while also dealing with chronic illness have a VERY honest discussion about pitfalls, planning, and vision in business while being a spoonie. Invisible Not Broken began because I have se...

Please download images to share the podcast on social media. Show Notes Welcome to this week's chronic illness podcast episode of Invisible Not Broken. This week I am talking with Elana who has the chronic illness condition neurofibromatosis , bipolar and partial blindness.   Along with her chronic illness, she is a caregiver to her young children who have their own disabilities. Elana is not only...

  What is your disorder?  * Endometriosis At what age did your disorder become a daily issue?  * 22 Who were you before your illness became debilitating?  * I had so much more energy What would you do if you were not dealing with your invisible illness?  * I think I would have been more engaged in the world around me What would you like people to know about your daily life?  * Post-hysterectomy it...

“ It’s not just us missing society. We are also missing FROM society ” — Monica Michelle Misconceptions of Chronic Illness   Lisen to our most shareable episode. Send our chronic illness episode to the person you wish understood chronic illness better.   Kyros' perfectly organized show notes that I systematiclly disorganized. Misconceptions about Invisible Illnesses   Start with an explanation of...

This week on our chronic illness podcast, Invisible Not Broken, I interviewed a woman who has Crohn's Disease . Learn about what a diagnosis like Crohn's can be like in college, dating with a chronic illness, the Canadian healthcare system , parenting with Crohn's Disease, and the upside of chronic illness: the toxic friend cleanse. Did You Like What You Heard? Subscribe! Sign up with your email a...

A Real Talk About Pain Management: The Cost Of Chronic Pain: The Opioid Epidemic in Four Letter Words: A Chronic Illness Podcast Chronic Illness Podcast. Kyros and I have dealt with Chronic pain for years. You can listen to either of our episodes to hear about Kyros's   Morton's neuroma and Monica Michelle's fibromyalgia, POTS , and Ehlers Danlos We go over the true cost of having a chronic illnes...

Fibromyalgia and starting a tech business as a spoonie I bow down to this rockstar. Eva manages her chronic illness, fibromyalgia and has a tech startup to help us spoonies find the best medical care for our condition. It is called Wellacopia. Go visit now while you listen! I hope you adore her as much as I do. With Eva's unique perspective and knowledge of the sometimes scary world of medicine an...

“ What are you the most fearful of and what are you the most hopeful for in the future?: Most fearful of leaving this world at a young age as I am an only child and recently lost my father which means my mother would be all alone. My hope is that with my blood and tissue samples that have been taken help progress medical science and a better knowledge of one day finding a cure ” — Robbie “ Take a...

“ The reminding part can be absolutely exhausting. When you feel like you’re talking to a brick wall (parenting with chronic illness) ” — Vanessa My Silly Billy, Squeaky Cheeky, Floppy Poppy Family By Vanessa Jean Locke   Disorder Info Name  *Vanessa Jean Locke Age  * 44 What is your disorder? * Diabetes Type 1 , Ulcerative Colitis , Hypo Thyroid , Vitiligo and Sjogrens (eyes) At what age did your...

“ I had always defined myself by my achievements ” — Karina I have made choice of not doing just one or even two posts of a diagnosis (you might remember my interview ). The reason is that each of us have a different experiance with our disorders and I want to show how wildly different stories can be even when they live under the same diagnosis. OK, off my soap box I have you really enjoy hear fro...

“ Denial? Or I’m just a tough jackass that won’t just die ” — Robert Fukushima Bad Ass With No Kidneys Hemodialysis   ACA   Fluids in foods   Hyperphosphatemia   Flavor Boosting Phosphates in food   Artificial Kidney    More about Artificial Kidneys Kidney transplant rejection   Did You Like What You Listened To? Sign up with your email address to receive news and updates. Email Address Sign Up We...

Diabetes Type 1 Neuropathy Diabetes Association Insulin Pump Insulin Artificial Pancreas Thank you so much for joining us this week. Please share this episode with a friend you think would enjoy and don't forget to subscribe and leave kind words for us. Until next week... Be kind. Be gentle. Be a badass.       Hosted on Acast. See acast.com/privacy for more information.

Please share our podcast and feel free to grab any of our images to use on your social media posts! Hosted on Acast. See acast.com/privacy for more information.

“ Be like water always finding a path ” — Colleen White Thank you for listening this week, it's a special one for me. Colleen and her family have been dear friends and so supportive during my disability journey. You might be able to tell I adore her. Colleen is caring for her husband who has Stargardt's Disease .  Listen for the ways Colleen knows if she hasn't taken time for herself, How denial i...

“ It was all about me trying to project this image. To whom? No idea, myself I guess. Like anyone was looking. ” — Katie Don't forget to share Invisible Not Broken with a friend or a caregiver you know. Until next week  Be kind. Be gentle, Be a badass. Thank you for joining us for a very special interview with one of my favorite people. Katie has been a long time friend and my supplier in cute kit...

“ What you do is not who you are. ” — Monica MIchelle Invisible Illness: Which one do I qualify as sick? Also, a little window into my daily world Every time I rattle off my disorders I almost have to count them off on my fingers. Did I forget one? Would it even matter when they all fall under the umbrella of ok no you're not crazy, no cure, and wow that's really a thing? I will leave links at the...

Your Hosts Kyros Starr Monica Michelle Welcome to the first-panel discussion for Invisible Not Broken. My co-host Kyros  and I are going to be talking about the most elusive and mythic beast in Invisible Illness world: getting the diagnosis. For many getting sick is a simple visit to a doctor. They figure out what is wrong and prescribe a treatment plan. When you have something rare and invisible...

Meet my new co-host Kyros. He was one of the first friends I made when we moved. He and his husbands are the most loving and kind men you could ever hope to call friends. If you ever see Kyros you would know why he would be someone you would think to ask for help moving furniture before you would think to offer him a seat. After talking with Kyros about his food allergy which I had no idea how ser...

“ I put it down to herd animal weakness. I don’t want to show I could get picked off...I don’t want anyone to know..I’m here as the weakest gazelle going oh shit! ” — Jen Toal Did I get lucky! I got to make a new friend. I hope you enjoy listening to Jen. She is an amazing poet and at the end of the interview you can hear two very powerful poems. She is hilarious and strong. She has been dealing w...

Thank you so much for joining me in this weeks episode of Invisible Not Broken. Today I am going to be talking to Ms. O about her Fibromyalgia symptoms and some of her Fibromyalgia Treatment as well as her anxiety symptoms all while the wonderful girl is in college. I met Miss O and did a minor bit of pleading for her to come on the podcast. I think I just simply believe everyone should have a cha...