Invisible Not Broken - Chronic Illness Podcast Network

Summary Faye Perez discusses her journey into independent patient advocacy, the importance of community support for those with chronic illnesses, and the launch of her new magazine, the Good News Gazette. The discussion highlights the need for safe spaces in healthcare, the role of art in healing, and the impact of generative AI on creativity. Faye emphasizes the significance of lifting each other...

🌈 Ever had a moment where your life changed in an instant? 🌀 Judy Kim shares her powerful story of surviving a stroke and how it inspired her to write "Super Survivor." Her journey highlights the importance of sharing our stories and supporting one another. What’s a pivotal moment in your life that shaped who you are today? Drop your thoughts! #LifeChangingMoments #SuperSurvivor #Podcast #Commun...

💥 Did you know that clothing can look completely different when you're seated? Nenia shares her journey in fashion reviews for wheelchair users, highlighting the need for brands to showcase their clothes on all body types. 💬 What has been your experience with fashion? Share your thoughts below! #FashionReview #DisabilityAwareness #AdaptiveClothing #InclusiveDesign Chapters 00:00 Introduction to...

🌍 Ever wondered how history influences our view of chronic illness? In our latest episode, we sit down with Emily Mendenhall to discuss her groundbreaking book, "Invisible Illness." She reveals the fascinating connections between past perceptions of hysteria and today's challenges with Long COVID. What do you think – does history repeat itself in the realm of health? Share your thoughts below! #C...

Social : Navigating college with a disability? 🎓🧩 Stop the guesswork. We're chatting with MMeri Scholars' founder about their MUST-HAVE list of truly accessible universities. Parents, don't miss this! 🏫✨ 🎧 Listen to Invisible Not Broken: 🔗 in bio. #CollegeBound #Neurodiversity #InvisibleNotBroken #SpecialNeedsParenting summary In this insightful interview, Lisa shares her expertise on colleg...

The conversation delves into the challenges of navigating childhood illness, the impact of medical gaslighting during adolescence, and the importance of advocating for oneself in the medical system. It also explores the impact of disability on work and housing, the role of writing as a coping mechanism and productivity, and the value of disabled voices in healthcare. The conversation delves into t...

Summary In this conversation, the hosts discuss the challenges and experiences related to accessibility and accommodations in education, particularly for students with disabilities. They explore the differences between community colleges and universities, the bureaucratic hurdles in obtaining necessary accommodations, and the impact of societal structures on access to education. The discussion als...

Ever had that moment where a piece of tech or a daily habit just… clicked ? 🧠✨ We’re diving deep into the world of Accidentally Accessible —those "mainstream" tools that have become game-changers for the blind and low-vision community. From the immersive audio of the Apple Vision Pro to the freedom of a Waymo ride, the line between "assistive tech" and "future tech" is blurring. 🚗💨 But wellnes...

The conversation covers disability representation in media, the impact of disability on character development, personal stories and relationships, magic and disability representation, tropes and lazy use of magic, and the portrayal of disability in 'The Magicians' and 'Doctor Who'. The speakers discuss the need for more authentic and diverse representation of disability in media, as well as the ch...

Uncovering the Radical Legacy of Disability Activist Ed Roberts with Biographer Scott Danforth Keywords Ed Roberts, disability rights, activism, biography, independence, community, technology, publishing, women in activism, accessibility Takeaways Ed Roberts was a pivotal figure in the disability rights movement. His activism began at UC Berkeley with the Rolling Quads. The fight for disability ri...

Keywords chronic illness, relationships, conflict resolution, empathy, writing process, power imbalance, emotional management, self-help, therapy, communication Summary In this conversation, Lisa Gray, a marriage and family therapist, discusses the complexities of relationships when chronic illness is involved. She shares insights on conflict resolution, the importance of empathy, and how to navig...

Summary In this conversation, Brenda Snow shares her personal journey as a patient diagnosed with multiple sclerosis and discusses her book, 'Diagnosed: The Essential Guide to Navigating the Patient Journey.' She emphasizes the universal experience of navigating chronic illness, the importance of grief and acceptance, and the need for strong doctor-patient relationships. Brenda also highlights the...

Keywords TMS, transcranial magnetic stimulation, brain injury, mental health, medical gaslighting, patient advocacy, chronic illness, technology in healthcare, self-care, mindfulness Summary In this conversation, Jordan Hanson shares her personal journey with transcranial magnetic stimulation (TMS), a procedure intended to treat mental health issues. She discusses the initial excitement about the...

Epilepsy, UK Health System VS US, and How We Can Do Better: Conversation With Célestine Laurin Summary In this conversation, the speakers delve into the complexities of living with epilepsy and chronic illness, particularly focusing on the experiences of children and young adults. They discuss the challenges of diagnosis, the importance of support from family and friends, and the role of therapy i...

Chapters 00:00 Introduction to Romance Writing and Disability 05:49 Life Changes During the Pandemic 11:53 Writing Romance with Chronic Illness 17:55 Representation of Disability in Romance 24:35 The Viral Success of a Romance Novel 31:07 Writing as a Form of Self-Discovery 36:06 Navigating Writing with Disabilities 49:59 The Journey of Training a Service Dog Summary In this conversation, the spea...

Summary In this conversation, Tessa Lynn Hodge discusses her journey from being a licensed clinical social worker to running for office in District 23. She emphasizes the importance of community engagement, healthcare reform, and the need for authenticity in politics. Tessa shares her experiences and insights on the challenges faced by her community, particularly in rural areas, and highlights the...

Keywords health advocacy, patient empowerment, healthcare system, self-advocacy, doctor visits, healthcare resources, United States of Healthcare, patient stories, healthcare challenges, AI in healthcare Summary In this conversation, Joyce Griggs shares her journey into health advocacy, highlighting the challenges faced by patients in navigating the healthcare system. She discusses the importance...

Unpack the shocking influence of money in politics with us! We dissect how large donations and Super PACs are shaping elections and explore the crucial role of grassroots movements and community engagement in fighting back. Discover strategies for building political support , navigating the path to candidacy , and fostering meaningful conversations across political divides . We delve into the comp...

Keywords Aggressive Systemic Mastocytosis, chronic illness, advocacy, mental health, writing, self-care, body image, healthcare activism, rare diseases, education Summary In this conversation, Rachel Largent Phillips shares her journey with aggressive systemic mastocytosis, a rare disorder that significantly impacts her daily life. She discusses the challenges of living with a chronic illness, inc...

Join us for Part 2 of our inspiring conversation with acclaimed Fantasy Author Faye Perez on the "Invisible Not Broken" podcast! In this wide-ranging episode, Faye shares unique insights on how "Dressing Up" can be a powerful path to joy and self-expression, even when navigating the complexities of invisible disabilities. We delve into the "Rebellion of Kindness" and its role in fostering positive...

Looking for a more inclusive, accessible way to date while disabled or chronically ill? 💘 In this eye-opening podcast episode, we talk to Jacqueline and Alexa Child, the founders of Datability — a revolutionary dating app built by and for the disability community. They open up about dating with chronic illness, building tech for accessibility, and why representation in love matters. This episode...

Summary In this conversation, Sarah Burton shares her journey with chronic illness, discussing her diagnosis, the challenges of parenting while managing health issues, and her transition from a corporate career to entrepreneurship. She emphasizes the importance of community support for individuals with chronic illnesses and the need for greater awareness and understanding in the workplace. This co...

Summary In this conversation, the speakers discuss various aspects of puppy training, particularly focusing on the challenges of training service dogs. They delve into the teenage phase of puppies, the fear periods that can arise during development, and how to manage trauma in service dogs after negative encounters with other dogs. The conversation emphasizes the importance of proper training tech...

Summary In this conversation, the speakers discuss the complexities of choosing and training service dogs versus puppies, emphasizing the importance of temperament, the challenges of finding suitable dogs, and the training process. They share personal experiences and insights on navigating the world of service animals, including the significance of socialization and public perception. In this conv...

Summary In this conversation, Jess shares their journey of writing the book 'Being Sick Enough', which explores themes of invisible illness, childhood trauma, and the complexities of living with chronic conditions. The discussion delves into the challenges faced as a sick child, the misunderstandings surrounding invisible illnesses, and the process of writing personal stories while navigating rela...