BARE IT ALL

In this episode of  BARE IT ALL Coffee Talk , we welcome  Katie Sclafani , Licensed Clinical Social Worker and Certified Clinical Transplant Social Worker with the Sala Institute for Child & Family Centered Care at NYU Langone’s Hassenfeld Children’s Hospital. Katie walks us through the invaluable role social workers play in the pediatric liver disease journey — from diagnosis through transpla...

In this heartfelt special edition, we sit down once again with Rachel Perez for an extraordinary update following her emotional meeting with her donor family — a rare and powerful moment that few get to experience. Rachel shares her raw, personal reflections from this deeply meaningful encounter, giving listeners an intimate glimpse into a story of life, loss, gratitude, and connection. This episo...

This week on  BARE It All Coffee Talk , Stephanie sits down with the incredible Rachel, an adult survivor of Biliary Atresia, for a raw, heartfelt, and eye-opening conversation. What is it really like navigating adulthood with a rare pediatric liver disease? Rachel shares her journey, the challenges and triumphs, and what she wishes more people understood. 🌟 Whether you're part of the BA comm...

🎧  Season Premiere – BARE It All Coffee Talk  ☕ Welcome to a brand-new season of  BARE It All Coffee Talk ! We're kicking things off with powerful conversations and exciting updates—we're now streaming on  all major podcast platforms   and  on  YouTube ! In this emotional and eye-opening episode, we sit down with  Brooks , an adult living with  biliary atresia . Brooks shares his deeply...

On this BARE It All Coffee Talk episode , Stephanie sits down with Sarah and Dan to share their journey with Biliary Atresia. They open up about their experience raising a child who’s had a Kasai procedure and offers insight into the emotional and physical challenges of navigating such a medical journey. Tune in to hear about their unique perspectives on this life-changing experience from mom and...

On this episode of  BARE It All Coffee Talk , host Stephanie welcomes her oldest daughter, Alexis. Together, they explore the impact of biliary atresia on siblings and what has helped them cope. The entire family faces the challenges of BA, each in their own way, but, Alexis reflects on how, 11 years after her sister’s diagnosis, she has cherished memories—even amidst the difficulties.  If you or...

On this episode of  BARE It All Coffee Talk , host Stephanie is joined by Brandi to discuss their journey with Biliary Atresia. They candidly share their experiences, including the challenges and triumphs along the way. If you've faced complications or want to understand this condition better, this is an episode you won't want to miss! If you or someone you know has experience with biliary...

On this episode of  BARE It All Coffee Talk , host Stephanie is joined by President Jen for an insightful discussion about COTA (Children's Organ Transplant Association). They chat with COTA President Rick and two families who have benefited from COTA’s support. Please tune in to hear their personal medical journeys and discover how COTA has made a difference in their lives. If you or someone...

In this episode of BARE It All Coffee Talk, Stephanie sits down with fellow board member Maria to explore the crucial role of advocacy in the biliary atresia journey. Whether you're a parent or a patient, effective advocacy can significantly impact your medical experience. Join us as we share our insights and experiences to support and guide others on their journeys. The incidence of biliary a...

Join us in this emotional episode of BARE It All, Coffee Talk, as we sit down with Aaron to hear his poignant journey with biliary atresia and transplant. Aaron bravely shares the challenges and triumphs of living with biliary atresia as an adult, offering a candid look into his life. The incidence of biliary atresia is  approximately one in 10,000 children , with the disease being more common in...

Join us in this episode of BARE It All, Coffee Talk, as we sit down with Jenna to delve into her son Alex’s journey with biliary atresia and transplant. Jenna bravely shares the challenges and complications Alex faced post-transplant, offering listeners a glimpse into their daily lives and resilience. The incidence of biliary atresia is  approximately one in 10,000 children , with the disease bein...

Join Stephanie and Maria as they delve into the crucial topic of newborn screenings with special guests Anna Grantham and Aman Dhami-Judge. Their insightful conversation sets the stage for the upcoming BARE 2024 Symposium, where experts will further explore this vital aspect of infant health. To learn more about Hunter’s Hope and their mission, visit their website here or connect with them on Face...

Samantha shares Kendyl's inspiring Biliary Atresia story and how the disease impacted their lives.

Stephanie & Jen have a coffee talk discussion about the upcoming 2024 Bare Symposium which will be hosted at Stanford in Palo Alto, CA on May 10th and 11th.

In this episode, we chat with Dr Mogul about itching and BA. Connect with us: ⁠⁠Bare Inc.⁠⁠ ⁠⁠Instagram⁠⁠ ⁠⁠X - Twitter⁠⁠ ⁠⁠Facebook⁠⁠ If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to less...

In this episode, we will be discussing Will's Biliary Atresia story. Connect with us: ⁠⁠Bare Inc.⁠⁠ ⁠⁠Instagram⁠⁠ ⁠⁠X - Twitter⁠⁠ ⁠⁠Facebook⁠⁠ If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with fami...

In this episode, we will be discussing Stevie's Biliary Atresia story. Connect with us: ⁠⁠Bare Inc.⁠⁠ ⁠⁠Instagram⁠⁠ ⁠⁠X - Twitter⁠⁠ ⁠⁠Facebook⁠⁠ If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with fa...

In this episode, we will be discussing Caleb’s Biliary Atresia story. Connect with us: ⁠⁠Bare Inc.⁠⁠ ⁠⁠Instagram⁠⁠ ⁠⁠X - Twitter⁠⁠ ⁠⁠Facebook⁠⁠ If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with familie...

In this episode, we talk with Dr. Ahmad Anouti. Connect with us: ⁠Bare Inc.⁠ ⁠Instagram⁠ ⁠X - Twitter⁠ ⁠Facebook⁠ If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burd...

Jordan and Steph discuss some topics pertaining to their B.A. journeys like only child vs. multiple siblings, guilt, depression, and a few more! Connect with us: Bare Inc. Instagram X - Twitter Facebook If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your fa...

Jen and Jordan talk with Lorraine Stiehl, CEO of the American Liver Foundation. If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and...

Interview with local OPO.

Jen and Jordan discuss friendships before, during, and after their child's transplant.

In the fifth episode of our Story Series, we focus on two people: Ezra's journey from diagnosis to Kasai and Jennafer, Ezra's mom, who while treating Ezra was diagnosed with stage 4 metastatic breast cancer. Jannafer talks about her journey with Ezra as being the caregiver and how it shifted when she learned she was sick. this episode also provides an honest prospective about life from the...

The fourth episode of the Story Series provides a perspective not always seen in BA - Will not requiring a liver transplant until he was 12. We talk with Amanda and Dan, Will's parents, about their experience with Will's diagnosis and the social and emotional aspects of raising a child and pre-teen who eventually required a transplant. Dan, Will's father, talk about his experience as W...