Bare inc

BARE IT ALL

Health EN ↓ 35 episodes

BARE IT ALL is about the GOOD, the BAD, and the UGLY parts of Biliary Atresia and we discuss some of the most vulnerable experiences patients & caregivers go through. If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, please contact us at contactus@bareinc.org. Let's amplify our voices and foster understanding together.

Author

Bare inc

Episodes

DLM - The Story Series: Connor's Journey 12.04.2023 59:34

In our third episode of The Story Series, we speak with Natalie, the mom of Connor. Natalie talks about Connor's diagnosis, balancing major life choices at the same time as Connor's diagnosis and what life looks like as a mom to a kasai-only BA child. Natalie provides an optimistic and real perspective to the milestones in her and her family's life.

DLM - The Story Series: Meet Briggs 07.04.2023 41:33

In the second episode of BARE's Story Series, we meet Briggs' mom, Brittany. Brittany talks about her experience with Briggs' BA diagnosis as well as his first, second and THIRD liver transplant. We explore the long-term impact organ donation has had on their family's life. In honor of Donate Life Month, BARE explores different organ donation journeys.

DLM - The Story Series: Sophia's Journey 04.04.2023 51:02

In honor of Donate Life Month, BARE explores different organ donation journeys. In our first episode of the Story Series, Jen talks to Stephanie and Arvid Skrede about the BA journey with their youngest daughter, Sophia. Music this episode courtesy of Michael Kobrin - The Introvert.

004 - I'm Fine 13.03.2023 52:28

A discussion about mental health in the BA community with BARE's partner Liver Mommas! Music clips - I'm Fine by Ashe - All I Really Want by Alanis Morissette Book reference: The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma by Bessel van der Kolk M.D. - https://www.amazon.com/Body-Keeps-Score-Healing-Trauma/dp/0143127748

003 - Living with Biliary Atresia 13.03.2023 55:26

Jordan and Jen talk with Jenny Tice about her journey with BA and transplant as an adult. 

006 - Love and Marriage 13.03.2023 59:03

Jen and Jordan discuss love and marriage and how going through a pediatric liver transplant affected both, with special guest Morgan Hill. If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew are looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to le...

007 - Center Rankings: What’s the Deal With Them? 03.03.2023 36:00

BARE's Jen and Jordan discuss center rankings with Dr Saeed Mohammad and Riccardo Superina from the BARE Medical Advisory Committee

005 - Bare & Transplant Families 07.12.2022 29:20

Music by AudioCoffee from Pixabay Links mentioned in this episode: Website: transplantfamilies.org Twitter:    twitter.com/transplantfams Facebook:   facebook.com/transplantfamilies Instagram:   instagram.com/transplantfamilies YouTube:   youtube.com/user/TransplantFamilies LinkedIn:   linkedin.com/company/transplant-families Pinterest:   pinterest.com/transplant...

002 - Being a COTA Family 12.10.2022 1:11:17

This episode talks about the resources available to Biliary Atresia families through COTA- Children's Organ Transplant Association and how they have helped many families go through the BA to transplant journey.

001 - We Introduce BARE IT ALL! 11.10.2022 4:25

This is BARE's first episode of season 1 and Jordan and Jen explain briefly why they wanted to start a podcast and what's in store for their listeners.