HypoPara Unscripted

What makes specialty pharmacy so special? In this episode of HypoPara Unscripted, Patty speaks with Katie Gillick, patient advocate at Orsini Specialty Pharmacy living with HypoPara, and pharmacist Michelle Hamblin to show us how they get the only FDA approved HypoPara treatment in the hands of patients.  Together, Katie and Michelle tell us how specialty pharmacies are different from retail drug...

In honor of World Hypopara Day, Patty sits down with patient advocate and award-winning author Heather Novak for an inspiring conversation about finding purpose while living with the challenges of a rare disease. Heather shares her remarkable journey as a teenager with unexplained broken bones to a diagnosis of hyperparathyroidism, until after she had surgery, when she woke up with hypoparathyroid...

In this episode of Hypopara Unscripted, Patty welcomes a cast of characters; three inspiring women who share how hypoparathyroidism brought them together and changed their lives forever.  If you have ever felt alone in your diagnosis, this episode is a reminder that through the power of friendship and connection you are not. From shocking diagnoses to a true sisterhood; Liz, Chrissy, and Lisa’s bo...

In this second episode of HypoPara Unscripted, Patty talks with expert Dr. Rubin about all things hypopara. From the “SHINE” study (a research history examination of participating hypopara patients), to the real-life challenges patients live with every day, Dr. Rubin explains the effects hypopara has on bone health, brain fog, fatigue, and cognitive function. Join Patty and Dr. Rubin as she encour...

In this premiere episode of HypoPara Unscripted, your host Patty Keating, Executive Director of the Hypoparathyroidism Association as well as a post-surgical hypopara patient herself, talks with world-renowned endocrinologist Dr. Michael Mannstadt. Together, they uncover how hypoparathyroidism care has evolved, the breakthroughs in genetics, PTH therapy improvements and why validation and respect...