HypoPara Unscripted

In this episode of HypoPara Unscripted, Patty sits down for a gripping conversation with industry veteran Stewart Hallett to speak about the difference between biotech and big pharma. Thanks to his notable experience, Stewart reveals the complex journey of drug development, how clinical trials work, as well as the billions in cost and just how long it takes to successfully bring a drug to market....

What happens when a surgery described as “routine” changes your life? For Megan, thyroid removal led to hypoparathyroidism and left her with severe hypocalcemia, exhaustion, anxiety, cognitive struggles and pain, not to mention years of trying to get doctors to understand what had happened to her. In this episode of Hypopara Unscripted, Megan gets real about the hardest parts of living with hypopa...

What if doctors told you the difficult symptoms you had been experiencing for 28 years was just…anxiety.  Only to finally uncover that you were actually living with a rare, genetic, life-threatening disease? For years, Debz fought for answers while her body fought to survive. She endured countless hospitalizations, heartbreaking setbacks and still to this day lives with the constant fear that the...

What makes specialty pharmacy so special? In this episode of HypoPara Unscripted, Patty speaks with Katie Gillick, patient advocate at Orsini Specialty Pharmacy living with HypoPara, and pharmacist Michelle Hamblin to show us how they get the only FDA approved HypoPara treatment in the hands of patients.  Together, Katie and Michelle tell us how specialty pharmacies are different from retail drug...

In honor of World Hypopara Day, Patty sits down with patient advocate and award-winning author Heather Novak for an inspiring conversation about finding purpose while living with the challenges of a rare disease. Heather shares her remarkable journey as a teenager with unexplained broken bones to a diagnosis of hyperparathyroidism, until after she had surgery, when she woke up with hypoparathyroid...

In this episode of Hypopara Unscripted, Patty welcomes a cast of characters; three inspiring women who share how hypoparathyroidism brought them together and changed their lives forever.  If you have ever felt alone in your diagnosis, this episode is a reminder that through the power of friendship and connection you are not. From shocking diagnoses to a true sisterhood; Liz, Chrissy, and Lisa’s bo...

In this second episode of HypoPara Unscripted, Patty talks with expert Dr. Rubin about all things hypopara. From the “SHINE” study (a research history examination of participating hypopara patients), to the real-life challenges patients live with every day, Dr. Rubin explains the effects hypopara has on bone health, brain fog, fatigue, and cognitive function. Join Patty and Dr. Rubin as she encour...

In this premiere episode of HypoPara Unscripted, your host Patty Keating, Executive Director of the Hypoparathyroidism Association as well as a post-surgical hypopara patient herself, talks with world-renowned endocrinologist Dr. Michael Mannstadt. Together, they uncover how hypoparathyroidism care has evolved, the breakthroughs in genetics, PTH therapy improvements and why validation and respect...