Tom's Hirschsprung's Podcast

A special AMA episode, where I answer your questions that have been sent in over the last couple of weeks. 12 questions will be answered from a variety of people on all manner of different topics. Please feel free to send more questions on Instagram or Facebook by finding me @toms_hirschsprungs_podcast or email me on tomshirschsprungspodcast@gmail.com

In the first Mother/Son podcast episode, I am joined by Nicole and Benjamin Perry, Nicole talks about the ups and downs of hospital life as well as the 22 months wait for Benjamin's HD diagnosis. Benjamin and I discuss the differences between life as an HD child, 20 years apart, and how his experiences differ from mine, he will also talk about his own advocacy journey and how he's determined to he...

In this weeks episode I am joined by Lauren Wood as she shares her story about life with Hirschsprung's disease as well as how her stoma saved her life. We talk extensively about Lauren's raising awareness for invisible illnesses and disabilities, as well as Lauren's many conditions as well as Hirschsprung's including; Mega Colon, Colonic Inertia, Dysmotility and Whole Gut Slow Transit. Lauren tal...

Endometriosis will be the main topic of discussion for this episode as Rebecca talks to me about her condition and the 10 year wait for a diagnosis! Rebecca tells her brave story of having to advocate for herself over and over until being eventually diagnosed with Endo in July 2023. We also discuss our mutual love of dogs as well as Rebecca's media work, having her story shared across multiple new...

A very special episode of the podcast sees actor and TV star, Zoe Colletti, joins me to talk about her life with Hirschsprung's disease as well as her phenomenal acting career. We start Zoe's story talking about her HD diagnosis, and how a medical error left her with far more complications than necessary. The conversation also moves on to how important her mother Cheryl has been in supporting her...

For this weeks episode I talk to the 'Hirschsprung's Aware Bears' founder Lori, who chats to me about her experiences with her daughter Alexis, who has Hirschsprung's disease. We discuss Alexis's diagnosis and how far medical advancements have evolved since 1986, we talk through her journey from the difficult early days to her life as a happy, successful mother of 3. In the second half of the epis...

As Tom's Hirschsprung's Podcast reaches the big 3 0, I have my first ever returning guest as Laura O'Reilly joins me once again with her coach Dan from AAO. In this episode we will discuss the recent Tough Mudder that both Laura and Dan completed, as well as Dan's journey from diagnosis of Crohn's disease in the army, to how he developed his thriving online fitness business. Laura talks about what...

This week I chat with Hirschsprung's awareness month founder Stef Little, Stef also created 'Kicking Hirschsprung's Disease In The Ass' Facebook page that now has around 3000 followers. As well as being an entrepreneur, Stef and her daughter Sam also have Hirschsprung's disease and we talk about how all of this came to be. Stef's has not let her 146 surgeries hold her back as we talk about her and...

A very special episode of Tom's Hirschsprung's podcast as Emmerdale and Hotel Portofino star Louis Healy joins us to talk about being diagnosed with Hirschsprung's disease as well as his incredible acting career. Louis talks about the fantastic care that he received at Alder Hey hospital, where his mum, Denise Welch, is now a patron. We also delve into his phenomenal stage and screen career to dat...

Episode 27 - With Nicky Kilpatrick  @nickykilpatrickcoach  - Out Thursday 11th July This Thursday sees the interview of wellness coach and host of the Bowel Chronicles podcast - Nicky Kilpatrick. We start Nicky's story around 2015, when she was preparing for a holiday - 24 hours later Nicky was in hospital, being diagnosed with an extra large bowel!- otherwise known as Megacolon. Nicky talks candi...

My guest this week, Loren, comes from Germany as I continue to scour the world looking for incredible Hirschsprung's related journey's - and this one was a real surprise!! We talk about Loren's story with the unusual twist that she was diagnosed with Hirschsprung's disease twice!! Loren is incredibly open about her diagnosis and shares her unique insight into her life with HD, whilst also wanting...

To mark a quarter century of episodes I interview the host of the Chronic Convos podcast, Ashley Yodkovik, about her life as a chronic health advocate with 10 autoimmune conditions. Ashley was diagnosed with Crohn's disease fairly recently, but is determined to become an incredible advocate for chronic conditions, through her experiences with her own conditions as well as job as a healthcare worke...

Vicky joins me to talk about her extraordinary fitness journey and how being diagnosed with Ulcerative Colitis in 2021 did not stop her from achieving her goals! We start the story with Vicky trying to find out everything she can about UC after her diagnosis, as well as taking inspiration from a previous THP guest @Laura.ibd.fitness . With the help of Dan @aao.crohns Vicky has been documenting her...

In this weeks episode I talk to Dennis about how he overcame his personal demons to help motivate other people with IBD and UC. We also talk tattoos and the fascinating story behind each one of Dennis's 5 works of ink, as well as why he decided to post motivational content. Dennis is taking part in a 42km obstacle course in September, we chat about how his training is going and what he's looking f...

To kick off the month of June I talk to the fascinating Amy Green, as she bravely talks about her medical journey from all aspects, not just physically, but mentally and emotionally too. We start the story at the night of Amy's senior prom, when she first discovered her illness, but like many, thought her symptoms would clear up after a couple of days - unfortunately this was not the case. Join us...

Episode 21 sees me interview Kyle Willmington, who is a healthy lifestyle and disability advocate. Kyle was born with a very rare condition called Charcot Marie Tooth disease and epitomises the spirit of the podcast by refusing to let his condition define him. We discuss Kyle's determination to succeed as an entrepreneur, through his various self-made businesses as well as his fitness journey. His...

In this weeks episode I chat with Chris about his coaching business, Chris is a certified health coach, where he specialises in helping people with IBD to get their lives back on track. We talk about his coaching philosophies, and why he believes that helping people via a full 360 degree approach is the best way to long term success. As a person with IBD himself, his mission is to inspire those na...

In part 2 we will discuss the formation, and continued success of  @reach_hd  Canada, including the highly acclaimed and much celebrated  @thevanityparty In 2019  @swishproductionswpg  and  @jaguar  hosted  #TheVanityParty  , they raised over $30000 for  @reach_hd  Canada to improve the lives of children and families affected by  #hirschsprungsdisease  , and one day to hopefully find a cure. Pleas...

In the first of a 2 part episode I have a fascinating chat with Liz about how she became involved in the charity, through her sons  #hirschsprungsdisease  diagnosis. Liz has been raising awareness of  #hirschsprungsdisease  for well over 15 years as well as organising charity events, with the help of her modelling company  @swishmodels . Along with Liz, the  @reach_hd  charity has 5 other board me...

In this weeks episode I talk to the brilliant Laura O'Reilly @Laura_ibd_and_me_ ,who recently hosted @keepingupwiththegowls podcast, about all things IBD and fitness. Listen through Laura's journey from someone who would have run a mile from the gym (her own words!) to a fitness inspiration for people with IBD. Follow Laura on Instagram - @Laura_ibd_and_me_ Follow Tom's Hirschsprungs Podcast on In...

EPISODE 16 - WITH PATRICK BELTON  @theostomyathlete This week I chat with Patrick about his incredible journey of overcoming challenges and achieving incredible mountaineering endeavours. Patrick shares his inspirational story from his diagnosis in his teens all the way through to forming his mountaineering team, with 3 more exceptional ostomy athletes from the UK, US and Canada. Along the way we...

EPISODE 15 - WITH MELISSA JONES - OUT NOW!!! My guest this week is Melissa Jones, Melissa runs the very popular  @facebook  page 'Hirschsprung's Disease family support UK' Melissa is also the mum of Mia, who has Hirschsprung's disease, and we go through Mia's exceptional story, as well as being the inspiration behind the  @facebook  group. We also chat about the  @facebook  page, how and why it wa...

My guest this week is Melissa Jones, Melissa runs the very popular Facebook page 'Hirschsprung's Disease family support UK' Melissa is also the mum of Mia, who has Hirschsprung's disease, and we go through Mia's exceptional story, as well as being the inspiration behind the Facebook group. We also chat about the Facebook page, how and why it was set up, as well as hopes for the group in the future...

In this weeks episode I speak with professional golfer Andy Browne, where he talks about his incredible journey through being a professional sportsman with Ulcerative Colitis and Crohns. Andy's story of resilience and perseverance is one great inspiration, and I really hope you enjoy the show when it releases later this week. We chat about his medical and sporting life up until now, as well his ho...

In this special episode I take a look back on the short life of Tom's Hirschsprung's Podcast as well as giving an idea of the schedule and guests in the coming weeks/months. It may be a bit early to start reviewing something that is only a matter of months old, but I didn't want anyone to be episode 13, so I've called this one 12A and the next episode, with Andy Browne, releasing on Thursday 11th...