Tom's Hirschsprung's Podcast

In this episode we chat about Katie's sons Hirschsprung's story. We start with Katie, who was diagnosed at birth with PKU which affects 1 in 10,000 people and made her pregnancy high risk. After her son was born, Katie had an unfortunate time with misleading care, which led to confusion and increased anxiety. Later in the episode we talk about how having a community and support around can really h...

A very moving and varied Hirschsprung's journey, as Andrea shares all about her son's Total Colonic Hirschsprung's. During the episode Andrea talks about the complexities of having a child with a weakened immune system and how she navigates public places to give him the most 'normal' life possible. Follow Andrea - @ andrearguse

Jodie talks about her son Ollie, who has long segment Hirschsprung's Disease. In this episode we talk about plenty of challenges that Ollie has faced over the last 10 years, including multiple bouts of enterocolitis and stoma issues. Later on we talk about how Ollie is getting on with his ACE stoma and how it has improved his quality of life. Follow Jodie - @ jodie_mulrainey28

An episode full of twists and turns awaits, as Stephanie joins me to talk about her daughter with Total Colonic Hirschsprung's Disease, this is most certainly not a straightforward case. In this episode we discuss the power of faith to get through difficult moments , as well how a supportive community is incredibly beneficial. Enjoy the episode

Today Zandra and I chat about her son, who as well as having Hirschsprung’s Disease was also diagnosed with Autism, Epilepsy and having a genetic mutation with EEF1A2.A very hectic journey, including multiple different hospitals and procedures, ultimately ending in the colostomy that has significantly maintained Zacari's quality of life. Enjoy the episode

Hirschsprung's Disease UK Trustee, Laura joins me to talk about her daughter's Total Colonic Hirschsprung's. Originally thought to be short segment, until the biopsy found just a few centimetres of colon with living ganglion cells, we talk through the ups and downs of surgery, as well as 2 bouts of enterocolitis. Finally Laura talks about the incredibly important topic of parental mental health, a...

This week Bekki talks to me about her 2 year old son and his Hirschsprung's diagnosis. In this episode we discuss preparing for surgeries, from both the parental and child point of view as well as how stomas can affect the body ability to retain water. Please enjoy the episode!

Actor, broadcaster and national icon Denise Welch joins me to talk about her son Louis' Hirschsprung's journey in depth for the first time! Listen to Denise's thoughts and feelings from her severe post-natal depression and psychosis, to being one of the most loved and respected personalities in the country. This story is full of incredible highs and lows when it comes to Hirschsprung's, and a huge...

Sadie talks about her 5 month old daughter and her experience with Total Colonic Hirschsprung's Disease. Whilst the likelihood of Hirschsprung's was initialised dismissed , although the classic symptoms were present, a hospital in London (Ontorio) confirmed this as TCHD.Later in the episode we talk about the future for Sophia and the funding needed to see Dr Wood for her pull through operation. To...

This week I am joined by 2 guests as Lauren and Kieran talk about their 3 year old son Freddie, and his journey with Hirschsprung's. Lauren talks through Freddie's 3 surgeries and Kieran talks about stoma care, as they both share their thoughts over the last 3 years. Enjoy the episode!

World renowned composer and BAFTA award winner Paul joins me to talk about his daughters experience with Hirschsprung's. Later in the episode we talk about Paul's incredible kilt walking exploits over the last 13 years, stay tuned to listen to how Paul achieved 'The Big One' in memory of his friend Aidan. Enjoy the episode! Follow Paul - @paulleonardmorgan

Just 5 1/2 months after giving birth to her fourth child, Ann-Marie joins me to talk about her sons journey so far with Hirschsprung's. We go through the last 5 1/2 months, with helicopter rides, thunderstorms and a sea of emotions, as Ann-Marie shares her thoughts on that time. Later in the episode Ann-Marie shares some tips and tricks that have worked for her son Christopher when it comes to die...

Bria chats to me about her 3 year old son and his story with Hirschsprung's. Having had one child already, Bria and her family had no idea that Hirschsprung's existed as we talk through procedures and the pull-through surgery. Later in the episode Bria talks about her informative TikTok's explaining various points on Hirschsprung's Disease and how this has helped families from all over the world....

Musician and Composer Tony talks about his life with a variety of conditions, including Hirschsprung's. Having interviewed Tony's brother James, we discover that both men's lives have been very different, with Tony also being lactose intolerant, having type 1 diabetes and Hashimoto's disease. We also chat about Tony's accomplishments in music, as well as what he's currently working on. Follow Tony...

A tricky and emotional episode as Shakeyra tells her story with Hirschsprung's from the beginning. Towards the end we talk about what good days and bad days look like for Shakeyra and her Hirschsprung's. Follow Shakeyra - @shakeyraloving_life24

Today I chat with Ben Jevans and Georgina Merckel to make a special announcement regarding a Hirschsprung's event on Saturday 4th July 2026. Listen to find out what it is and all the details. Ticket link:- https://www.ucl.ac.uk/population-health-sciences/events/2026/jul/ucl-hirschsprung-disease-awareness-day HD study discussed in the episode:- https://fg.bmj.com/content/early/2026/01/02/flgastro-2...

Not only was Jack diagnosed with Hirschsprung's Disease, (a 1 in 5000 chance) he was also diagnosed earlier with Duodenal Atresia (a 1 in 6000 chance) thus making one of the rarest combinations ever seen on the podcast. Annalise talks through Jack's story, including his very premature birth and delayed diagnosis, whilst Annalise later talks about how he is thriving now. Follow Annalise - @annalise...

An extraordinary story unfolds as 24 year-old Hana wasn't diagnosed with Hirschsprung's until 22 years of age, having gone through many years of frustration and gaslighting. We also chat about ostomy surgery and how Hana's life has improved since the operation 2 years ago.

Charli tells the story of her 3 year old son with Hirschsprung's, with a difficult initial diagnosis, but a positive look towards the future. Despite a hospital mix-up, and being told that Hirschsprung's was 99% not in Teddy's future, Charli advocated hard and listened to her motherly instincts to make sure she had the right outcome for her child. Enjoy the episode. Follow Charli - @charli_warrine...

Hannah joins me to talk about her 5 month old son Oliver and his story with Hirschsprung's. With no family history of Hirschsprung's, the diagnosis obviously came as a shock, especially with a bout of Enterocolitis in January. Hannah also explains her thoughts and feeling on surgery as well as what's next for the future.

James is an Actor and Screenwriter from LA, who shares his incredibly raw and honest account of his life with Hirschsprung's from the very start. With over 20 surgeries before the age of 6 as well as his older brother having Hirschsprung's, James mentions how this affected him in later life as we discuss the mental impact of the condition. Please enjoy the episode

In this episode myself, Faye and Elle will talk about the new parent support group, specific to Hirschsprung's that's coming soon We will discuss:-- What is the parent support group- How did it all come about- How is it going to work Please enjoy the episode

After having 3 children, Kayleigh knew something wasn't quite right when her 4th child Micah, hadn't passed meconium. Kayleigh alerted the doctors at her local hospital before being moved to the specialist hospital, Alder Hey. Kayleigh talks about her emotions before, during and after the procedures as well as what signs to look for if you suspect that your child has Hirschsprung's. Finally we tal...

After giving birth just 11 weeks ago, Sarah joins me to talk about the whirlwind of the last few months! Sarah is also a Nurse Practitioner, specialising in gastroenterology, so comes at the subject of being a mum with a Hirschsprung's child from a unique perspective. With Leo's surgery in a couple of weeks, Sarah talks about her anxiety as a new mum preparing for his pull-through.

Emily tells the story of her 5 1/2 year old son, who is also a twin, and his journey with Hirschsprung's Disease. We talk about the late diagnosis, and how parental instinct kicked in when Emily and her husband realised something wasn't quite right. A difficult experience with salmonella a few months ago kept Leo in hospital for 5 days as Emily recounts how difficult this was for her twins. Please...