Tom's Hirschsprung's Podcast

Gemma and Carl discuss 3 generations of Hirschpsrung's with a surprise genetic twist! Carl, Gemma and Gemma's daughter Jessica all have Long Segment Hirschsprung's despite Gemma being the oldest of 6 children and Jessica being the youngest of 3.They talk about their lives and how Hirschsprung's has affected them in different ways. Follow Gemma:- @nelliesartist

I'm joined by Anna, this time from America. Anna talks through her son's journey with short segment Hirschsprung's Disease and we cover a wide range of topics throughout the hour + long episode. Topics will include:-- Mothers intuition- Seeking quality care- Different treatment paths- The importance of community support Please enjoy the episode Follow Anna - @themosthopelesstourguide

Starting straight from the of the last episode, when Amy's daughter had her stoma fitted we talk about how stoma care differs from country to country. With the first 6 months being incredibly difficult Amy discusses how important having a support system is whilst abroad, Amy uses her knowledge as well as her medical friends and family to achieve the best outcome for her daughter. Please enjoy the...

China is our next stop as I chat with Amy all about her daughter's diagnosis of Hirschsprung's Disease from Zambia to China via the UK. From doctors being puzzled as to what might be wrong to having to adjust to the Zambian healthcare system, this two part special goes through a variety of situations. Please enjoy the episode Follow Amy - @lifeofamy34

In todays episode, conducted from the hospital room, Kaitlyn chats to me about her 5 year old daughter, including topics such as diet, Hirschsprung's resources, procedures and parental health. Kaitlyn explains the journey that her family have been on as well as sharing a wider perspective on their Hirschsprung's experience, both positive and negative. Please enjoy the episode Follow KaitlynTikTok...

Libby shares the story of her 2 year old daughter with Hirschsprung's from the very start. We begin with Libby being discharged from hospital with her daughter, despite Darla not passing her meconium and having coughed up green bile (classic signs of Hirschsprung's). Thankfully a visiting midwife became her saviour as she was transferred to a specialist hospital (Alder Hey), where her daughter cou...

With no family of Hirschsprung's, Taylor discusses her journey so far about her son Bowen, who is 7 months old. Bowen was diagnosed with Hirschsprung's despite passing his meconium at 3 weeks old. Taylor talks through the story from her own point of view as well as sharing handy hints and tips on TikTok. Later on we talk about how well Bowen is progressing and Taylor's thoughts on the future. Plea...

In this episode we follow on from last week, where we talked about the new Hirschsprung's website, www.hirschsprungsdisease.co.uk and how this all came to be. Later on Georgina gives us an update on her son Ffredi, as well as some valuable hints and tips that she has learnt so far. Follow Georgina - @livewithgeorgina

Nearly 7 months after her last appearance, Georgina talks to me about her exciting new project - a UK dedicated Hirschsprung's website! In the first half of the 2 part special we delve into the stats and current research surrounding Hirschsprung's, especially in the UK as well as interesting studies taking place including HAWAII, BEACH and ALOHA. Tune in next week for part 2. Follow Georgina - @li...

Actor and personal trainer, Ollie chats to me about how his career is going as well as some funny stories along the way. Ollie was diagnosed with short segment Hirschsprung's Disease and has had 5 surgeries, but he was determined that this would not stop him from pursuing his acting dreams. Later on we chat about scars and body confidence as Ollie has recently taken part in his own photoshoot, to...

In the second part of my chat with Ashley, we talk about the somatic energy in relation to Hirschsprung's and how attunement plays a vital role in the relationship between a parent and child. Ashley is a qualified level 2 Reiki instructor as well as a Somatic Practitioner, having taken inspiration from her son Milo, and she shares the knowledge she has gained since his Hirschsprung's/Downs Syndrom...

Ashley chats about her son, Milo and his dual diagnosis of Hirschsprung's and Downs Syndrome, as well as some handy tips when it comes to performing enemas, belly massages and irrigations. Part 2 coming soon. Follow Ashley - @somaticmagicmama

*****Trigger warning - contains suicide*****Rebecca recounts her daughter's story with long segment Hirschsprung's disease as well as the 7 MLB's, 3 intestinal surgeries and 6 central line placements that Valerie has had. From around 34 mins - 42 mins we talk about Rebecca's late husband and the danger of misinformation in the medical world. Rebecca also shares her positive thoughts on Valerie's f...

This week we take another trip to Australia as Lila discusses her experience of being a Hirschsprung's mum with a 14 month old son. With no family history of HD and being a mum to two children already, Lila talks openly around the feelings and concerns of her son's diagnosis. Lila talks in detail around the importance of the connection to her children and how attunement has played a huge role in h...

Tash is back to talk about some important subjects the lifestyle that we didn't get time to chat about on the last episode. Topics that we cover today will be; how life is now for Tyler and Casey, travelling to America and South Africa with a stoma and how being prepared is one of the most essential parts of the process. Tash also talks about the incredible support she has received from her husban...

Following on from our 1st episode in mid-November Robyn joins me once again to give an update on her daughter Charlee, as we discuss her Ace Malone procedure that she had in December. We start at the end of the last episode as Robyn and her husband were wrestling with the thoughts of whether to go ahead with the operation for their energetic 3 year old. Robyn discusses her candid feelings before,...

In this weeks edition of the show, I chat to Elle about her story with Hirschsprung's and how, as a women in her mid 20's, this has impacted her life both positively and negatively. We take a deep dive into the social and mental impact that a chronic illness can have, as well as how Elle was diagnosed with OCD at just 12 years old. Later on Elle talks about her ambitious plans for a 'buddy system'...

In the second part of my chat with Faye we talk about a variety of Hirschsprung's topics, including the impact it has had on Faye's life. In a more light-hearted segment, we talk about our mutual love of dogs and how important they have been in Faye's continued recovery. Please enjoy the episode! Follow Faye - @fayemond89

With a long and complicated medical history, Faye chats to me about how her epic journey with Hirschsprung's unfolded. An incredible story of mental and physical resilience, Faye also explains how important her family have been to her especially her mum and husband. Part 2 will be out next week. Please enjoy the episode Follow Faye on Instagram@fayemond89

For this episode I welcome back Laura, who gives the exclusive lowdown on her latest exciting business venture, as well a recap of an important IBD fitness event in London. Laura talks about how her condition led to a thirst for knowledge in how to improve her lifestyle, this has in turn led her towards this new stage in her life. Follow Laura - @laura.ibd.fitness Follow the show - @toms_hirschspr...

The first Ultra-short segment episode of the series as Anrie joins me to talk about her son's unusual diagnosis, and ultimately thriving journey. Based in South Africa, Anrie chats to me about how the nurses noticed her son's white forelock and the extraordinary journey as to how this lead to his diagnosis of Hirschsprung's disease - defiantly something I've never heard before. Please enjoy the ep...

Tash joins me to talk about her two sons who were both born with two very different types of Hirschsprung's, despite not having any family history. We follow the journey from the very beginning from Manchester hospital to Alder Hey, via Italy! - found out how this happened in the episode. Check out part 2, coming soon!!Enjoy the episode!!

The Co-Founder of REACH HD joins me to talk about how the charity started and why the dual diagnosis of Hirschsprung's and Downs Syndrome have a personal connection to her. Isabelle also chats about the two books that she has written as well as the charities ambassador programme. Please enjoy the episode Instagram links:- @reach_hd

In this episode myself and Tom's Hirschsprung's Podcast Co-Founder Louisa Shapton are joined by Megha, who only gave birth 6 WEEKS AGO!, to talk about her daughter's experience with Total Colonic Hirschsprung's. Megha explains the ups and downs so far, as well as how she is coping with the new routine. This story is a fascinating insight, in real time, into life as a Hirschsprung's mum. Please enj...

The author and founder of The Abilities In Me Foundation, Gemma Keir, shares her incredible journey with the charity from the very beginning. Gemma talks about her inspiration for starting the book series and how it has gone on to help people from all over the world, she also tells the story of how actor and broadcaster Denise Welch, became her patron! Buy the books here:- www.theabilitiesinme.com...