These Kids Can't Wait

In this episode of These Kids Can’t Wait, we hear Oliver’s story through the perspective of his mom as she shares their family’s journey navigating life with rare disease. From the challenges and uncertainty to the moments of strength, resilience, and hope, this conversation offers an honest look into the realities rare disease families face every day. Every story shared helps raise awareness, bui...

Episode 12: An Update from The Lost Enzyme Project The founders of The Lost Enzyme Project share the journey to develop a treatment for Beta-Mannosidosis—how far we’ve come and how far we still have to go. From early momentum to real progress, this episode offers a behind-the-scenes look at what it takes to move a rare disease treatment forward—the challenges, the milestones, and the urgency drivi...

🎙️ Hosts: Erin Hubbard 🎤 Guest: Nikki Mcintosh 📅 Release Date: 11/17/2025 🔬 Topic: RARE MAMAS-Empowering Strategies for Navigating Your Child’s Rare Disease Episode Overview In this episode of These Kids Can’t Wait , host Erin Hubbard speaks with Nikki McIntosh , author of Rare Mamas: Empowering Strategies for Navigating Your Child’s Rare Disease and creator of the Rare Mamas Rising podcast. Ni...

Episode 10 – Finding Strength in Community 🎙️ Hosts: Erin Hubbard 🎤 Guest: Cyndi Frank 📅 Release Date: 10/07/2025 🔬 Topic: Resilience, Advocacy, and Rare Disease Awareness 🎧 Episode Overview In this episode of These Kids Can’t Wait, host Erin Hubbard speaks with Cyndi Frank, a leading advocate in the Gaucher disease community. In recognition of Gaucher Disease Awareness Month, Cyndi shares her...

Episode 9: Turning Hope into Action 🎙️ Hosts: Erin Hubbard and Laurel Gregier 🎤 Guest: Kristin Andrus 📅 Release Date: 9/12/2025 🔬 Topic: Philanthropy, Family Values, and Building Stronger Communities Episode Overview In this episode of These Kids Can’t Wait, we sit down with Kristin Andrus—founder of Gathering for Impact, Sister Goods, and head of the Andrus Family Foundation. A passionate advo...

🎙️ Hosts: Erin Hubbard, Laurel Gregier, and Lorena Lomelin 🎤 Guest: Mathias Schmidt 📅 Release Date: 7/11/2025 🔬 Topic: Breaking the Blood-Brain Barrier, Compassionate Use, and the Power of Patient-Centered Innovation Episode Overview In this episode of These Kids Can’t Wait , we’re joined by Mathias Schmidt, President and CEO of Armagen and Executive Fellow at JCR Pharmaceuticals. With over 20...

🎙️ Hosts: Erin Hubbard 🎤 Guest: Dr. Candice Wood 📅 Release Date: 6/9/2025 🔬 Topic: Postpartum Mental Health, Holistic Women’s Care, Motherhood & Burnout, Supporting Rare Disease Families Episode Overview In this episode, we sit down with Dr. Candice Wood , OB-GYN and founder of Women Made Well , a practice dedicated to supporting women through both physical and emotional transitions. Dr. Wo...

🎙️ Hosts: Erin Hubbard and Laurel Gregier 🎤 Guest: Dr. Paul Orchard 📅 Release Date: 5/12/2025 🔬 Topic: Bone Marrow Transplants, Gene Therapy, and the Future of Rare Disease Treatment Episode Overview In this episode of These Kids Can’t Wait , we are joined by Dr. Paul Orchard, Medical Director of the Inherited Metabolic and Storage Disease Transplantation Program at the University of Minnesota....

Episode 5: A Deep Dive into Rare Disease Research: Part 2 🎙️ Hosts: Erin Hubbard, Laurel Gregier 🎤 Guest: Dr. Martin 📅 Release Date: 4/21/2025 🔬 Topic: Advancing Research for Beta-Mannosidosis Episode Overview In Part 2 of our conversation with Dr. Angela Martin, we are continuing our conversation on rare disease research. Building on our earlier discussion of enzyme replacement therapy and the...

🎙️ Hosts : Erin Hubbard and Laurel Gregier 🎤 Guest : Dr. Angela Martin 📅 Release Date : 4/8/2025 🔬 Topic : Understanding Beta-Mannosidosis and the Innovation Behind Enzyme Replacement Therapy Episode Overview In this episode of These Kids Can’t Wait , hosts Erin Hubbard and Laurel Gregier are joined by Dr. Angela Martin, a postdoctoral researcher at the Kimonis Laboratory and a vital force in T...

🎙️ Host: Erin Hubbard 🎤 Guest: Sarah Forsman 📅 Release Date : 2/28/2025 🔬 Topic : Life with Alpha-Mannosidosis and the Impact of Early Treatment Episode Overview In this episode of These Kids Can’t Wait , host Erin Hubbard speaks with Sarah Forsman , a patient living with Alpha-Mannosidosis . Sarah shares her personal journey, including undergoing a bone marrow transplant at the age of four , a...

🎙️ Hosts: Lorena Lomelin and Phoebe Wang 🎤 Guest: Dr. Virginia Kimonis 📅 Release Date: 2/28/2025 🔬 Topic: A deep dive into rare disease research. Episode Summary: In this episode of These Kids Can’t Wait , hosts Lorena Lomelin and Phoebe Wang sits down with Dr. Virginia Kimonis , a nationally renowned expert in genetics and clinical biochemical genetics, to discuss her groundbreaking work on Be...

🎙️ Hosts: Erin Hubbard, Laurel Gregier, and Lorena Lomelin 📅 Release Date: 2/28/2025 🔬 Topic: Story Behind the Lost Enzyme Project Episode Overview In this inaugural episode of These Kids Can’t Wait , we are joined by the co-founders of The Lost Enzyme Project —Erin Hubbard, Laurel Gregier, and Lorena Lomelin. As parents of children affected by ultra-rare lysosomal storage disorders, they share...