IVI

The Value Brief

Health EN ↓ 8 episodes

Dedicated to advancing patient-centered outcomes, healthcare equity, and transparency in value-based care. Through conversations with healthcare leaders, researchers, and patient advocates, we explore how innovative strategies and collaborative efforts can drive meaningful change in healthcare decision-making. Each episode tackles issues like ensuring fair access to care, improving transparency in healthcare research, and amplifying patient voices. By sharing expert insights and real-world applications, The Value Brief fosters critical discussions that shape the future of healthcare.

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IVI

Episodes

Patients as Partners: Improving Rare Disease Research Through Early Engagement 03.06.2026 27:12

What happens when patients are involved in research from the very beginning, not just as participants, but as partners? In this episode of The Value Brief , host Rick Chapman is joined by Mousumi Bose, PhD , Associate Professor at Montclair State University, and Kristie DeMarco , Founder and President of the Global DARE Foundation , to discuss why meaningful patient engagement is essential t...

Beyond Price: Centering Patients in Drug Pricing Reform 27.01.2026 30:14

Host: Tiffany Huth, Head of External Affairs, Center for Innovation & Value Research Guests: Maia Laing , Chief Policy Officer, SickCells Silas Martin , Head of Access & Policy Research, Johnson & Johnson Episode Summary This episode explores how drug pricing reform can move beyond price to better reflect patient-centered value . Recorded following the 2025 Fall Policy Summit , the dis...

AI in Rare Disease Research: The Power of Patient-Centered Co-Development 11.08.2025 31:31

In this episode, we explore how artificial intelligence (AI) is reshaping rare disease research, from speeding up diagnosis and improving data collection to guiding more effective treatment decisions. Guests Tricha Shivas (Foundation for Sarcoidosis Research) and Michael Hager (Ready, Aim, Innovate) share insights on the promise and pitfalls of AI in healthcare. They discuss genetic breakthroughs,...

Caregiving in America: Inspired by Bradley Cooper, Centering Voices and Solutions 10.07.2025 32:22

In this special episode of The Value Brief , released in tandem with the PBS documentary Caregiving , executive produced by Bradley Cooper, we spotlight the urgent and often overlooked challenges facing caregivers in the United States. Host Dr. Richard Chapman, Chief Science Officer at the Center for Innovation & Value Research , is joined by Sarita Edwards , President and CEO of the E.WE...

Urgency, Equity, and Engagement: Advancing Patient-Centered Value Research 05.05.2025 32:42

What does it truly mean to practice patient-centered research, and how can we ensure patient voices drive real healthcare change? In this episode of The Value Brief, host Larragem Raines, Director of Research at the Center for Innovation and Value Research, is joined by two leaders in the field: Dr. C. Daniel Mullins , Executive Director of the PATIENTS Program at the University of Maryland School...

Amplifying Patient Voices: The Future of Engagement 24.03.2025 28:32

Patient engagement is essential for better health outcomes, but what does authentic engagement look like? In this episode of The Value Brief , Swapna Kakani , co-founder, The Gutsy Perspective , and Greg Martin , Chief Officer, Engagement, Dissemination, and Implementation at Patient-Centered Outcomes Research Institute (PCORI ), share insights on breaking down barriers, fostering trust, and...

Breaking Barriers: Transforming Rare Disease Patient Engagement (Part 2) – Trust, Transparency, and Technology 03.03.2025 20:25

In this second part of our conversation with Adrian Kielhorn (Alexion, AstraZeneca Rare Disease) and Charlene Son Rigby (CEO of Global Genes ), we continue exploring the challenges and opportunities in rare disease patient engagement. This episode examines the role of pharmaceutical companies and healthcare providers in building trust, the importance of transparency, and the impact of real-wo...

Breaking Barriers: Transforming Rare Disease Patient Engagement 22.02.2025 21:03

This is Part 1 of a 2-part series exploring the challenges rare disease patients face in accessing care, influencing policy, and making their voices heard. In this episode, we explore how healthcare leaders, researchers, and advocates are working to break down barriers and build meaningful engagement strategies. Featuring insights from Adrian Kielhorn, a leader in economic research at Alexion, A...