The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength

In this episode, we have an insightful conversation with Kait, who lives with Miserable Malalignment Syndrome (MMS). Kait shares her journey with MMS, detailing the multiple surgeries she has undergone to alleviate the lifelong pain caused by the condition. She opens up about her shift from pushing through the pain to learning to listen to her body. Kait's story is one of strength and resilience,...

On this week's episode, Tina talks with Em West, all the way from Australia. Em details her story of being diagnosed of MS at the age of 19, her scary relapse that affected her vision, and how nutrition and exercise helped her manage her illness. Em also tells us how she got into only the 2nd trial of HSCT in the entire country. Has this treatment helped her? Well, you'll have to listen to find ou...

In this episode, we talked about our must have essentials for chronic illness. Some of these items we have tried, some of these items we can't wait to try. All these items are available at the link below and every item is a four-star item and above! Don't forget to like & subscribe. Follow us on Instagram and Facebook at SpoonFull of Strength Item List: https://1drv.ms/w/s! Ag8cYKv0DCY5u2jEt7olmki...

**THIS EPISODE CONTAINS DISCUSSION OF SENSITIVE SUBJECTS, SUCH AS SEXUAL ASSAULT, DOMESTIC VIOLENCE, SELF HARM AND SUICIDE. VIEWER DISCRETION IS ADVISED** In today's episode, we sit down with Kali from Puerto Rico to explore her profound mental health journey. Kali opens up about her experiences from childhood to the present, sharing the therapeutic steps and wellness practices that have helped he...

Today, we're diving into the world of mindfulness and meditation. Our expert, Tina, shares her journey, highlighting the incredible health benefits she's experienced. Tina will also tell us how meditation empowered her to climb Mt. Fuji, just three years after being diagnosed with cancer. We'll explore the distinctions between mindfulness and meditation and discover how dedicating just two minutes...

Today, we welcome Michelle Robinson from Northern Ireland. Michelle is living with PCD (Primary Ciliary Dyskinesia), a condition she was born with, that causes frequent colds and pneumonia . Her involvement in PCD Support UK allows her to advocate and help other people living with PCD. Follow her on Instagram here: https://www.instagram.com/michhrobinson/ Check out PCD UK's webpage for resources h...

Today, we talk about the process of getting the diagnosis. From tests, to mental effects , to the frustrations of communication with doctors, we cover it all. We also took a poll from Instagram, and you won't believe the results!

On today's episode, we speak with Steven Lopez, Sr. , who details his life living with Chiari Malformation and a CSF leak that cannot be found. He's turned his illness into advocating for his illness. He is organizing a walk for Chiari in Tampa, Florida. His positivity and strength is an inspiration! Here's how you can donate or join the walk: (Pick the Tampa location for Steven's walk) http://www...

On today's podcast, we talk about adjusting to your "new normal" after being diagnosed with a chronic illness. And, even adjusting to changes years into your illness once progression sneaks in. We speak about changing jobs, a social life that changes, and emotional challenges when your body is not able to do the things it used to. Follow us on Instagram at SpoonFull of Strength Shop at our Etsy sh...

Welcome to another episode of SpoonFull of Strength. Today, we are meeting Karissa Fox, who shares her ongoing battle with a CSF leak from a lumbar puncture. She was previously diagnosed with Chiari Malformation, the lumbar puncture was supposed to give her relief. It turned out to be devastating when the LP gave her a CSF leak that has dramatically changed her life. Listen to this episode to hear...

Today, we talk about all the ways we can support someone with a chronic illness. And, we invited Dawn, from Cards2Warriors in to talk about her wonderful organization that sends cards to spoonies, caregivers, family members, or healthcare workers. You can sign up to receive their happy mail here: (NO COST TO DO THIS) https://www.cards2warriors.org/ Click here to nominate someone (or yourself) in c...

Today, we have the pleasure of speaking with Gia Mora, a talented performer, producer, and climate-focused writer. Gia shares her extraordinary journey, starting with a childhood marked by frequent broken bones. For nearly 30 years, doctors dismissed her symptoms as "normal" before finally investigating further. Gia was diagnosed with Hypermobile Ehlers-Danlos Syndrome, and subsequent genetic test...

We have a guest this episode! Rachel's husband and Tina's brother, Ed, joins us today to talk about his role in Chronic Illness....being a spouse and caregiver. We talk about how Chronic Illness affects a marriage and how he uses his "PU method" helps him navigate the ups and downs of Chronic Illness.

This week, we sit down with Rocio, all the way from Madrid, Spain. She details her life, being diagnosed with Sjogren's at a young age and finding her way through pregnancy and miscarriage. Follow her on Instagram here: https://www.instagram.com/madreautoinmune/ Subscribe to her newsletter here and stay up to date on her life: https://madreautoinmune.substack.com/ @aesjogren Spanish Association of...

Today, we discuss the Myths and Misconceptions of Chronic Illness. We tackle our top 5 (We may have added a 6th one in at the end) myths and explain the truth to these misconceptions. We'd love to hear your feedback! Follow us on Instagram and Facebook at SpoonFull of Strength. Take a look at our Etsy shop, where you'll find trendy shirts, hoodies, mugs, candles and so much more1 Etsy Shop:: https...

Today, we have a wonderful guest on our show! Meet Mayra, a woman who, after almost 2 months of non-stop, excruciating electric zaps in her face, received a diagnosis of Trigeminal Neuralgia. She walks us through her story of Drs not listening and not ordering the test she needs to get her assumed Multiple Sclerosis diagnosis. Mayra will sure put a smile on her face because of her joy, her fight a...

In this week's episode, we do something we've NEVER done before. This episode is completely UNEDITED. We both experience cognitive issues with our illnesses and we bring you the real us...No edits here!. All of our UMMS, can't find the word, stumbling over our sentences...it's all there! MAKE SURE AND STAY TIL THE END WHERE WE COMPLETELY LOSE IT. We discuss cognitive changes: Why they happen, the...

In this episode we interview Christina Lisk. She details her life of chronic issues from a very young age and how she turned her illness into art through her writing. Christina spent many years battling pain, only to be diagnosed with Nutcracker Syndrome. She shares the surgery that corrected her Nutcracker and the possible diagnosis she is currently working through. Links to her wri Nothing Ever...

On this episode, we discuss working with Chronic Illness. We talk about managing a healthy work/life balance, revealing your diagnosis to your employer and share some stories of our working experience. Make sure to follow us on Instagram at: https://www.instagram.com/spoonfullofstrength/ Have questions about FMLA and ADA? Look here for more info (US info here): https://www.dol.gov/agencies/whd/fml...

On this week's episode, we interview Clarity Romero, a 23 year old woman from Melbourne, Australia, and learn about her experience being diagnosed with FND (Functional Neurological Disorder). We talk about the scary symptoms that brought her into the ER and her partner's advocacy that finally led to a diagnosis. Clarity has a YouTube channel where she talks about her diagnosis, as well as inspirin...

In this episode we talk about managing daily like with a chronic illness. We give you tips and tricks of things that have worked for us. Thank you to our Instagram followers, Lil_ms.vegan and if_u_cant_say_sth_nice for you r feedback in the episode! Links to apps discussed in the episode: Cara Cara: Food/Symptom tracker https://cara.care/en/global-app/ Tody: The Cleaning App: https://todyapp.com/...

In this BONUS episode, we get a chance to talk to Rachel. She shares her story with about getting a Type 1 Diabetes diagnoses at age 21 to a diagnosis of Multiple Sclerosis 6 years after first symptoms. She shares her progression with the disease and the muscle weakness that is un-diagnosed. Follow SpoonFull Of Strength on Instagram at: https://www.instagram.com/spoonfullofstrength/ View the Shop:...

Get to know Tina! Our co-host Tina recounts her experience with fibromyalgia and stage 4 cancer--cancer in which she was given a 14% survival rate after 2 years. She is currently 3 years NED (No evidence of Cancer). She shares how a stomach bug led to her diagnosis and how she's been able to stay positive throughout her treatment. Join us for a special BONUS episode this Thursday where the tables...

Welcome to our new podcast for the chronic illness community! We are Rachel and Tina, sisters both with multiple chronic issues. We want to create a community where we can learn and share informtaion. Some of our topics will include: Mental Health, Depression and Anxiety Being the Caregiver Tips for Managing Flare Days Interviewing People With Chronic Issues to Learn About Other Diseases Health, F...