The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength

We want to acknowledge that addiction can be difficult for some listeners. If you find it triggering, feel free to skip ahead to 41:30 to hear our Spoonie story of the episode—Lauren’s journey with Conradi-Hünermann Syndrome. In this powerful two-part episode, we welcome back Bill from Episode 35 to dive into an important conversation about addiction. Bill opens up about his personal journey, the...

In this two-part episode, we dive into the emotional journey of grieving your old self when chronic illness or sudden health changes turn life upside down. In Part 1 , Rachel and Tina open up about the rollercoaster of emotions that come with physical progression or receiving a new diagnosis. They share their personal experiences, the challenges of adjusting to a new reality, and the ways they’ve...

In this two-part episode of SpoonFull of Strength , we take a deep dive into the portrayal of chronic illness in Hollywood. In Part 1, we explore how TV shows and films depict chronic illness—what they get right, what they get wrong, and the impact of these portrayals on public perception. We also highlight celebrities who use their platform to raise awareness and advocate for those with chronic c...

In this special two-part episode, we dive into the crucial role of nutrition for the chronic illness community. 🌿 Part 1: Rachel and Tina explore the impact of nutrition on managing chronic conditions, sharing their personal experiences and insights on how food choices can support overall well-being. 🧘‍♀️ Part 2: We welcome Roxanne , a certified yoga teacher and holistic nutrition health coach w...

In the final episode of Season 2 and 2024, we wrap up the year with laughter and resilience. In Part 1, Rachel and Tina share how humor can bring light to the challenges of living with chronic illness. From embarrassing moments to laugh-out-loud jokes, we explore the healing power of laughter. In Part 2, we talk with Christie, a resilient warrior who faced a breast cancer diagnosis while navigatin...

In our penultimate episode of Season 2, Rachel and Tina dive into the journey of finding purpose after a chronic illness diagnosis. Whether you're still working or unable to work due to your condition, this episode explores the profound question: "Why did this happen to me?"In part two, we speak with Tim, a Crohn's warrior who has transformed his experience with chronic illness into purpose throug...

This special two-part episode dives into the challenges and strategies for traveling and living with chronic illness. In Part 1, Rachel and Tina share valuable tips and tricks for traveling safely while prioritizing your physical health. In Part 2, we meet Chloe, who opens up about her journey with multiple chronic illnesses, both physical and mental. Residing in Australia, Chloe offers a unique p...

In this two-part episode, we explore the healing power of hobbies and their role in providing an outlet for those living with chronic illness. In Part 1, we discuss how hobbies can improve mental well-being, reduce stress, and create a sense of purpose. In Part 2, we’re joined by Abe, a neurodivergent therapist who shares his journey with ADHD and mental illness. Abe dives into how his personal me...

In this two-part episode, we're tackling the unique challenges of the holiday season and shining a light on a chronic illness journey. Part 1: We dive into practical strategies for managing the holidays with chronic illness. From setting boundaries and adjusting expectations for family gatherings to battling fatigue and finding moments of joy, this discussion is packed with tips to help you thrive...

This week on SpoonFull of Strength, we dive into the world of physical activity and chronic illness. In Part 1, Rachel and Tina share their insights on the unique challenges of staying active while managing chronic conditions. In Part 2, we meet Caitlyn, a courageous 16-year-old living with POTS (Postural Orthostatic Tachycardia Syndrome) and AMPS (Amplified Musculoskeletal Pain Syndrome). She ope...

In this heartfelt episode, we dive into the impact of chronic illness on family dynamics. In Part 1, Tina and Rachel share their insights on how relationships within a family evolve after a chronic illness diagnosis. In Part 2, we hear from Diana, the inspiring mother of Gaby, who lives with multiple chronic illnesses. Diana opens up about Gaby’s strength through numerous surgeries and the resilie...

In this episode of SpoonFull of Strength, we dive into the powerful role of spirituality in managing life with chronic illness. From religion and meditation to yoga and mindfulness, we explore how finding faith—whether it’s in a higher power or within ourselves—can offer strength and resilience. We discuss the ways spiritual practices can bring peace, perspective, and purpose amid health struggles...

In this two-part series, we dive into the challenges of managing multiple chronic illnesses and the emotional weight that comes with it. In Part 1, we speak with Rachel and Tina as they share their experiences juggling numerous diagnoses. They discuss the mental overload, coordinating care between multiple specialists, and making sure everyone is up to date on their conditions and symptoms. Their...

In today’s episode, we’re joined by two inspiring spoonies! In Part 1, Kait from Season 1 returns to share her expertise as an OT, breaking down the '4 P's' of energy conservation—practical tips to help you save your spoons. In Part 2, Bill opens up about his life with Neurosarcoidosis, from being a star lacrosse player to enduring seven brain surgeries. It’s a powerful story of resilience, adapta...

In this episode of SpoonFull of Strength, we dive into the importance of advocating for your health. In the first segment, Rachel and Tina share their experiences and tips on how to take charge of your healthcare journey and stand up for your needs. In the second part, we interview Rachel, a resilient woman living with Narcolepsy and Cataplexy. She opens up about her long road to finding the right...

In this special, supersized episode, we bring you two incredible stories of resilience from women living with Chiari Malformation, each with their unique journey. First, Kristina shares her experience of losing the ability to walk as a teenager, being confined to a wheelchair, and how, after years of searching, she found the right doctor who helped her regain the feeling in her legs. Today, she's...

In this two-part episode of SpoonFull of Strength, we explore the emotional rollercoaster of living with a chronic illness. In part one, Rachel shares a deeply personal account of her journey after an unexpectedly tough doctor’s visit, as we discuss the highs and lows of managing chronic illness. In part two, our Spoonie Spotlight shines on Charu, who opens up about her life with Primary Biliary C...

In this inaugural episode of Season 2, we dive deep into the exciting changes we've implemented to bring you a fresh and engaging listening experience. Join us as we discuss the importance of making difficult decisions to prioritize your chronic illness, even when it means saying goodbye to familiar routines. Rachel shares a personal story about her MS tattoo and the hilarious mishap that almost l...

In our Season 1 Finale, we take a heartfelt look back at how SpoonFull of Strength began, celebrating the incredible guests who've shared their stories with us. We highlight some of our favorite episodes and much more! Plus, we reveal the lucky winner of our custom hoodie giveaway. Stick around for some fun outtakes at the end of the episode! Shop the Etsy Shop here: https://spoonfullofstrength.et...

In our penultimate episode of Season 1, we dive into the perceptions surrounding chronic illness. We explore how we viewed our conditions before receiving a diagnosis and how those perceptions evolved over time. We'll also discuss the impact of disease progression on personal identity and how society often perceives those living with chronic illness.

Meet Kim, a resilient Lupus warrior who faced two major surgeries before finally receiving her diagnosis, all during the height of the COVID pandemic. Now an ambassador for the Lupus Foundation, Kim has transformed her journey into one of advocacy and awareness. With an unwavering spirit and deep faith, she shares her inspiring story of learning to become her own best advocate. Follow Kim here: Bl...

On today’s episode, we sit down with Pam from Rare Patient Voice, an organization dedicated to giving patients and caregivers a platform to share their experiences and insights. Through surveys and interviews, they help shape the future of medical products and services for better patient care. Sign up here: https://www.rarepatientvoice.com/rp/Spoonfullofstrength Follow them on Instagram at: https:...

In this episode, we chat with Julie, who has faced scoliosis since childhood and also lives with Chiari Malformation. She shares her inspiring journey of improving her scoliosis through horseback riding and details her experience undergoing surgery for Chiari Malformation. Now, Julie dedicates her time to helping people with disabilities enjoy outdoor activities. Her positive attitude and resilien...

Join us as we meet Miranda, a passionate dancer and entertainer who left the West Coast to chase her dreams in New York City, all while navigating life with POTS (Postural Orthostatic Tachycardia Syndrome). In this episode, Miranda shares her remarkable 15-year journey to finally receiving a diagnosis and how she’s built a supportive and inspiring community on Instagram for others facing the chall...

In this episode, we introduce you to Dani, who shares her journey living with Rheumatoid Arthritis. She recounts the pain she has endured since infancy, beginning with an ankle injury at birth that went untreated until adulthood. Dani also discusses how her pregnancies triggered the onset of her RA symptoms, offering an intimate look into her experiences and resilience. Follow Dani on Instagram he...