The Joel Nelson Podcast

In this episode, we ask what role gender plays in delays to diagnosis. We are incredibly fortunate to be joined by Professor Yeliz Prior, Professor of Clinical Rehabilitation at the University of Salford, who lives with axial spondyloarthritis (axSpA) and osteoarthritis. Alongside exploring her personal lived experience journey and the great work she does as a prominent figure in the Rheumatology...

Ahead of Rare Disease Day, we welcome Rachel Rimmer and Mark Telkman from Rare Autoinflammatory Conditions Community UK (RACC-UK) to illuminate the often-overlooked world of these chronic illnesses and how they differ from autoimmune diseases. RACC-UK is a UK-based charity supporting individuals living with rare autoinflammatory conditions, their families, and carers. They work tirelessly to impro...

We are incredibly fortunate to be joined by not only Ass. Prof. Dr. Rachel Sommer, Head of People-Centered Health Care Research and Psychodermatology at University Medical Center Hamburg-Eppendorf, but a surprise guest in leading Dermatologist Prof. Dr. Matthias Augustin, Director of the Institute for Health Services Research in Dermatology and Nursing of the same institution who discuss the vital...

In this final episode of our three-part mini-series focusing on three people with three autoimmune diseases in one family, 'Joel vs Arthritis' Twitch community member Lauren Gibbons shares her story of living with Ulcerative Colitis and how she believes childhood trauma and stress contributed to the development of her autoimmune condition.  She discusses her journey to diagnosis, her decision to u...

In this second episode of our three-part mini-series focusing on three people with three autoimmune diseases in one family, we interview Matthew Gibbons, who lives with Crohn's Disease.  Crohn’s disease is a type of inflammatory bowel disease that causes digestive tract inflammation. Joel and Matthew talk about a variety of topics related to Crohn’s disease, including: The challenges of living wit...

In this first episode of a three-part mini-series focusing on three people with three autoimmune diseases in one family, we interview community member Kevin Gibbons, who has relapsing-remitting multiple sclerosis.  We discuss Kevin's experience with the condition, including his diagnosis, symptoms, and how he manages his life with MS. We also talk about the importance of patient advocacy, peer sup...

Petra Phoenix has been living with chronic pain for many years. She has seen many doctors, but she has never been given a specific diagnosis. This has made it difficult for her to access the help she needs. In this show, Petra shares her story of navigating chronic pain without a label. She talks about the challenges she has faced in accessing support, the resources she has found, and how she mana...

Transverse myelitis (TM) is a neurological disorder characterised by spinal cord inflammation. This inflammation disrupts the normal transmission of nerve signals between the brain and the rest of the body, leading to various and sometimes life-threatening symptoms. Joining us to share their harrowing experience of Transverse Myelitis is someone who needs little introduction to regulars of our You...

Our podcast turns three years old, and with it comes a makeover! In this short update, Joel explains the reason for the change and the exciting things to come. Follow the HOST : Socials & Links: ⁠⁠⁠⁠⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠⁠⁠⁠⁠ Join our Online Peer Support Community and Discord server here: ⁠⁠⁠⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠⁠⁠⁠ Watch The Chronic Pain Club Talk Show and t...

Dr Eleanor Chatburn, Clinical Psychologist, Lecturer, and Ambassador for The British Skin Foundation, joins us at the end of a marathon stream on World Psoriasis Day to discuss the mental health impact and burden of living with a chronic skin condition. We discuss ways of coping, alternative therapies, such as pain management and talking therapies, and the stigma people with skin conditions face....

Eczema and psoriasis are common skin conditions that can cause significant discomfort and disruption to everyday life. This talk show provides practical tips and advice on managing these conditions and living more comfortably from various lived experience perspectives. We talk to experts in the field of skincare, as well as people who have lived with eczema and psoriasis, to get their insights and...

On this episode of the podcast, we are joined by somebody who needs little introduction in the UK access and disability space. Broadcaster, Journalist, Musician and disability advocate Mik Scarlet joins us to talk about his lifelong relationship with pain, the darker side of living with pain and how he uses humour to cope, the amazing work he does for access, disability and inclusion and touches u...

In this episode, we are joined by the wonderful Ian Taverner, aka Mr Cookfulness. Ian becomes an instant favourite with our live audience as we talk about adjusting to chronic pain, the mental health impact pain can have and how Ian turned to cooking to cope with his change in circumstances. Following Ian’s incredible journey from the grief of pain and the impact on his family to how he now owns t...

Tracy lived with Antiphospholipid Syndrome for 17 Years, from her first symptom to diagnosis, resulting in internal damage.  Over the years, Tracy learned to use art to process and began painting her condition as she saw and experienced it. Now a patient advocate for Antiphospholipid Syndrome, Invisible Disability and Chronic Pain, Tracy joins us on the Chronic Pain Club Talk Show to talk about th...

In this episode, Katy Pieris joins us to talk about parenting with rheumatoid arthritis, the importance of exercise, why she volunteers, and hear her arthritis story. This felt more like two friends chatting at the bus stop than a video call between two people for the first time, and I hope that mutual respect, candidness and relaxed conversation come across in the recording. Follow our GUEST: Ins...

We are joined by special guest Russ Cowper, a Psoriatic Arthritis Patient Advocate, Charity Trustee, and Poet, to hear why they advocate and how writing poetry helps them live with chronic conditions. This one, and the live poetry readings, proved very popular on our YouTube channel at the time of recording. Follow the HOST : Socials & Links: ⁠⁠⁠⁠⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠⁠⁠⁠⁠ Join...

On this episode, we are joined by inspirational special guest Sukhjeen Kaur. We talk about her path to equality and inclusion advocacy, her founding of Chronically Brown and why Intersectionality is so important. Follow our GUEST:  Instagram: @chronicallybrown Facebook: chronicallybrown Twitter: @chronicbrown Website: chronicallybrown.com Follow the HOST : Socials & Links: ⁠⁠⁠⁠⁠⁠https://linktr...

I report to you live from EULAR 2023 in Milan in a very special mini-series! Featuring news on what I am working on at the world-famous and largest European Rheumatology conference, I tell you what I see on the ground, in the sessions, the breakthrough research and advances in the rheumatology field through a patient's eyes. Join me every day this week live from EULAR! Follow the HOST : Socials &a...

I report to you live from EULAR 2023 in Milan in a very special mini-series! Featuring news on what I am working on at the world-famous and largest European Rheumatology conference, I tell you what I see on the ground, in the sessions, the breakthrough research and advances in the rheumatology field through a patient's eyes. Join me every day this week live from EULAR! Follow the HOST : Socials &a...

I report to you live from EULAR 2023 in Milan in a very special mini-series! Featuring news on what I am working on at the world-famous and largest European Rheumatology conference, I tell you what I see on the ground, in the sessions, the breakthrough research and advances in the rheumatology field through a patient's eyes. Join me every day this week live from EULAR! Follow the HOST : Socials &a...

This week, we are joined by special guest Molly Schreiber, Patient and Community Director of Savvy Cooperative, who shares with us their Rheumatoid Arthritis and Type 1 Diabetes lived experience and their work at Savvy Cooperative, helping to amplify patient and caregiver voices. Find our Guest: @mollyeschreiber (Instagram) @mollyschreiber (Twitter) Follow the HOST : Socials & Links: ⁠⁠⁠⁠⁠⁠htt...

The Chronic Pain Club returns as Zoë Clark joins us to talk about her Ankylosing Spondylitis journey, how it feels to go through multiple and sometimes incorrect diagnoses, disability identity and how her work as an Allied Health Professional and patient advocate helps her and many others. Find our Guest: @ZoeTheOsteo (Instagram) @ZoeClarkOsteo (Twitter) Follow the HOST : Socials & Links: ⁠⁠⁠⁠...

This week, we were joined by James Hillery - Ankylosing Spondylitis patient and two-time contestant on the Great British Bake Off. He shares his AS journey candidly, and we get lots of behind-the-curtain insider info on what is happening on the set of The Great British Bake Off! This one was a must-watch/listen!  You can find our guest on Twitter here: https://twitter.com/Cluckmuckcook and Instagr...

In this episode, originally recorded in August 2022, we are joined by the inspirational Emma Townley for a Psoriasis Awareness Special, where we discuss Psoriatic Arthritis, its co-morbidities and how it impacts your mental health. We hear Emma's emotional journey from diagnosis to raising awareness to help others. Follow the HOST : Socials & Links: ⁠⁠⁠⁠⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠⁠⁠⁠...

Does your invisible illness ever make you feel like a fraud? We have a special guest as the wonderful Amy joins us to talk about her Juvenile Idiopathic Arthritis journey, the awareness she is raising to change future experiences and how it influenced her decision to train as an Occupational Therapist. Connect with our guest: https://twitter.com/amyface91  CCAA UK JIA Charity: https://www.ccaa.org...