The Joel Nelson Podcast

In this episode, we are joined by Wes Michael, the founder and president of Rare Patient Voice, who discusses the importance of including patient voices in healthcare decisions. Rare Patient Voice connects patients with researchers and companies for interviews and studies, compensating them for their time and insights. Wes shares his background in market research and the experience that led him to...

Friend of the show, Amy Wescott, a children's occupational therapist living with juvenile idiopathic arthritis, returns to the Chronic Pain Club after her first interview with us went on to receive thousands of views. We discuss Amy's journey to becoming an occupational therapist [12:16], her experience living with arthritis [15:48], the challenges she faced [22:18], and how her personal e...

Angela Laborde, who lives with psoriatic arthritis, among other conditions, returns to the show to share with us why she volunteers and plays an active role in peer support communities online. In Part 1 (https://open.spotify.com/episode/5KH7EINV5kCI4fK618ngX7?si=3afPdtoRQm-zAkqRkm0hag), we discussed Angela's journey to diagnosis with multiple chronic and autoimmune conditions, the challenges s...

Filmed live between World Arthritis Day and World Psoriasis Day, we are joined by special guest Angela Laborde, an American who lives with psoriatic arthritis, among other conditions. In Part 1, we discuss Angela's diagnosis journey with multiple chronic and autoimmune conditions, the challenges she overcame to get those diagnoses and the daily impact that has on her. We also touch upon the vi...

Dr Catherine O'Leary, a Clinical Psychologist and person living with psoriasis, joins the Chronic Pain Club Talk Show to provide invaluable insight into the psychology of psoriasis. With her extensive training in Cognitive Behavioural Therapy, Family Therapy and Interpersonal Psychotherapy, Catherine brings a wealth of expertise to our discussion. We learn about her personal experiences living wit...

In this episode, we are joined by Angela Gibbons, patient advocate, research partner and founder of The HS Support Network UK and Ireland. We explore her journey of multiple chronic illnesses and how she went from "not telling a soul" to gradually seeking opportunities for change. Today, Angela is involved in numerous national and international projects and has set up a charity supporting those wi...

In this episode, we learn about the importance of antimicrobial resistance (AMR) and how to combat this growing global health threat. Vanessa Carter holds the esteemed titles of Antimicrobial Resistance Patient Survivor, Founder and Executive Director of The AMR Narrative, and Chair of the WHO Taskforce of AMR Survivors. After a car accident required ten years of facial reconstruction, three of wh...

Here is a quick update from me as we share the exciting news that The Joel Nelson Podcast is now part of the Spotify family! Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3 Follow the HOST : Socials & Links: ⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠ Join our Online Peer Support Community and Discord server here: ⁠https:...

Recorded just before the EULAR Congress 2024 in Vienna, we are joined by Dr Simon Stones, a multiple award-winning patient advocate making his first appearance on the Chronic Pain Talk Show. In this insightful conversation, Simon shares his personal journey living with juvenile arthritis and his passion for improving patient experiences. We delve into the importance of patient involvement in resea...

Psoriatic disease can cause pain and stiffness in the joints, making it challenging to stay active. However, exercise is crucial for managing the condition.  In this episode, we're joined by Craig Young, a sports fan living with psoriatic disease. Along with his diagnosis journey, Craig will share his tips and tricks for staying active and how he has adapted to his diagnosis to continue to enjoy s...

On this episode, we're incredibly excited to have Martin Stevens, a Research Fellow at the Aberdeen Centre for Arthritis and Musculoskeletal Health at the University of Aberdeen, join us. Hear us discuss his focus on patient and public involvement in research, why this is important, and what he is currently working on to improve patient outcomes. We talk about the iPRePaRe Study, which explores ho...

In the second of this two-part special, we are joined by Heather Christie, aka ArchaeoPlays - an archaeologist, content creator, and gamer. Heather delves into the past on their Twitch and YouTube channels, where they unearth hidden connections between video games and the ancient world. But their real-life adventure is even more intriguing as they navigate the challenges of living with multiple ch...

In the first of this two-part special, we are joined by Heather Christie, aka ArchaeoPlays - an archaeologist, content creator, and gamer. Heather delves into the past on their Twitch and YouTube channels, where they unearth hidden connections between video games and the ancient world. But their real-life adventure is even more intriguing as they navigate the challenges of living with multiple chr...

For the 50th episode of the Joel Nelson Podcast, we are joined by the fabulous Ali DiGiacomo! Diagnosed with Juvenile Idiopathic Arthritis at 15 and then hit with severe Rheumatoid Arthritis at 22, Ali went from competitive swimming to giving up fitness entirely. But a decade later, she decided to fight back, one workout at a time. Whether you're struggling with chronic pain, looking for a fresh p...

In this episode, we are joined by Chloë Hammond, a trailblazing clinical nurse who is breaking down barriers in the healthcare industry, and her amazing assistance dog, Ocho. Despite being a wheelchair user and an assistance dog owner after being diagnosed with a rare disease at the age of 15, Chloë thrives in her role as one of the few disabled nurses in the UK. In this episode, we'll explore Chl...

On Day Three of the EULAR Congress in Vienna, we have a bumper episode for you as the podcast series becomes a talking point of the conference! In this episode, you will hear from: Raquel Vaz, Scientific Project Leader at IFPA Paul Studenic, Researcher and Rheumatologist at Medical University of Vienna Rebecca Beesley, Volunteer at Juvenile Arthritis Research (JAR Project) Souzi Makri, Past Chair...

We are putting the patient voice into the EULAR conversation on Day 2 of the Congress as we are joined by Andreas Dam, developer of the RheumaBuddy app, and award-winning patient advocate and Chair-elect of the EULAR PARE Committee, Dr. Simon Stones. You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in V...

As we record LIVE from EULAR 2024 on IFPA’s booth to raise awareness of psoriatic disease and the Good Care for PsA project, we speak to some brilliant guests as the Congress heats up. In this episode, you will hear from Ingvar Ingvarsson, Vice President of IFPA, Zoë Clark, Programme Manager at NASS, and Loreto Carmona, Rheumatologist, Epidemiologist, and EULAR Advocacy Chair. We talk about their...

Hidradenitis Suppurativa (HS) affects countless individuals, causing painful abscesses and scarring and impacting every aspect of life. Yet, it often remains shrouded in silence and misunderstanding. Join us for a powerful conversation with Barry McGrath, co-founder of HS Ireland, patient advocate, and former scientific clinical researcher, as we shine a light on this chronic condition. Barry disc...

For Lupus Awareness Month in May, we are joined by Melissa Chieza, an occupational therapist and mental health practitioner who has been living with Type 1 Diabetes and Lupus since she was a child. In the episode, Melissa discusses her experiences living with Lupus and Type 1 Diabetes since she was a child. She talks about the challenges of managing both conditions, including the emotional toll an...

In this brief unscripted update, we bring the exciting news that the Podcast is heading out this summer—and its first stop is the EULAR Congress in Vienna! Keep an ear out for a special mini-series recorded live at the conference in June and for more announcements about other stops and countries on the tour soon! Follow the HOST : Socials & Links: ⁠⁠⁠⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠⁠⁠⁠ Jo...

Chery Crow has amassed tens of thousands of followers on social media through her informative and energetic videos. She hosts the hugely popular 'Arthritis Life' podcast and website, where she works towards her vision of a world where every patient feels empowered and equipped to participate in meaningful daily activities with more confidence. Cheryl also shares her Rheumatoid Arthritis story, wha...

Please note that this show contains the following TRIGGER WARNINGS: Suicide, Grief, and Depression - please consider this when deciding how and where you listen. In this show, my long-time friend, Ben Veal, founder and director of Second Mountain Comms, shares his personal experiences with anxiety and depression and how he managed his mental health during the COVID-19 pandemic. We'll talk about th...

On World Parkinson's Day, join us for a poignant and inspiring conversation with Dr. George Ackerman, a passionate advocate for Parkinson's disease and dementia awareness. Driven by the memory of his mother, Sharon, who bravely battled the disease, Dr. Ackerman has dedicated his life to raising awareness, furthering research, and offering hope to millions impacted by Parkinson's. Hear Dr. Ackerman...

Osteoarthritis (OA) doesn't discriminate. It can affect people of all ages, including young adults and even children. In this episode, we talk to Rebecca Kudyk, who was diagnosed with severe Osteoarthritis at the age of 25. Rebecca shares her story of living with OA and how she has managed to not only maintain a high-profile job and young family, but thrive. In this episode, you will learn:  How O...