Life With FND

Talking it out about...

Health EN ↓ 53 episodes

This is a series of podcasts which will focus on different areas. The first few will be based around FND (Functional Neurological Disorder) and then it will be some open and honest conversations about other areas. We hope you find it useful!

Be sure to visit the podcast's website and support the creator: podcasters.spotify.com

Author

Life With FND

Category

Health

Podcast website

podcasters.spotify.com

Latest episode

Sep 17, 2024

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Episodes

Episode 4- The elements of safety 17.09.2024

In this episode I talk about how you could help/support someone who is having a flare up, and talk through how it is more then just physical safety which is important in those moments.

Episode 3- catch up 25.07.2024

In this episode I give a quick update on life with a baby and FND and what I’ve been secretly working on for the last two years.

Episode 2- Surprise! 25.03.2024

In this episode I share my experience of pregnancy and FND.

Episode 1- Chat with Professor Jon Stone 30.01.2024

To kick off season 4, I speak to Professor Jon Stone about his work in FND. This is a more in depth chat where we cover FNDs history, research, diagnosis and so much more.

Episode 16- moments of joy 01.12.2023

In this episode I chat to Kerryn about her life with FND, we chat about colour blindness, comparisons, leaf sheep and Christmas worms. If you want to find out more about what Kerryn does then the link is below for you: www.fndwellbeing.com

Episode 15- not taking no for an answer 10.11.2023

In this episode I chat to Maz about recovery trains, nanna naps, throwing everything at it and the power of animals (shout out to Dexter and Luna!). Links to the different things Maz mentioned can be found below: Chloe Mason counsellor/Therapist- 07947630151/chloem88@live.co.uk/ Instagram: cmasonpsychotherapist Imelda Mcquaid- 'Mindful By Nature'- www.mindfulbynature.co.uk- mindfulness Kerryn With...

Episode 14- when your muscles and nerves are frenemies 20.10.2023

In this episode I chat to Jo about her experience of FND, we discuss toolboxes, hypnosis and doctors who were sent from god.

Episode 13- The learning curve of FND and photography 29.09.2023

In this episode I catch up with Michael about his experiences since we last spoke, the set up of the new Disability Sport Network and the boom and bust of life with FND, including PIP tribunals, hospital visits and travel.

Episode 12- what happens next? 25.08.2023

A short one where I just ask what happens next after you’ve been discharged from a service? How do you feel about it and what do you do now.

Episode 11- bed pans, Julie Andrews and chunky French fries 14.07.2023

In this episode I chat to Kirsty about all manner of things including, singing therapy, lettuce, fish fingers and seasoned tomatoes, the hills being alive and baby elephants and highland cows. We even had a couple of requests so if anyone can make them happen please do reach out!

Episode 10- Squabbling with a squabble of seagulls 23.06.2023

In this episode I chat to Ian, we discuss the adventures of FND, flying fast pointy things, anger, shouting at seagulls and accepting the ridiculous. Trigger warning ⚠️ there is chat about suicide in the latter half of the podcast.

Episode 9- MS (separated by time and space) 01.06.2023

In this episode I chat to a neurologist from Ohio about MS. We discuss diagnosis, the rabbit warrens of treatment, preventative pills and the power of asking an adult why.

Episode 8- blame, shame and hope 11.05.2023

In this episode I chat to Ellie who was diagnosed with FND at 16. We chat about medical trauma, shame and hyper mobility.

Episode 7- Your going to need a bigger boat 20.04.2023

In this episode I speak to Army Veteran Matt about FND, family, complex PTSD, snack alarms and the power of keeping it simple.

Episode 6- ghostly toes, corpse foot and Dobby’s sock 01.04.2023

In this episode I talk to Ryan ad Sarah about friendships formed over social media for those with FND, we discuss symptoms, emotions and have a bit of a giggle!

Episode 5- The power of tea 16.03.2023

In this episode I chat to Sarah about functional tremors, surgery, the power of tea and seizures.

Episode 4- Chat with a Neurologist 23.02.2023

In this episode I chat to a neurologist from Ohio about FND, diagnosis, education, neurological deserts and the US health system.

Episode 3- chat with Sarah 09.02.2023

In this episode I talk to Sarah from the Netherlands about life with FND and Parkinson’s. We chat about self hypnosis, reflection, trauma and the positives to be found in FND.

Episode 2- chat with Michael 20.01.2023

In this episode I chat to Michael about photography, hospital stays, medical passports and how he has found adjusting to life with FND.

Episode 1- chat with Scott 04.01.2023

In this episode I chat to Scott from All4inclusion. We chat about his two podcasts, medical passports, imposter syndrome, bulbous pemphigold and vasovagal syncope.

Episode 17- chat with Matthew 28.12.2022

In this episode I chat to Matthew about his experience in a secure unit, mental health and the volunteering work he does for FND action.

Episode 16- Talking it out about dating and FND 16.12.2022

In this episode I chat to Louisa about dating with FND. We discuss the practicalities of dating, dark pink flags, self esteem and our roles as sincerely sorry sisters.

Episode 15- chat with FND Connect 08.12.2022

In this episode we talk about being a parent to someone with FND, electric worms, cauldrons and what support is out there for parents.

Episode 14- chat with Jordan and Angela 10.11.2022

In this episode I chat to Jordan and his mum about his life with FND. We discussed cancer, maths lessons, laughter and referrals.

Episode 13- Chat with Alex and Tom 21.10.2022

In this episode I chat to Alex and Tom about emotions, education, FND superheroes and sex.

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