Talking it out about...

In this episode we chat to Lousia about all things FND related, from pensioner chic, walking sticks, guilt, shame and friendships.

In this episode I chat to Phillip. We cover things from dungeons and dragons, nerve pain, temperature control and everything in between.

In this episode I talk to Brooke, who has FND, and her mum Clare. We discuss how it felt for Clare to be a parent of a young person with FND and how they have reached a balance in their relationship which works with FND. We cover a range of topics from The Rosa Burden Centre, future plans and rugby games.

In this episode we chat about Suzy’s journey to diagnosis, including support groups, taking back the driving seat and lollipop-ing sausages.

In this episode we chat all things FND, from bear Cubs to distraction and grief. Alex is an OT in the West Midlands working with patients with FND so gives a few helpful hints and tips to help as well.

This time I chat briefly about climbing a mountain and the consequences. Also about how I found sharing what I had done and the impact it had on me.

In this episode, I chat to Claire all about her journey to an FND diagnosis. We discuss speech symptoms, how our families have been impacted and how we find using things like disabled parking.

Just a quick catch up regarding my recent challenge and what I hope to be able to do in the future not only with this podcast but also with awareness day challenges.

In this episode you hear me having a weird brain moment, I discuss things like baths, temperature, food reactions and FND awareness day.

I talk to the lovely Sarah, who turns out is my FND anniversary buddy! We chat diagnosis, treatment, social media and the joy of ramps, stair lifts and bathrooms!

It’s the 3 year anniversary of my life with FND. We chat through the first moments and. What we can remember and reflect on things we wish we has known at the time.

Happy new year guys! We started this season with a bang as I was joined by Tom, who has been battled FND for nearly two decades. Tom chatted about all things scientific, and I had to try and keep up. We discussed things from treatments, doctors and thinking.

I chat to myself 😂 about working with FND, the things I have done to help and things I could have done better.

In this episode I chat to the lovely Sarah about working with FND, ‘The Burden Zone’, value and worth.

In this episode of ‘Talking it out about’ I chat to Hamish who is a physio about all things FND and physio related.

5 things I have used to build self esteem. This is just five of the ways I have been working on building my self esteem, I am not a master at them all but I am making progress in every step.

In this episode you hear Ze in her current ‘potato’ state, we discuss the importance of routine and structure.

I am joined by the lovely Charlotte who is at the beginning of her journey with FND, we talk symptoms, managing symptoms and depression. We also have invented a new game of is it the internet or is it the FND?

We chat about ways to manage FND including but not limited to mindfulness and pets, use of words like trauma and triggers and anything other randomness we can get distracted into.

We have a general chat and catch up, you can hear the speech difficulties with FND symptoms that are appearing. We discuss what things have stuck with people in the diagnosis process as well.

In this episode I chat to Melanie about our time together in the unit. We were there at the same time and she helps me start to remember a bit about my time there. We reflect on what we learnt and our joint and separate experiences of our three week inpatient stay to make the 2 year anniversary since we both left.

In this episode we discuss safety behaviours, what they are, how they work and we do them. I am set a challenge to try and tackle mine.

In this episode you can hear the inner workings of two people with FND. I was joined by Hannah for a chat about her experiences with FND with her diagnosis 12 years ago.

In this episode I chat to a clinical psychologist all about FND, as a FND awareness day special

This episode we continue our conversation of dissociative disorder and treatments. You get to hear first hand the dissociation as well.