Talk Epilepsy Podcast

In this episode, we talk to Emma who was recently diagnosed with epilepsy at 19 years old and to Epilepsy Scotland's Helpline and Information Officer, Stuart, about the impact a new diagnosis of epilepsy can have on a person.

In this episode, we talk to Sam Begbie, Lifestyle Management Project Worker at Quarriers and Zoe Prosser, Research Fellow & Lecturer in Social Design at Glasgow School of Art about Quarriers new epilepsy self-management toolkit. You can find out more the epilepsy self-management toolkit at toolkit.quarriers.org.uk

In this episode, we talk to Annie Brooks who was diagnosed with epilepsy in 2012. She discusses how she felt when first diagnosed with epilepsy, why she first started to do triathlons and her experiences of competing in the Ironman World Championships in Kona.

Meet Ben, our latest #TalkEpilepsyPodcast guest, as he opens up about his powerful journey with epilepsy and mental health. In this raw and honest episode, Ben shares:• His diagnosis at age 14• The unexpected emotional challenges• How he found his way forward• Insights that could help others on similar paths If you are struggling with your mental health, please call our freephone Helpline on 0808...

In this episode, we talk about Sudden Unexpected Death in Epilepsy (SUDEP). Sadly, almost 300 people a year die due to epilepsy in Scotland. Ahead of SUDEP Action Day on Wednesday 16 October, we talked to Sammy Ashby, Chief Executive at SUDEP Action. We discussed the work that SUDEP Action does to help bereaved families and this year's #OurRisksOurRights campaign, which looks to highlight that eve...

Imagine your teenage son's life suddenly interrupted by epilepsy. This was Julia's reality in 2020 when Andrew, just 17, was diagnosed with epilepsy after experiencing tonic-clonic seizures. In our latest #TalkEpilepsyPodcast, she opens up about the unique challenges of navigating not only epilepsy but also autism in her son's life. How does a mother cope with this double diagnosis? Wh...

In this episode, we talk to Epilepsy Scotland's Helpline and Information Officer Stuart on the topic of epilepsy and driving. We discuss some of the most common questions and the support that is available if someone living with epilepsy has to give up their driving licence. 
 


In this episode, we talk to BBC Radio London Football Commentator Karl Bates about his experiences of living with epilepsy and the challenges he has faced throughout his career because of his epilepsy.

In this episode, we talk to Epilepsy Scotland’s Helpline and Information Officer, Uschi, about the most common types of seizures and how people can help someone if they had a seizure.

We talk to Epilepsy Scotland’s Youth Development Worker, Kirstyn Cameron, about Epilepsy Scotland’s Youth Work service and the benefits that the Youth Group adventure weekend brings to young people living with epilepsy. We also talk to Epilepsy Scotland’s fundraising team members Linzi Donald and Jane Roberts about the CrowdFunder that has been set up to raise money for Epilepsy Scotland’s Youth G...

We talk to 13-year-old Ella, her mother Katherine and journalist and author Fraser who have written a book called Ella and the Electric Paintbrush which is based on Ella’s experiences of living with epilepsy. You can buy the book on Amazon and follow Ella on Instagram @adventure.ella

Welcome to Season Two, Episode Three of our three-part student podcast series Living with Epilepsy: The Student Experience. In this episode, our student ambassador Chloe meets with graduate Abigail Clifford to discuss social support and epilepsy . To find out more about Epilepsy Scotland's #StudentSeptember campaign, please go to www.epilepsyscotland.org.uk/studentseptember

Welcome to Season Two, Episode Two of our three-part student podcast series Living with Epilepsy: The Student Experience. In this episode, our student ambassador Freya discusses Attention Deficit Hyperactivity Disorder (ADHD), Obsessive-Compulsive Disorder (OCD) and Epilepsy. To find out more about Epilepsy Scotland's #StudentSeptember campaign, please go to www.epilepsyscotland.org.uk/studentsept...

Welcome to Season Two, Episode One of our three-part student podcast series Living with Epilepsy: The Student Experience. In this episode, our student ambassador Chloe met with Psychologist Junhua Ding to discuss sleep, stress and epilepsy. To find out more about Epilepsy Scotland's #StudentSeptember campaign, please go to www.epilepsyscotland.org.uk/studentseptember

In this episode, our Fundraising Manager Gemma Fleet talks to Dianne who’s daughter Emma sadly passed away due to Sudden Unexplained Death In Epilepsy (SUDEP) in April 2023. Dianne shares her memories of Emma. Her life living with epilepsy and how she would like Emma to be remembered. If you have lost a loved one due to SUDEP and need to talk to someone, please call our freephone Helpline on 0808...

In this episode, we talk to Epilepsy Scotland Training Manager Naomi Stevenson about the importance of learning about epilepsy and how the condition can affect someone. Also, whether society as a whole has an understanding of epilepsy and the training that Epilepsy Scotland provides.

In this episode, we talk to Niamh a member of our Youth Group in Edinburgh. Niamh shares her experiences of living with epilepsy and the impact it has had on her mental health.

During National Epilepsy Week, we teamed up with epilepsy organisations across the UK to launch the #EpilepsyMatters campaign. In this episode, we speak to Claire and Holly who share their experiences of living with epilepsy.

In this episode, we talk to Epilepsy Scotland’s Helpline and Information Officer Uschi about the 10 most frequently asked questions about epilepsy that we receive via our freephone Helpline.

In this episode, we talk to SNP MSP Alasdair Allan about how he felt when he was diagnosed with epilepsy and the mental health issues that people with epilepsy can face. We also talk to Epilepsy Scotland’s Wellbeing Manager, Vicki Burns about how an epilepsy diagnosis can impact a person’s mental health and the help and support that can be provided.

Our Youth Group member Niamh shares how she felt when she was diagnosed with epilepsy and how being apart of the Epilepsy Scotland Youth Group has helped her. Please help us continue to be there for people like Niamh by donating to our Christmas Appeal by texting BECAUSE to 70085 to donate £3.

In this episode, we talk to Ben who was diagnosed with epilepsy when he was 14 years old. Ben shares his experiences of having tonic-clonic seizures. The challenges he has faced and how he went a period of being seven years seizure free and how he felt when he started to have seizures again.

The final episode of a three-part episode series called 'Living with Epilepsy: The Student Experience'. Here, Monica Sgouros volunteered to share her experiences of organising epilepsy friendly club nights. 

The second episode of a three-part episode series called 'Living with Epilepsy: The Student Experience'. Here, Jacob Goss, a student with epilepsy, volunteered to speak with us about his experience of university. 

The first episode of a three-part episode series called 'Living with Epilepsy: The Student Experience'. Here, Louise Shambrook, volunteered to speak with us about her experiences of epilepsy and learning.