Susan Hendrix My Story Living With Lupus

In this episode you'll here the latest research Breakthrough cellular genomics technology has allowed researchers to reveal genetic mutations causing rogue behavior in the cells that cause autoimmune disease. You will also hear about a California Physician who is being indicted for selling Hydroxychloroquine as a COVI-19 cure and stated that was following the lead of Trump. Resources Science Daily...

In this episode I talk about is there a coexistence of crohn's disease and systemic lupus.  Also in this episode you will hear the issues that I have been having. Resources Crohn's and Colitis (19, December 2020) WHAT ARE SYMPTOMS OF CROHN’S DISEASE? Retrieved from: Crohn's Disease Symptoms And Types And How They May Affect You (crohnsandcolitis.com) Oxford Journal of Crohn's and Colitis (19,...

In this episode you will hear the latest discoveries that advanced lupus research.  Also you will hear about the most common blood disorders in lupus patients. Resources HSS (15, December 2020) Four Discoveries from 2019 That Advanced Lupus Research By Dr. Mary K. Crow  and  Dr. Jane Salmon . Retrieved from: Four Discoveries from 2019 That Advanced Lupus Research (hss.edu) LupusNews...

In this episode you will hear about what the Real-World Study Affirms about the IV Treatment use of Benlysta for Lupus.  Also did you know that Age at start of menstruation and breastfeeding linked to lupus risk in black women? Resources Springer (12, December 2020) Original Research Open Access Published: 18 November 2020 Real-World Effectiveness of Belimumab in the Treatment of Systemic Lup...

In this episode you will hear about women who live in Africa in urban areas are at higher risk for chronic diseases than those women who live in rural areas.  Also you will hear about how race is playing once again in kidney disease patients. Resources MedPage Today (02, December 2020) Leave Race Out of Kidney Function Estimates? — Removing race modifier would yield more CKD diagnoses among B...

In this episode I discuss Health  Disparities in Lupus and Addressing Racial Disparities in SLE Treatment, you will hear what Health Equity is. Resource Rheumatology Advisor (21, November 2020) Addressing Racial Disparities in Systemic Lupus Erythematosus Treatment Tori Rodriguez, MA, LPC . Retrieved from: https://www.rheumatologyadvisor.com/home/topics/systemic-lupus-erythematosus/addressing...

In this episode I have a conversation with one of the leading experts in Rheumatology Dr. Josephine Dhar were discussing Lupus, the Pandemic, Hydroxychloriquine and how to stay safe. +++SOCIAL MEDIA+++ IG//mystorylivingwithlu FB// Mystorylivingwithlupus, - "SM" Twitter//@story_lupus +++SPONSORS+++ GOLI GUMMY Promo Code: suelynne1 Promo Link: https://goli.com/suelynne1 Tubbuddy Affiliate Code mysto...

Patients with autoimmune diseases often have an illness experience riddled with symptom ambiguities and shifting diagnoses. A new study found that one way patients and physicians can work through the difficulty and frustration of communicating about these conditions is to use both broad diagnostic terms, like 'autoimmune disease,' as well as narrow ones, such as 'lupus or MS.'  Also the daily...

In this episode you will hear what researchers states how in the last decade, scientists discovered that blocking a key regulator of the immune system helped unleash the body's natural  defenses against several forms of cancer, and how flipping the script may have found new pathways to treatment for Lupus.  You will also hear about increased ED visits due to edible cannabis, and how Infl...

In this episode you will hear evidence of how Algorithms plays a key factor in patients care and how it is blocking kidney transplants for black patients.  That is right, race plays a key factor when it comes to receiving medical care. You will also learn about Christmas Giveaway from the Charlie E & Minnie P Hendrix Foundation for Chronic Illness. You'll hear about my recent visit to the...

In this episode I compare/contrast the Spanish Flu of 1918 and COVID-19 of 2020 Is History Repeating itself?  We take a look back at history and hopefully you will be asking the same question I did.  We also discuss briefly The contaminated diuretic Acetazolamide a petition to the FDA to take this diuretic off the market .  Also find out about Save the date, Christmas Giveaway and m...

In this episode you'll find out if DV causes Chronic Health issues and what research has shown.  Also I discuss Breast Cancer Women/Men that's right men also have breast cancers, that's why it's important to have the TA Ta's check . If you or someone you know are in a Domestic Violence situation pick up the phone and dial 1-800-799-SAFE (7233) HELP IS OUT HERE DON'T STAY IN A DV SITUATION. Ch...

In this episode of Life Lessons, Author Shelia Smith talks about male abuse, that right.  Men can be abused, too but some men remain silent.  The majority of the time when the subject of domestic violence is discussed, most people will assume that it always means women.  Men can also become the victims of domestic violence. The CDC in 2010 showed that 40% of the victims of severe ph...

In this episode I breakdown the original Affordable Care Act that's right we go back in history and bring it current. I discuss the Pandemic, Current Administration and how we all need to get out and vote. Please follow me on: YouTube: mystorylivingwithlupus FB: mystorylivingwithlupus IG: @mystorylivingwithlu Please visit out webpage: https://mystorylivingwithlupus.com/ go over to the store becaus...

In this episode you will hear what Resistant Hypertension is and how it is connected to Lupus.  Also I discuss Diet and Lupus, I know you have heard this a thousand times but just listen to how changing up what you consume how it can benefit your overall health. Please go over to my YouTube Channel and subscribe and like. You Can Follow Me On IG: @iamlupus IG:@mystorylivingwithlu FB: Susan He...

In this episode I give my thoughts of the events that have taken place regarding Breonna Taylor. I also breakdown the voting rights act of 1965, diversity, and systemic racism. "YOUR VOTE COUNTS, GET YOUR BALLOT EARLY AND BE A SAVAGE AND TAP IN YOUR VOTE"! #lupus #vote #votingrightsact1965 #mystorylivingwithlupuspodcast

In the episode you will hear about what happened to me when I went to the ER.  Also I will discuss drug induced lupus, What is it? Signs and Symptoms.   I also discuss Sjogrens Syndrome and how important it is to have regular dental check-ups. Resource Medline Health (11, September 2020) When Chest Pain Reveals More: A Case of Hydrochlorothiazide-Induced Systemic Lupus Erythematosus...

In this episode of Life Lessons with Author Shelia Smith, she will be discussing Setting Standards in your life, and not just to settle for anything or anyone. #mystorylivingwithlupuspodcast #lifelessons #authorsheilasmith

 Thank you for joining me on the Friday September 11, 2020 for another episode of MY STORY LIVING WITH LUPUS PODCAST. Today’s episode is about Lupus and Ehlers-Danlos Syndrome. You will find out what it is, treatment, causes, and is there another name for this?  Also you will hear A daily roundup of news on COVID-19 and the rest of medicine.  I will also be talking about The muscle-...

In this episode I discuss research findings on how age at diagnosis of lupus. male sex and smoking raises the cancer risk among individuals with lupus.  I also discuss the effects of smoking on the body among individuals diagnosed with lupus. And lastly  I will tell you about two conversations I had with two doctors regarding racial bias in the medical field. Resources MEDPAGE TODAY (27,...

Class is in session, so grab your pen and paper I will be discussing  What You Need To Know When Considering Participation In A  Clinical Trial. What are they? What questions to ask? Will I get paid?  Will I be chosen?  Also if you are ever asked to be a part of a clinical trial what you should ask the researcher/doctor.  Do you think that being to clean can effect your im...

In today's Life Lesson Episode, Author Sheila Smith talks about dating in this day and time. She will discuss online dating and what to be careful of, she will also discuss other topics that is not suitable for young children. So Place the kids to be and join the conversation. #lupus #lupusdating #lupusawareness #lifelessons #mystorylivingwithlupus L85yNxkaz3auIjSjDj6S

In this episode you will learn what Cachexia is and how it is linked to lupus and other chronic illness such as Cancer. You will hear about the signs, symptoms and it there exists treatment. You'll find out the origin of the word Cachexia. Cachexia Common in Lupus — More than half of patients in a large cohort developed involuntary weight loss.  Did you know that Thunderstorms can cause indiv...

You will hear about the connection of Peridontal Disease and Lupus. You will also hear what research states about lupus and oral complications. Did you know that your mouth is a hotbed? Did you know that we have 500 different types of bacteria? At least 11 of which can cause "peridontal disease". I will be giving the latest on if there will be another stimulus check in the horizon for the America...

In this episode you will hear about Anti-GBM (Good Pastures Disease) which is another auto-immune disease which effects men in their 20's and women in their 60's. You will hear the causes, signs, treatments and clinical trials. Resource References [1] Greco A, Rizzo MI, De Virgilio A, et al. Goodpasture's syndrome: a clinical update. Autoimmunity Reviews. 2015;14(3):246–253. [2] Foster MH. Basemen...