Susan Hendrix My Story Living With Lupus

This powerful and informative script is designed for My Story Living with Lupus during Lupus Awareness Month. In it, host Susan Hendrix reflects on her personal experience living with systemic lupus erythematosus while educating listeners about the complexities of the disease. The script includes clear, reliable information about lupus, addresses common misconceptions, and brings attention to an o...

In this episode of My Story: Living with Lupus , host Susan Hendrix sits down with Dr. Jenny Tufenkian, a renowned expert in Naturopathic Medicine, to explore the complexities of Chronic Pain Syndrome and its impact on those living with lupus. Dr. Tufenkian dives deep into the physiological and emotional aspects of chronic pain, offering valuable insights on how it affects the body, mind, and dail...

Living with a chronic illness teaches us to expect the unexpected. In this episode we discuss the topic of Advance Care Planning. It's not about giving up or focusing on the worst-case scenarios, it's about taking control, making your wishes known, and ensuring peace of mind for you and your loved ones. I's a very hard topic, but a necessary one. Feed Spot Links Top 100 Chronic Illness...

Living with Lupus: Figuring Out What’s Going On In this episode, we dive into the complexities of living with lupus, an unpredictable autoimmune disease that impacts every part of life. From understanding the early symptoms to navigating the whirlwind of tests, misdiagnoses, and emotional challenges, this is about finding clarity in the chaos. Join me as I share my personal journey of discovering...

In this episode of Living with Lupus & Beyond , we delve into the implications of former President Donald Trump's sentencing, where a judge granted him an "unconditional discharge" to respect the presidency. What does this controversial decision mean for the United States, its policies, and those navigating chronic illnesses? We explore Trump’s stated plans to restrict coverage for pre-existin...

In this heartfelt and empowering episode of Living with Purpose , we explore the transformative power of speaking life into yourself when you feel there’s nowhere to turn. Discover practical strategies to acknowledge your feelings, harness the power of words, embrace gratitude, and reconnect with your inner strength. Featuring inspiring quotes from Maya Angelou, Oprah Winfrey, Rumi, and Nelson Man...

Human Metapneumovirus (HMPV) is a respiratory virus belonging to the Paramyxoviridae family, closely related to respiratory syncytial virus (RSV). Discovered in 2001, it is a common cause of upper and lower respiratory tract infections across all age groups but is particularly severe in vulnerable populations, such as young children, the elderly, and individuals with weakened immune systems. HMPV...

The Duffy antigen, also known as the Duffy antigen receptor for chemokines (DARC), plays a critical role in immune system regulation and disease processes. It is a protein found on the surface of red blood cells and endothelial cells, known primarily for its function as a receptor for chemokines and its role in malaria resistance. However, emerging research has highlighted a fascinating link betwe...

My Story Living with Lupus is back with an insightful episode looking ahead to 2025! Join us as we discuss the potential changes in healthcare policies and how they might impact the lupus community. We’ll share tips for navigating these shifts and staying empowered. Plus, we’ll introduce Project 2025 , a new initiative focused on healthcare. Whether you’re living with lupus, supporting a loved one...

Welcome to My Story Living with Lupus," the podcast dedicated to bringing hope, support, and vital information to those affected by lupus. In this episode, we delve into the challenges and triumphs of balancing a career while managing lupus. Join us as we explore practical strategies for achieving work-life balance, navigating employment challenges, and maintaining productivity without compro...

In this two-part episode, I talk about the breakdown of health in underserved communities of color. What really causes the high rate of obesity, hypertension, and heart disease.

Join me on March 1, 2024, to learn more about health equality and health equity. It's time to eliminate health disparities. And it's time for you to become your own best advocate.

In this episode you will hear what neuropsychiatric is, the damage it causes and those who are at risk the most. You will also hear about what signs and symptoms to look for.

In this episode I tell you why I’ve been MIA due to one of my underlying conditions Sjogrens Syndrome and Lymphoma

In this episode you will hear about collagen is it really effective for those with autoimmune illnesses.  You will also hear about Racial-Ethnic Diversity and how the U.S. should expect a rise in lupus cases.  Lastly you will hear about how older patients with lupus lack follow-up care after a hospitalization. References Cleveland Clinic MedPageToday

If you are not in control of your health who is?  This episode is all about the importance of taking control of your health and stop allowing others to make decisions for you. Reference CDC World Health Organization To be a gust on My Story Living with Lupus Podcast email: mystorylivingwithlupus@gmail.com in the subject area state guest and tell us about you. Check us out on Amazon at: https:...

In this episode I will talk about vitamin and mineral deficiencies associated with lupus. Also I will discuss lupus in men which is rarely talked about.

In this episode you will hear the story of Tasha Brown Breast Cancer Activist, Stage 3 Breast Cancer survivor, Stage IV MBC. Wife, Mother and Grandmother .  She advocates for African American Women to go and get checked for this silent killer.  She gives me motivation to continue on brining awareness to chronic illnesses.  You can contact Tasha via social media at: IG: tasha_47lovem...

In this episode it's about the remix with Dr. Patricia Dhar, you will also hear about what I've been up to and a look into the future of My Story Living with Lupus Podcast.

In this episode you will hear about how Glitazone Drug May Cut Lupus Heart Risk.  Glitazone (Actos) has been widely used by diabetics.    We all believe that Americans should have a right to healthcare, but do we really have it, we are a country that will preach to other countries about preserving human rights, but we don't talk the talk nor walk the walk in the country. Resource Me...

In this episode I talk about the 988 Crisis Lifeline and how much health disparities actually will cost the United States by 2040.  You will also hear about how a small device helped me make through the worst lupus flare that I have ever had.   Resources MedPage Today Calmpak - www.calmpak.org Visit my TeePublic Store - T-Shirts by My Story - TeePublic Store | TeePublic  ***Help us...

In this episode you will hear about the healing power of I Don't Know, basically why it's so hard for physicians to just come out and say that they don't know what is going on regarding your health.   Also new approve first systemic treatment for alopecia. Go on over and visit my TeePublic store at:  https://www.teepublic.com/stores/my-story?page=6&ref_id=26353 Also go on over to htt...

In this episode you will hear what researchers say about racial bias in pulse oximetry and how it delays clinical outcomes for patients of color.  You will also hear the TYK2 Inhibitor shows promise in Lupus. Resource MedPage Today   Please visit my TeePublic Store all you have to do is click the link below. TeePublic Link: :  https://www.teepublic.com/stores/my-story?ref_id=26...

In this episode I talk about having open communication with your wife, girlfriend or partner about lupus and sex.  You will also hear about Monkeypox case reported in the U.S. and lastly one in four Medicare patients being harmed during hospital stay. Resource MedPage Today National Institute of Health Check out my store at: https://www.teepublic.com/stores/my-story?ref_id=26353 Check out my...

In this episode you will find out about Scalar Light Healing from Researcher Tom Paladino, share your thoughts on this subject.  Also, in this episode you will hear about "In Lupus Normal-Appearing Skin Is Not Normal and Shocking Mismanagement in Our Organ Donation System Is Causing Needless Death. Resource MedPage.com