Susan Hendrix My Story Living With Lupus

In this episode you will hear about Medical Gaslighting, NASH, Medical Errors and Know Who Is Operating on You. Resource MedPage Today

In this episode you will hear about two studies the first is Why Women Outnumber Men in Lupus and Mixed Results for Oral Lupus Drug in Phase II You will also hear about the current health challenges that I have been dealing with. Resource MedPage Today

In this episode you will hear the latest about my medical treatment, and my decision about a medication the doctor wants me on.  Also, you will hear about a doctor who was stating that stem cell treatments could cure COVID-19. Resource MedPageToday

In this episode you will hear about the No Surprises Act (Surprise Billing).  Self-Efficacy Impact on Pain and Fatigue in Black Women with Lupus. And a subject near and dear to my heart Stem Cell Therapy. Check out one of my Youtube channels below that I talk about my journey and research on Stem Cell Therapy for Lupus. Resource lupus.org MedPage Today Susan Hendrix- My Journey for Stem Cell...

In this episode you will hear about if RA is an overlapping condition to Lupus. Also, you will hear if Kidney Disease Gene Risk Info Aids Prevention in Primary Care. Resources MedPage Today

You will hear about the trail for a new treatment for lupus, this information was published on May 26, 2021.  For the phase 1 trial, the team recruited 31 patients with at least one of several autoimmune conditions, including systemic and cutaneous lupus.  Resource U.S. News (27, May 2021) Experimental Treatment Offers New Hope Against Lupus.    

In this you will hear what research state about PTSD in the development of lupus, also you will hear about my upcoming procedure.  We also pay tribute to the first Africa American Doctor in Honor of Black History Month James Derham. Resource MedPage Today (18, February 2022) PTSD May Play a Role in the Development of Lupus.

In this episode you will hear about the most common neuropsychiatric disorder people with lupus have.  You will also hear the latest in lupus news.  You will hear about African American women with lupus at higher risk for adverse perinatal outcomes. You will also learn a little-known Black History Fact. Resources Medline Plus (02, February 2022) SAD.  Retrieved from: https://medline...

In this episode you will hear research from 1 year ago that states the number of individuals with lupus is 200,000 and larger numbers have not been unverified.  You will also hear how lupus can affect the heart.  Resources John Hopkins (2022) How Does Lupus Affect The Cardiovascular System usnews.com (2022) More Than 200,000 Americans Have Lupus (Health News) #lupus #cardiovascularsystem...

In this episode you will hear why the use of Medical Marijuana has not been approved for the treatment of lupus, you will also hear about what CBD is, Cannabinoids.  Find out why the use of Marijuana has been approved for epileptic seizures. Reference  Yale Medicine - From "miracle drug" to medicine? Lupus Foundation - Medical Marijuana (cannabis) and Lupus #marijuana #cannbis #lupus #my...

In this episode you hear the latest on my journey and how I've been doing.  Also, I give a brief connection of SLE and Lymphoma.  You will also hear the latest in Lupus Research. Resource Lupus Foundation of America American College of Rheumatology #lupus #lymphoma #lupusresearch #mystorylivingwithlupuspodcast

In this episode you will hear about my recent diagnosis of non hodgkins lymphoma, I will tell you the signs, you will also learn how B/T Cells play a role in non hodgkins lymphoma.  You will also hear the latest in Lupus News. Resources MayoClinic Lupus Foundation of America #lupus #nonhodgkins #lymphoma #mystorylivingwithlupuspodcast

In this episode you will find what research states about elderly-onset of sle.  Also you will hear about the Wide Differences in Thinking Skills and Abilities Linked to Cognitive Dysfunction in Lupus Patients.  Did you know that individuals with sle are at a higher risk of cancer.  You will also hear my health update and a tribute to my mother. Resources Lupus Foundation Of America...

Melissa Coulier is a trailblazer in the field of photography, she is here to tell her story of living with lupus. Lifestyle Brand M/M melandmelco.com #melissacoulier #lupus #mystorylivingwithlupuspodcast

In this episode you will hear about the journey and triumphs of Patti Kaye Bevilacqua of living with MS. #ms #pattibevilacqua #chronicillness #mystorylivingwithlupuspodcast

In this episode you will here how medical errors can affect your care, and what is considered a medical error.  Also is Hypothyroidism-Depression Link as Strong as We Think? Suicides Rising for Black Girls. Latest in Healthcare News. #medicalerror #suicidesrisingforblackgirls #mystorylivingwithlupuspodcast

In this episode you will meet Christina Kantzavelosa California licensed psychotherapist and writer, but most importantly she also suffers from chronic illness.  We are discussing healing, your mind, body and spirit and living a positive life, and how journaling can help you do just that. Pick up your Begin Within - A Daily Healing Journal at: https://beginwithintoday.com and receive 10% off...

In this episode you will hear the clinical challenges when it comes to diagnosing HS.  Also, you will hear the latest in lupus news, along with the conclusion of Injecting Cocaine Into Your Spine for Science. Resources MEDPAGE TODAY (12, August 2021) Clinical Challenge: Diagnosing hidradenitis suppurativa MEDPAGE TODAY (22, July 2021) Injecting cocaine into your spine for science Lupus Founda...

In this episode you will hear the amazing story of Author Heather Rendulic journey of living with Cavernous Angioma. To purchase her book Head Strong Through Life, Love and Brain Surgery.  Go to her website- heatherheadstrong.com #cavernousangioma #headstrong #mystorylivingwithlupus.com

In this episode Author Darren Radke discuss his journey of living with both APS  an autoimmune illness that is more common in women. It is rare fewer than 200,000 cases per year in the United States.  He also discusses his symptoms of lupus. To purchase this inspirational book go to: www.deceivedfromwithin.com.  You wont be disappointed. #antiphospholipidsyndrome #malelupus #mystory...

In this episode men will learn some coping techniques on how to cope with lupus.  Also you will hear how HCQ is associated with lower risk of developing endometriosis in women with lupus.  Part 2 of injecting cocaine into your spine for science yes, doctors actually did this.  And lastly you will hear why I have to have a biopsy performed. Resource  Lupus Research - How Men Can...

In this episode you will hear what states about living a healthy lifestyle may limit the risk of an individual having lupus.  Also you will hear about the importance of seeking help from a qualified mental health professional.  Lastly it's story time, that's right story time. You will hear part 1 of injecting cocaine into your spine for science. Resource MEDPAGE TODAY (24, July 2021) To...

In this episode you will hear about the newly published research that further demonstrates the effectiveness of the lupus diagnostic test known as the AVISE Lupus Test.  Also you will hear about the Urban Institute study on the outcomes of black and white patients. Resource Lupus Foundation of America (14, July 2021) AVISE Lupus Test Improves Disease Diagnosis and Helps Guide Treatment Decisi...

In this episode you will hear how steroid tapering is safer for patients with SLE.  Research shows that fibromyalgia is a result of autoimmune problems.  You will hear what I have been diagnosed with now and lastly a nurse is suspended over her TikTok videos about patient, but she stated that the only thing that is hurt are feelings. Go and leave a review, like and subscribe. #steroid #sle#fibromy...

In this episode you will hear why researchers  believe it for  individuals with lupus maintain a lower BP.  Also in this episode you will hear about Tumid Lupus Erythematosus, Signs, Symptoms and Treatments and lastly What  Is Whole Persons Health, Is it Physical, Mental, Environmental? Resource MedPage Today (19, June 2021) In Lupus, Keep BP Below 130/80 NIH (19, June 2021) Tu...